🧵 As you may have heard, RFK/HHS have changed the name, but not walked back their Autism registry/database, and have confirmed they will be integrating information from Medicare/aid, medical records, and wearables. Here is a template for requesting that medical providers don't provide that info:
Comments
The only way they should want to know this information is to fight for treatment if possible or help the autistic person cope with the world they live in!
To: [Doctor's Full Name]
From: [Your Full Legal Name]
Date: [Insert Date]
Subject: Restriction on Disclosure of Protected Health Information (PHI)
Dear Dr. [Doctor's Last Name],
I, [Your Full Legal Name], date of birth [MM/DD/YYYY], am writing to
formally exercise
Specifically, I am hereby directing that you and your practice not disclose any part of my medical records, including but not
Department of Health and Human Services (HHS) or any of its agencies, except where disclosure is required by law (such as in response to a valid court order or for public health reporting where no waiver is permitted).
This restriction applies to:
Verbal, written, or electronic disclosures;
Disclosures for research,
audits, or program evaluations not
otherwise required by law;
Any sharing of medical records through Health Information Exchanges (HIEs) without my express written authorization.
is for payment or healthcare operations and I have paid out-of-pocket in full. However, I am asserting this request as a
formal limitation on
https://chloehumbert.substack.com/p/dont-include-poison-pills
It seems like you're ACTIVELY giving them permission to your data for public health purposes!!
Not good.