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cranervirus.bsky.social
Dad. Full time carer of child with Long Covid ME/CFS. Former financial analyst and school business leader. Wannabe garden designer.
59 posts 29 followers 62 following
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As part of Long Covid Awareness Month, and to mark the fifth anniversary of the first UK lockdown, we have sent an open letter and petition to @wesstreeting.bsky.social & @ashleydaltonmp.bsky.social #LCandME #FundOurFuture #FundThePlan www.longcovidkids.org/post/open-le...

submitted 50 days ago • 1 comment

5 years this weekend since lockdown. My son is amongst the 100,000 kids that is still locked down by Long Covid. Bedbound in a darkened room by M.E. Millions of all ages affected. The new government must not brush them under the carpet like the previous one did. Invest in medical treatments & care

submitted 54 days ago • 1 comment

📺 1/2 Thanks to @drdavidgk.bsky.social & BBC Midlands Today for covering our #LongCovid clinics report & our Trustee @margaretohara.bsky.social for speaking: “These people could work but they need medical help, they don’t need a life coach” Report link⬇️ #ClosingClinics @longcovidkids.bsky.social

submitted 57 days ago • 2 comments

"Thank you for making us kids seen" you.38degrees.org.uk/p/LCME

submitted 57 days ago • 0 comments

This is incredible - let's keep it going? Keep sharing with your networks, we can do this! you.38degrees.org.uk/petitions/in... @ashleydaltonmp.bsky.social Wes Streeting please hear us! #LCandME #FundOurFuture #FundThePlan

submitted 58 days ago • 1 comment

Dear Department of Education, in response to your blog on school attendance, which reports Since COVID-19, absence rates have surged: 2018/19: 4.7% 2021/22: 7.6% 2022/23: 7.4% I've made a slide to help The absence of #LongCovid in discussions is LOUD. Both #LongCovid & infection

submitted 58 days ago • 1 comment

The BBC covered this as LOCAL news again 🙄 When will the press & government join the dots and acknowledge the cause of the rise in physical disability? Thousands now signing the petition calling for funding for biomedical treatment research and care for Long Covid & M.E. you.38degrees.org.uk/p/LCME

submitted 58 days ago • 0 comments

You won't get us working if you don't get us well (we desperately want both). The government needs to fund treatment research and stop closing clinics. Sign and share the petition: you.38degrees.org.uk/petitions/in...

submitted 59 days ago • 0 comments

“In 2025, long Covid is the public health crisis no one wants to talk about, taking a wrecking ball to people’s lives, the economy and NHS while those with power pretend there’s nothing to see.” 5 years on, I wrote about long Covid and national denial. www.theguardian.com/commentisfre...

submitted 59 days ago • 12 comments

@georgemonbiot.bsky.social Please help further amplify our call for M.E. and Long Covid treatment research and care. The legacy of post-pandemic PHYSICAL disability is missing from the conversation on welfare cuts and disability support. Millions being brushed under carpet bsky.app/profile/long...

submitted 60 days ago • 0 comments

Please sign and share to help our future generation, so many need help and support. #longcovidkids ⬇️

submitted 61 days ago • 0 comments