mediumwhite.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

It’s funny how money can leave your account on a bank holiday, but can never go in. Like a reverse Hotel California.

submitted 8 days ago • 1 comment

#LondonMarathon2025 Can you help Seamus hit his target 🎯 and help LCK continue our mission to support children & young people living with Long Covid & related conditions? Tomorrow is the big day!! 🏃‍♂️ www.justgiving.com/page/seamus-... #Run #runnerspace #runningmotivation #fundraiser

submitted 17 days ago • 0 comments

@daltmann.bsky.social This is a study in Science TM showing persistence of elements from cell walls in mouse livers, and appears to suggest it could underpin chronic symptoms… Does this look as significant a discovery for post-infectious diseases as it seems? www.science.org/doi/10.1126/...

submitted 20 days ago • 0 comments

#LongCovid, #MECFS and #PAIS are medical and ethical emergencies. Though many people fail to recognise this as such. On the ethical issues, our website with the video recordings of the talks held at the #postviralethics conference is now online!! 👇 www.ru.nl/en/about-us/...

submitted 26 days ago • 6 comments

The vast taxes that Donald Trump is imposing on world trade are likely to be devastating to us all. This at a time when economies are already precarious due to Covid. I know many people who are having a hard time at the moment. I fear things could get much, much worse.

submitted 38 days ago • 0 comments

This is what I see. What happens to people who are too disabled and sick to work, or even get out of bed, but have no financial safety net? You know the answer to that, you just don’t want to acknowledge it.

submitted 55 days ago • 0 comments

It's Long Covid Awareness Day. I know ~10 people (still) suffering from life-altering Long Covid. The only 'special' thing about me? I've been public about my own illness, so I hear stories others don't. Long Covid is widespread, devastating, and deserves everyone's attention

submitted 60 days ago • 6 comments

Is this what the next 4 years are going to be? Endless u-turns and change on policy. This is absurd.

submitted 68 days ago • 0 comments

Voici un documentaire de 2021 disponible sur Arte TV visible jusqu'au 18 mars 2025 sur la maladie peu connue dont je vous parle et dont je suis atteinte : l'Encéphalomyelite Myalgique. Arte diffuse depuis cette semaine un 2eme doc sur l' #EMSFC : en prochain post. www.arte.tv/fr/videos/09...

submitted 75 days ago • 0 comments

For those who were aware of the @meassociation.bsky.social saga pre-Christmas… ME-Association trustees are AGAIN threatening to get legal towards people who question payments the ME Assn made to its trustees. I don’t think this is how a charity aiming to support people with ME should behave.

submitted 82 days ago • 0 comments

A comparison of UK Government research funding for ME/CFS compared to other diseases like MS, IBD and Parkinson's 🧐 @nihr.bsky.social and @ukri.org we need ring-fenced funding for ME as part of the Delivery Plan Thank you to @mediumwhite.bsky.social & co. for analysis #MECFS #NHS

submitted 86 days ago • 7 comments

I am incredibly grateful that valentine’s day is not really a thing in Italy, and my partner has no interest in valentine’s cards or manufactured drama surrounding this arbitrary day. Relationships are hard enough without the performative crap of valentine’s day.

submitted 88 days ago • 0 comments

The fate of freedom and democracy in Europe will now rest entirely in the hands of Europeans. So far they have not been up to the challenge of defending it. The question is whether they will be now--or whether European freedoms will go gently into that good night.

submitted 89 days ago • 86 comments

Travelling in France, so for the first time in about 15 years I am in a proper old-school gay bar. I had to ring a doorbell to get in. It feels slightly seedy. A few small groups but also single men alone at tables. A DJ and an empty dancefloor. It’s like being 18 in Brussels again, and I love it.

submitted 93 days ago • 0 comments

I look forward to this being published!

submitted 95 days ago • 0 comments

If I told you that the Bank of England upgraded its growth forecasts yesterday, would you believe me? It did.... i HAvE nOt gOne CRazY - honest This is a hill I am prepared to die on - the BoE and others (all central banks, IMF, OECD etc etc) report their "forecasts" in a terrible way 🧵

submitted 95 days ago • 11 comments

Significant replication of combinatorial genetic signatures for Long Covid risk www.medrxiv.org/content/10.1...

submitted 95 days ago • 1 comment

1. I know this will cause me trouble, but it dismays me to see fellow environmentalists dismissing Small Modular Reactors (SMRs) out of hand, in some cases clearly before they have understood the technologies involved or their potential uses. 🧵

submitted 95 days ago • 158 comments

More thoughts on the Parkinson's UK rebrand: There's a lot of information about the old @parkinsons.org.uk logo online... Some really useful thinking which is highly relevant to where ME and LongCovid are today. They created a brand with a real sense of purpose... theteam.co.uk/work/parkins...

submitted 97 days ago • 1 comment

I don't have Parkinson's, so my opinion does not matter, but having used @parkinsons.org.uk as an example of a great charity, I am somewhat disappointed by their new logo. Here is the before & after. What do you think? 🧵

submitted 97 days ago • 3 comments

A reminder that the BBC can still do accurate, informative analysis when it wants to. www.bbc.com/news/article...

submitted 97 days ago • 431 comments

This visual shows UK gov funding levels for different diseases over time - analysis by @mediumwhite.bsky.social 💸 It shows how paltry funding for ME has been, especially considering that data from the US suggests the ME disease burden is larger than for the other 3 combined 😅 #MECFS #LongCovid

submitted 101 days ago • 3 comments

It will be interesting to see what industries Canada and Mexico (and practically everyone else) target in return. Expect to see severe tariffs on products from industries in swing states with mid-term elections. on.ft.com/3PV68sS

submitted 101 days ago • 1 comment

Fraudsters are setting up fake banks on Companies House - here's how we found 16 in three minutes... using an automated tool we've just made freely available. Thread:

submitted 101 days ago • 13 comments

www.theguardian.com/commentisfre...

submitted 101 days ago • 0 comments

This is incredibly exciting news for people with sickle cell. Fantastic stuff!

submitted 102 days ago • 0 comments

This is fantastic news. ‘Groundbreaking’ potential cure for sickle cell in England approved for NHS use Clinical trials find one-time gene therapy exa-cel offers ‘functional cure’ in 96.6% of patients 👏 www.theguardian.com/society/2025...

submitted 102 days ago • 51 comments