janetdafoe.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

Happy Mother’s Day! So proud to be the mother of these two amazing beings!

submitted 2 days ago • 2 comments

New! Clinical Care Guide for #MECFS, Long COVID, & IACCs—a practical, evidence-based guide for healthcare providers drops May 9 by @batemanhornecenter.bsky.social Real-world insights from expert clinicians for improving diagnosis & care! Reserve a copy: batemanhornecenter.org/clinical-care-guide/

submitted 7 days ago • 2 comments

Happy Easter! 🐇

submitted 23 days ago • 0 comments

Happy Easter week!

submitted 27 days ago • 1 comment

Sometimes I feel like a broken machine that I wake up to everyday and just keep desperately trying to make work. I'm tired of trying to make myself work and I'm tired of feeling broken. I want to live in some other dimension where I shine like a being of light. #MECFS #LongCovid

submitted 37 days ago • 4 comments

Breaking news: A new lawsuit seeks to challenge the National Institutes of Health’s decisions to abruptly terminate hundreds of grants, totaling more than $2.4 billion, over the past month. scim.ag/3DZnylL

submitted 41 days ago • 33 comments

Tea party with cobalt china tea set that my Uncle Ralph brought back from Germany in WWII for my mom.

submitted 53 days ago • 2 comments

I want to announce my new Print Store! www.whitneydafoe.com/store I have been working on putting this store together for 2 years now…The images were all taken before I became severe with ME/CFS in 2013…So it is a sort of parallel dimension time capsule of what could have been with my life

submitted 65 days ago • 1 comment

Ron Davis spoke at this demonstration to support science in Palo Alto today.

submitted 67 days ago • 2 comments

@lawrenceodonnell.msnbc.com

submitted 68 days ago • 0 comments

@maddow.msnbc.com Are you aware of the devastation that’s happening to American science? www.washingtonpost.com/science/2025...

submitted 69 days ago • 0 comments

Memories tearing like tissue paper, Of all the dreams, I thought might be made real, Tearing into pieces so small, They float away, Into the forever night of ME/CFS… New post on my blog: www.whitneydafoe.com/mecfs/?post=... #MECFS #LongCovid

submitted 71 days ago • 7 comments

STAND We're standing up UP for science— because FOR science is for EVERYONE! SC ENCE March 7th 12:00 - 2:00 PM Lytton Plaza, Palo Alto, CA Not officially affiliated with national AAAS rallies

submitted 71 days ago • 0 comments

What a grim but important read

submitted 75 days ago • 0 comments

‘The influential Wessely managed to spin his intellectually vapid ideas into a knighthood for himself. Indeed, he seemed to be the glue that both inspired and held together all the factions of the UK’s conspiracy to disappear the potentially costly disaster of ME.’

submitted 77 days ago • 1 comment

Great article by the great Hillary Johnson on the history of MECFS in the UK substack.com/@hillaryjohn...

submitted 77 days ago • 1 comment

Whitney & many of you rely on Medicaid. Congress is voting now to resolve to cut it by over a billion so they can reduce taxes on the rich. Call your congressperson NOW to object! Medicaid hotline: (866) 426-2631 You enter your zipcode. It connects to YOUR rep.

submitted 77 days ago • 0 comments

On this 50th anniversary of the Asilomar Conference on Recombinant DNA, here is Ron Davis presenting on how do you prevent the cloned pieces of DNA that were inserted into the host from escaping into the environment using biological containment.

submitted 79 days ago • 3 comments

Graduate student admissions paused and cut back as universities react to Trump orders on research www.statnews.com/2025/02/19/t...

submitted 81 days ago • 0 comments

youtube.com/watch?v=wxSw...

submitted 81 days ago • 0 comments

Disastrous! www.nytimes.com/2025/02/21/s...

submitted 81 days ago • 3 comments

I started eating real food again in 2024!…I have now stopped the Peptamen food formula completely, and get all my calories from real food!...And I want to tell you because I want you to hear this story!...what will 2025 bring? #MECFS New post on my blog: www.whitneydafoe.com/mecfs/?post=...

submitted 86 days ago • 39 comments

Handy for #MECFS and #LongCovid sufferers

submitted 87 days ago • 0 comments

Horsey, run!

submitted 87 days ago • 1 comment

Happy Valentine’s Day!

submitted 88 days ago • 0 comments

Will you take the #2025mecfsValentines Day Challenge and reach out to 2 people you love and tell them you love them and why? You will make their day. And if we all do this, it will have a ripple effect through the entire community. New post on my blog: www.whitneydafoe.com/mecfs/?post=...

submitted 89 days ago • 2 comments

(Repeat) Most Troubling Symptoms in ME/CFS and Long COVID Patients. The bar graph shows the frequency of symptoms reported by patients with ME/CFS (blue) & #LongCOVID (red) From: "Patient-Reported Treatment Outcomes in ME/CFS and Long COVID" www.medrxiv.org/content/10.1... #MEcfs

submitted 94 days ago • 4 comments

I’m sorry, I have to rest. I’m exhausted from taking all the things and doing all the things that are supposed to make it so I don’t have to rest. #MECFS #LongCovid

submitted 105 days ago • 2 comments

I can’t wait for this cookbook! I’ve been talking with Rachel all along the way and I know the recipes are going to be so amazing. I just pre-ordered two copies so I can give one to my daughter. It would help Rachel if you pre-ordered a copy. www.healthrising.org/blog/2025/01...

submitted 103 days ago • 2 comments

🌟 Struggling with unexplained symptoms after a recent infection or never fully recovered from COVID-19? ✅ Watch the 3rd video in our BASICS series with Clayton Powers, DPT, titled "The BASICS: Diagnosing ME/CFS", and gain insight into this often-misunderstood disease. 🔗 Watch here: bit.ly/4jb1ww8

submitted 113 days ago • 0 comments

chng.it/gSQ5RFVQhY

submitted 112 days ago • 1 comment

youtu.be/jPIYlYddkUk

submitted 118 days ago • 0 comments

From Ronald W, Davis, PhD. - HOPE FOR 2025 - I am very optimistic that soon the major mechanisms that initiate the disease will be found. This will allow a concerted effort to reverse the process and find a cure…. New post on my blog: www.whitneydafoe.com/mecfs/?post=... #MECFS #LongCovid

submitted 119 days ago • 2 comments

A very special 'red leaf'🍁on New Year's Eve from Professor Ron Davis @JanetDafoe Thank you so much Professor Davis for these words of encouragement. theredtreeandme.substack.com/p/we-shall-hav…

submitted 133 days ago • 1 comment

Merry Christmas!

submitted 139 days ago • 7 comments

Merry Christmas. May you have some peace and joy!

submitted 140 days ago • 9 comments

We’re eating Ron’s famous Christmas Eve Swiss cheese fondue and thinking of all of you. ❤️🎄

submitted 140 days ago • 1 comment

We will all likely feel alone this Christmas. But we can still celebrate the holidays with chronic illness. We can all rejoice and find joy. No matter how sick we are. New post on my blog: www.whitneydafoe.com/mecfs/?post=... #ME/CFS #LongCovid

submitted 141 days ago • 4 comments

Another one of Grampy’s talents! It must be genetic because Amalia is really good too and actually beat him!

submitted 143 days ago • 1 comment