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1/3. 🔥Fireside Chat from The #LongCovid Clinic🔥 ‘Debunking the Myths of the Mind-Body Connection’ 🗓️ Wednesday 21 May 2025, 6pm UK time @binitakane.bsky.social & @helenoakleigh.bsky.social are joined by Psychotherapist & Clinical Mind Body Therapist Nadyne McKie. Link & further info. below ⬇️

submitted 1 hour ago • 1 comment

Just for documentation: This is anti ME/CFS extremism

submitted 1 day ago • 3 comments

And #pw LongCovid please also help me with a brief anon survey. DWP’s response to my FOI request👇🏽implied that v few #pwLC access PIP DLA and many will lose this with the cuts. To act, I’d first like to understand what’s up… focussing on severe LC. 🙏🏽 forms.gle/YFoK9diPBBVf...

submitted 10 hours ago • 0 comments

1/ Two years later… and the damage is still there. A new study followed Long COVID patients 2 years after infection. The findings? Not subtle. They measured what the virus left behind. Let’s walk through it. 🧵 h/t @njenkinsphd.bsky.social

submitted 9 hours ago • 7 comments

Thought of the day: On ‚Wellness Grifters‘. #LongCovid #ME

submitted 11 hours ago • 0 comments

1/Almost 9 years ago I was standing in front of the TV in shock and disbelief over the Brexit vote. To be truthful, my anxiety was not because of the predicted economic consequences. It was because the vote showed me that campaigns based on prejudice work in this country. And it went downhill since.

submitted 1 day ago • 39 comments

#ME

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#LongCovid #ME

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#nature

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My comment on Paul Garner‘s story below - it is awaiting moderation 🙄 #LongCovid #ME 1/2 www.ive-recovered.com/recovery-sto...

submitted 2 days ago • 3 comments

‚What did harm my mental wellbeing (…) were the beliefs that others held about me and my illness: that I could get better, if only I reframed my own thoughts, or did more exercise, or exercised in a different way, or stopped focusing on my symptoms.‘ #LongCovid #ME

submitted 3 days ago • 2 comments

This heavily ratioed (commissioned🤦‍♀️) opinion piece by the @bmj.com shows a core issue in medicine That is the connections/network you have to spread harmful, anti-consensus narrative that matters - not science, or the patient experience This should never have been published

submitted 3 days ago • 0 comments

From @meresearchuk.bsky.social This week we’re raising awareness about the debilitating nature of ME/CFS. Post-exertional malaise (PEM), the hallmark feature of #MECFS, is the worsening of symptoms following minimal physical or mental exertion. Read more about the experience of PEM: bit.ly/expPEM2

submitted 3 days ago • 1 comment

Quite disheartening to return from 10 days working with some of the most important and relevant #MECFS and #LongCOVID researchers in the world and to read this drivel being allowed through from @bmj_latest. Let's be unambiguous about this: BMJ has www.bmj.com/content/389/... 1/

submitted 3 days ago • 11 comments

Honestly, Aseem Malhotra really is a compulsive liar. Turns out he is not, as he told the press, the MAHA's new chief medical advisor - but, rather, merely that of a lobby group targeting the MAHA (with quackery & anti-vax views, no doubt). The shameful inaction of the GMC still stands.

submitted 3 days ago • 4 comments

🚨 Researchers alarmed at the high prevalence of #LongCovid in children. 💥Calling for increased research funding into this neglected area of investigation. Risk of ME and significant impact on quality of life also noted. Where is the urgency?! 🖇️ tinyurl.com/327yfeyu

submitted 4 days ago • 3 comments

#LongCovid erschien vor fünf Jahren als Hashtag auf Social Media, lange bevor die WHO den Namen als offizielle Bezeichnung der Krankheit übernahm. Der Hashtag prägt bis heute das Leben vieler Betroffener. #LongCovid symbolisiert eine soziale Bewegung, eine heterogene Community,…

submitted 4 days ago • 4 comments

A massive thank you to ActionForME and @longcovidsupport.bsky.social for inviting me to speak at today’s joint #LongCOVID and #ME All Party Parliament Group meeting, alongside Profs @daltmann.bsky.social @cgatist.bsky.social and David Strain.

submitted 4 days ago • 2 comments

If the GMC had actually done its job properly & struck off Aseem Malhotra for his anti-vaccine scaremongering, we might not be in this situation. But here we are, as he carves a new career for himself in the States. Great work, GMC.

submitted 4 days ago • 18 comments

Incredibly powerful investigation in Dutch newspaper NRC: Seven of the world’s leading genocide scholars — including renowned Holocaust experts — describe Israel’s actions in Gaza as genocidal. And according to them, nearly all of their peers agree.

submitted 3 days ago • 7 comments

Prolonged alterations in red blood cell rheology following mild SARS-CoV-2 infection: Implications for microvascular health www.sciencedirect.com/science/arti... Screenshot is from the latest Science for ME weekly update #LongCovid #PASC

submitted 3 days ago • 1 comment

Until the medics and the royal colleges peddling this unscientific, unproven and damaging rubbish are sidelined people with ME/CFS will remain at risk from the NHS There is no place for this in evidence based medicine

submitted 4 days ago • 3 comments

Alastair Miller is lead author of this frustrating new piece in the BMJ: “Patients with severe ME/CFS need hope & expert multidisciplinary care” www.bmj.com/content/389/... It mentions recovery.Here’s my post showing the real evidence that he again ignores: www.s4me.info/threads/dr-a... #MEcfs #PwME

submitted 4 days ago • 5 comments

It is sad to see @bmj.com platforming quack therapies in 2025 The mind-over-matter approach to #MECFS has been debunked for years, but a cadre of psych devotees in the UK persist in peddling evidence-free miracle cures Pure and utter pseudoscience #pwME #LongCovid @georgemonbiot.bsky.social

submitted 4 days ago • 14 comments

And what about reframing beliefs about four humors theory (blood, phlegm, yellow bile and black bile) or flat earth? Can this also help?

submitted 4 days ago • 1 comment

Starmer's language was deplorable. It was grotesquely offensive, accusing people who have brought their gifts to this country of doing "incalculable" "damage"; & politically foolish, in endorsing Farage's claims of an establishment conspiracy. But bad analogies with Powell miss the key problem. 🧵

submitted 4 days ago • 41 comments

Genau dieses Leistungs-Gerede ist leistungsfeindlich. Weil es nämlich einen großen Teil der Leistungen ausblendet. Abseits bezahlter Arbeitszeit wird nicht bloß herumgelegen und gefaulenzt. Da werden auch Kinder erzogen, Kranke gepflegt, Kultur geschaffen, Ideen entwickelt. (Thread)

submitted 4 days ago • 196 comments

'The main symptom of patients with severe long Covid and ME/CFS is post-exertional malaise, or PEM for short. Sports physician Christian Puta is researching the mechanisms behind it.' www-wissenschaft-de.translate.goog/gesundheit-m...

submitted 126 days ago • 1 comment

‚(…) she’s just qualified enough to garner the support of the general public. She is going to prey on the fact that most people are more aligned with the eugenicist mindset than they realize. They too are afraid of disability and disabled people. They want to believe it won’t happen to them.‘

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‚And a reminder seems important here: When a major trial yields null primary outcome results, rejecting the primary outcome after-the-fact and deciding it was a success based on secondary outcomes is not a great look.‘

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One unambiguous result of the #InternationalMECFSConference2025: The evidence for pathophysiologic disease mechanisms in #MECFS is - once again - so overwhelming that no serious doctor or researcher can still claim otherwise.

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‚Zwischen ihnen und seinen deutschen Patienten macht er keinen Unterschied‘. Außerdem wird ihm sein kulturelles Interesse und seine Fremdsprachenkenntnis zum Verhängnis. Knapp 4 Minuten Audio, unbedingt anhören.

submitted 5 days ago • 0 comments