drjogreer.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

Ahead of tomorrow's ME Awareness Day/Week - I wrote a piece about beachcombing as a guest post for @drjogreer.bsky.social #pwME #MECFS #MEAWARENESSDAY #Disability #ChronicIllness - take a look at the link to next week's concert too - substack.com/home/post/p-...

submitted 2 days ago • 0 comments

#pwME #MyalgicEncephalomyelitis #bluesundayconcert2025 #meawareness @meresearchuk.bsky.social @smileformecharity.bsky.social

submitted 5 days ago • 0 comments

Really pleased to have contributed a guest post to @drjogreer.bsky.social 's The Red Tree & ME. #Disability #Beachcombing #NatureWriting #LifeWriting #RedLeaves #MECFS substack.com/home/post/p-...

submitted 9 days ago • 1 comment

#BlueSunday The Tea Party for ME Online Concert Registration / Donation here: bit.ly/bluesundayco... #pwME #BlueSundayforME #MyalgicEncephalomyelitis #MECFS @meresearchuk.bsky.social @smileformecharity.bsky.social

submitted 26 days ago • 0 comments

theredtreeandme.substack.com/p/still-a-me... Elaine O’Neill, a founder member of The Red Leaf Creative Collaborative, presents ‘Still’. This captivating piece is part of her ‘Open Door’ series & offers a glimpse into a tiny corner of her lived experience as a carer for her daughter #TheRedTreeandME

submitted 30 days ago • 0 comments

'...hope for me is not about seeking to deny the existence of these dark leaves. We can’t. For us, hope is resistance despite them.'🍁 @sunsopeningband.bsky.social #ThereForME #FundThePlan #LongCovid #myalgicencephalomyelitis #TheRedTreeandME #ShaunTan #Hope open.substack.com/pub/theredtr...

submitted 43 days ago • 1 comment

open.substack.com/pub/theredtr...

submitted 59 days ago • 0 comments

Who’s ready for Day 2 of #FundThePlan? The community shared so many powerful videos yesterday. Keep shooting your videos and joining in however you can 💙 Lots of action yesterday in the other place. We’d love to see it take off here too! 🦋

submitted 80 days ago • 1 comment

The effects of #ME are vast. Families are split apart, friends turn their backs, employers can’t put up with unreliable employees. Worst of all Drs here been taught that it’s an imaginary illness because standard tests show that there’s no problem. There is! #FundThePlan 🙏

submitted 80 days ago • 1 comment

Yesterday’s news was disappointing but not unexpected. With over a month until the plan is finalised there’s still time for ministers to change course. And every bit of pressure helps. More from us tomorrow on how you can fight back 💪 #FundThePlan

submitted 82 days ago • 0 comments

30 yrs have been wasted on a psychological approach to #MECFS that led to stigma, abuse, and serious harm. It was abandoned by NICE due to bad science. Wes Streeting & @ashleydaltonmp.bsky.social The Delivery Plan is an opportunity to undo the damage and research treatments #FundThePlan

submitted 81 days ago • 0 comments

Dear @wesstreeting.bsky.social & @ashleydaltonmp.bsky.social I’m a carer to my husband James who has very severe ME. He used to be a civil servant. Now he can’t get out of bed or have a conversation. The Delivery Plan for ME is an opportunity to invest in our future. #FundThePlan

submitted 81 days ago • 2 comments

I've had #ME for 38 years, nothing has changed in that time, no care, treatments or funding for biomedical research It's an appalling record for everyone who's had a responsibly to implement change for #pwME over decades #FundThePlan @ashleydaltonmp.bsky.social & @rthonwesstreeting.bsky.social

submitted 77 days ago • 2 comments

#FundThePlan and help millions of #ME sufferers worldwide to regain their lives. Superb care for my bouts of cancer. Nothing for 32 years of severe ME.

submitted 77 days ago • 1 comment

New #ThereForME blog out today highlighting some of the community campaigning work going on for #ME and #LongCovid - from #FundThePlan to Long Covid Awareness Day. Read more and learn how you can get involved 👇 www.thereforme.uk/p/campaign-u...

submitted 77 days ago • 0 comments

Mums done a good job! We hope you enjoy and take a read - Caroline ♥️

submitted 82 days ago • 0 comments

theredtreeandme.substack.com/p/the-red-tr... Inspired by #TheRedTreeandME & Dr Lucinda Bateman @batemanhornecenter.bsky.social @carolinefricker.bsky.social has delicately crafted & introduces The Red Tree Warriors: “We know you are suffering and will continue to fight for you.” Dr Lucinda Bateman

submitted 82 days ago • 0 comments

Dr Clare Rayner, a member of The Red Leaf Creative Collaborative, shares with The Red Tree and ME her stunning art work, 'Reflections'. View or subscribe for free. #pwme #myalgicencephalomyelitis #TheRedTreeandME open.substack.com/pub/theredtr... #oneredleafatatime

submitted 85 days ago • 0 comments

Thank you @drjogreer.bsky.social for bringing hope to everyone suffering with #MECFS and #LongCovid. We see you, and we are fighting together. No government will silence us. Infectious disease research is more critical than ever. We will keep fighting! 💪 theredtreeandme.substack.com/p/more-messa...

submitted 100 days ago • 2 comments

Thank you so much @daniellebeckman.bsky.social for this wonderful message of solidarity for people with #myalgicencephalomyelitis #TheRedTreeandME Please subscribe to theredtreeandme.substack.com for free for more messages of hope and solidarity

submitted 100 days ago • 0 comments

More Messages of Hope and Solidarity for 2025 open.substack.com/pub/theredtr...

submitted 101 days ago • 0 comments

Q: Why isn't @GwynneMP pushing for #CleanAir to reduce transmission of #Covid during the ongoing pandemic and to reduce the number of ppl developing #LongCovid #LongCovidKids? A: Andrew supports the opinion that Covid is NOT predominantly transmitted through the airborne route. #CovidIsAirborne

submitted 115 days ago • 2 comments

Thank you so much @binitakane.bsky.social and @karenlhargrave.bsky.social #ThereForME for all your work on this. I hope the charities will follow your leadership and clear messaging about hopes for the Delivery Plan. #MyalgicEncephalomyelitis #LongCovid #pwME

submitted 119 days ago • 0 comments

📢 Today @karenlhargrave.bsky.social and @binitakane.bsky.social will be representing #ThereForME on the Task & Finish group for the new delivery plan for ME. Today's #ThereForME blog outlines six things they'll be looking out for as the delivery plan is finalised. www.thereforme.uk/p/a-delivery...

submitted 119 days ago • 7 comments

I cried the kind of tears that come from the validation of ME/CFS in reading what the clinicians and scientists researching the illness had to say. This gives me so much hope for those of us with ME/CFS and long COVID. Let’s see what 2025 brings… #pwME #MECFS #LongCovid

submitted 133 days ago • 4 comments

So excited to share these messages of hope & solidarity for 2025! Huge thanks to all who contributed. #TheRedTreeandME #myalgicencephalomyelitis #LongCovid #pwME open.substack.com/pub/theredtr...

submitted 133 days ago • 1 comment

So pleased to see MPs who are #ThereForME Thank you so much @tessamunt.bsky.social we can't wait to work with you in 2025!

submitted 143 days ago • 0 comments

Delighted to have joined the APPG ME and been appointed an officer. Too many people live with ME, with too little understanding, and inadequate care. It’s time to engage - I’m #ThereForME.

submitted 144 days ago • 8 comments

Beautifully written by @drjogreer.bsky.social a Mum caring for a daughter with severe ME.

submitted 148 days ago • 3 comments

🍁 Stunning new reflection from @drjogreer.bsky.social (UK mum to a #LongCovidKids teen) with Illustrations from beloved Australian artist & filmmaker Shaun Tan (The Red Tree) 🙏❤️ open.substack.com/pub/theredtr...

submitted 148 days ago • 1 comment

Delighted that #ShaunTan, beloved artist and author, kindly granted permission for me to use some of his beautiful images from #TheRedTree for this piece about #MyalgicEncephalomyelitis #pwME #GreatestMEdicalScandal #ThereForME open.substack.com/pub/theredtr...

submitted 148 days ago • 2 comments

Interesting choice of language in referring to Ireland as having "extreme" anti-Israel policies Joining 145 of 193 UN member states in recognising the State of Palestine hardly seems that "extreme" Supporting ICJ, ICC, humanitarian aid, ceasefire, human rights, etc, is extremism I can get behind

submitted 148 days ago • 1 comment

Even if not appearing, maybe they could please share to show solidarity with #ThereForME and help raise awareness of the need for #patientsafety & research for #myalgicencephalomyelitis #LongCovid @gwynnemp.bsky.social @jeremycorbyn.bsky.social @zarahsultana.bsky.social @georgemonbiot.bsky.social

submitted 148 days ago • 0 comments

So proud of my party for its engagement with our campaign. Special thank you to @helenmorganlibdem.bsky.social for raising awareness of LC & ME in her capacity as DHSC Spokesperson

submitted 150 days ago • 0 comments

Dec 15: Ruth Liptrot is a reporter for @channel5tv.bsky.social 5 News. Ruth has covered Long Covid & her own experiences of the condition. Her message: “My wish for patients with Long Covid and ME is that they are believed & then helped accordingly. Wishing you all better & sending love, Ruth xxx”

submitted 149 days ago • 2 comments