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cgmanley.bsky.social
She/her Newfoundlander 🫐 living on PEI šŸ„” Editor, specializing in memoir šŸ¦“ Living with Hypermobility Syndrome (HEDS) I believe that everyone is equal & deserves love, sunsets are magic, & a good cup of coffee can make your day.
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Rough night of pain-insomnia (painsomnia?). Today is hard going, and this weather isn't helping. Trying to find bright moments, but today it's taking some extra effort.

Super frustrating to hear a cbc reporter talk about the ā€œconflicts in Ukraine and Israelā€ this morning. There is no conflict in Israel and likening an oppressed country with an oppressor is both wrong and beyond disrespectful. Reporters need to be mindful of their word choice. It matters.

Our magnolia tree is in bloom! I love this tree & wish the flowers stayed longer…but there is a message of appreciation & cherishing things when they happen that I do adore. I also planted actual flower bulbs in my front yard and they bloomed! I live in a shady area so this is a pleasant surprise.

My usual Saturday morning routine involves a little lay-in, coffee/breakfast, then deep cleaning. Today, I said ā€œsod that,ā€ and husband and I went to the farmers market + a garden centre while little had dance. Zero regrets. Total zen. The dirt at home can wait…bringing home more dirt anyway šŸ˜‰

Now that we’ve broken the news to our girls, I can share that our lab, Soleil, has been diagnosed with cancer. It’s been a rough few weeks processing the news and waiting for test results. I’m happy to report that she has chronic leukaemia, not acute, which means it can be treated. 1/2

Seeing job ads to train AI to write/edit disturbs me. Why are we being asked to help the thing that will put us out of a job? The beauty of a HUMAN is that we understand human feelings and experiences way better than any robot can, and it is that knowledge that strengthens the writing (sorry, bots).

Feeling like a professional boxer today (not a terrible metaphor to enter the day with, truthfully). Physiotherapist is trying a new technique for pain relief, and (as always), I’m a willing guinea pig.

Today was a large day. A frustrating doctor’s visit, some good news from our vet, and a little creative writing judging to wrap it all up. Thanks, Tuesday, it’s been a slice.

The last week or so has seen me turning our a/c on, not because it’s warm (it isn’t), but because it helps my joints/pain levels. Tonight, I’m relishing the pure delight that is the a/c + heated blanket combo. Geez, my joints are a high maintenance diva!

We opened up the camper this week, and much to our delight, we were reunited with a bunch of board games that got left in there by mistake when we closed her up last fall.

Today's weekly adventures at physio include me having bright blue tape applied to the back of my neck/upper shoulder area. Fingers crossed it helps. And, hey, my hips didn't need to be manually aligned today so that's a win. I take my victories where I can! #Hypermobility #ChronicPain

And I know I talk a lot about my chronic condition on here. Thanks for indulging me, friends. My health is a big part-time job for me these days and takes up a lot of my time/energy. But I’m learning loads and FINALLY putting pieces together about my weirdo body.

Excited to find some actual resources, regionally, on hypermobility via a support group based in NL. I emailed to ask if I could attend their webinars, given I was born there and we have nothing like that on PEI, and not only will they let me attend, they want anyone on PEI to, as well. ā¤ļø

NEW: Maine Governor Janet Mills announces the USDA has dropped their lawsuit against Maine over trans athletes: ā€œA few months ago, I stood in the White House and when confronted by the president of the United States, I told him I’d see him in court. Well, I did see him in court and we wonā€

Challenging week as I decided to quit a certain drug I was on for pain relief. The side effects were too much. But now I’m back to more pain, which is super frustrating. Like now, 3am and I am miserable. (This is a pity post; back to regular posting soon.)