I've submitted a rapid response to this BMJ Opinion piece - speaking from my dual experience as both researcher and 'recovered ME/CFS patient' (not a term I'd choose to employ).
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I normally choose not to share my experiences of ME/CFS; I don't believe that 'recovery narratives' are helpful in these contexts (which is a long story, perhaps for another time).
However, recovery is so frequently mobilised in ways that are harmful, so I wanted to present a different viewpoint.
Thank you for this! I have tried over & over again throughout the last 5 years to reframe my thinking & act as if I am well & all it has done is make me worse. But learning to live w/in the confines of my illness has allowed me to ask help, seek treatment & support, & practice self-compassion.
Thank you so much for this! I went through a similar experience starting in 1987 when I was 20 and in college. First diagnosed as chronic Epstein-Barr, later as chronic fatigue syndrome, and finally as fibromyalgia. Dealing with doubt from others was by far the greatest stressor.
Thank you for such a wonderfully narrated and articulate response and for sharing your personal story.
I had a similar response to my first covid jab. The following day I felt so healthy, I thought the jab had caused a spontaneous recovery. It only lasted 24 hours but it was a spectacular feeling.
Do you think the fact that there is not enough research on women’s health is the cause of under diagnoses of this and many ailments that are more prevalent in women?
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However, recovery is so frequently mobilised in ways that are harmful, so I wanted to present a different viewpoint.
Just a heads up, the alt text in the first picture is cut off after the first sentence of the fifth paragraph, after [2].
And I *really* like the title you gave it.
I had a similar response to my first covid jab. The following day I felt so healthy, I thought the jab had caused a spontaneous recovery. It only lasted 24 hours but it was a spectacular feeling.