1) Another interesting study Gemma Samms and Chris Ponting. They looked closely at data on ME/CFS in the UK biobank and found that some of these may not be very reliable. - ThreadSky

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mecfsskeptic.bsky.social • 12 days ago

1) Another interesting study Gemma Samms and Chris Ponting.

They looked closely at data on ME/CFS in the UK biobank and found that some of these may not be very reliable.

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mecfsskeptic.bsky.social•12 days ago

2) Take for example self-reported diagnoses. Participants to the biobank could report serious illnesses in a verbal interview with ‘chronic fatigue syndrome’ as one of the recorded options.

mecfsskeptic.bsky.social•12 days ago

3) 2,312 (0.46% of the ca. 0.5 million biobank participants) self-reported a clinical diagnosis of CFS. But of these, 28% also reported 'good' or 'excellent' overall health when they first volunteered their CFS diagnosis. This seems like a contradiction.

mecfsskeptic.bsky.social•12 days ago

4) In addition, 44%-69% failed to re-report CFS at subsequent visits to the biobank. Only half had a ME/CFS code in their primary care records and only a third had the hospital ICD-10:G93.3 code for postviral fatigue syndrome/ME.

mecfsskeptic.bsky.social•12 days ago

5) Next to the verbal interview there was also another data source, a pain questionnaire that explicitly asked: “Have you ever been told by a doctor that you have ME/CFS?”

2,720 people (1.63%) said yes.

mecfsskeptic.bsky.social•12 days ago

6) But in this group, we also see discordance with other questions. For example: of these self-reported ME/CFS cases, 31.0% did not report ‘persistent or recurrent tiredness, weariness or fatigue that has lasted over 6 months.

mecfsskeptic.bsky.social•12 days ago

7) Although PEM itself was not measured, 24% of this cohort did not report ‘feeling tired after minimal physical or mental exertion’.

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