I'm happy that my #LongCovid #CFS is okayish enough for me to attend a conference in Spain but noting #CripTax /crip inconveniences: 1) inaccessible station meant I had to get someone to carry my bag over the bridge 2) getting from the train station to the airport will tire me [cont.d] - ThreadSky

remembermyhat.bsky.social • 80 days ago

I'm happy that my #LongCovid #CFS is okayish enough for me to attend a conference in Spain but noting #CripTax /crip inconveniences: 1) inaccessible station meant I had to get someone to carry my bag over the bridge 2) getting from the train station to the airport will tire me [cont.d]

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remembermyhat.bsky.social•80 days ago

3) airport special assistance is usually great IME but sometimes awful, and it's done differently each time = adds stress and uncertainty 4) getting from the airport to the conference town is going to be exhausting (train change, baggage, cognitive load) 5) I will need to get a taxi to my hotel[...]

remembermyhat.bsky.social•80 days ago

... although it's only 15 mins walk 6) I'm probably going to be too tired to attend the opening ceremony and theatre performance this evening 7) I had to stay in a more expensive hotel, closer to the conference venue so I can rest mid-day 8) I have to stay an extra night after the conference ends

remembermyhat.bsky.social•80 days ago

For me, it's worth it because I enjoy conferences, especially this one. And I can take the financial hit for the costs I can't get covered by my uni. But I didn't really understand this before I got ill, despite many disabled friends. What do you know, personal experience makes a difference!

remembermyhat.bsky.social•79 days ago

Forgot a way airport special assistance is often annoying - they insist on one size fits all so I'm having to wait for a lift to get out the plane when I could perfectly well walk down the steps, meaning I am getting stressed about making my train connection.

remembermyhat.bsky.social•79 days ago

And because my Spanish is rubbish and my helper's English not great, we miscommunicated and I have had to walk a tiring amount.

remembermyhat.bsky.social•79 days ago

Since I seem to be liveblogging this (a concept so ancient my autocorrect doesn't recognise it as a word) I am now on the suburban train so should be okay to catch the fast train in an hour. Because this is not my first rodeo, I brought an iced coffee and am using the caffeine and sugar to power me.

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