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migrainechat.bsky.social
Education researcher turned migraine advocate #MigraineChat host Vermont maple syrup aficionado 🚫 Unsolicited advice She/Her/Dr (PhD kind) Header: Dinosaurcouch MigraineChat Resources & Discord: https://campsite.bio/migrainechat MC feed/starter pack👇🏻
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#migrainechat does anyone else get migraines that radiate from their neck and into the back of their head? I’m currently suffering big time and my abortive hasn’t done a thing. My whole back of my head is just in pain

submitted 15 hours ago • 3 comments

I'm a person who loves summer but also loves her heating pad.

submitted 15 hours ago • 1 comment

Oh, yay, celebrating my 9th anniversary of having migraine symptoms every day! 🎉🥳😞

submitted 20 hours ago • 10 comments

As always, you can feel free to take a break and catch up later. For those seeing this after #MigraineChat has wrapped, we welcome your responses, too. Feel free to scroll the hashtag or special feed and add your thoughts (remember, add the #MigraineChat hashtag to your replies)!

submitted 2 days ago • 0 comments

Spread the word about the special feed and keep using the keywords/hashtags (MigraineChat, MigraineSky) to connect with each other between chats. This feed is working better 👇🏻 bsky.app/profile/did:...

submitted 2 days ago • 1 comment

Closing Thoughts: anything else you want to add on this topic? Is there another topic you'd like to see discussed in a future #MigraineChat?

submitted 2 days ago • 3 comments

Q5. What might you need to do to prepare for an activity you need or want to participate in but know it might trigger a migraine attack or resulting fatigue? #MigraineChat

submitted 2 days ago • 8 comments

Q4. When it comes to daily activities, how do you balance the boom-bust cycle or compensate for the ways fatigue impacts your ability to function? Please share some of your best energy saving tips for various activities. #MigraineChat

submitted 2 days ago • 6 comments

Q3. What are some of the ways fatigue impacts you and your ability to function day to day? #MigraineChat

submitted 2 days ago • 6 comments

Q2. How would you describe your fatigue to others? What does it feel like physically, mentally, and/or emotionally? #MigraineChat

submitted 2 days ago • 7 comments

Q1. When do you tend to experience migraine-related fatigue? Before, during, and/or after your migraine attacks? #MigraineChat

submitted 2 days ago • 10 comments

We use a Q1/A1 format; e.g., start your reply to my Q1 post with A1 to keep things clear! Please add #MigraineChat to all replies. This will help you follow along. To do this, click on #MigraineChat, then latest to view the chat chronologically (possible lag).

submitted 2 days ago • 1 comment

I’m Beth, your host, welcoming you to our monthly #MigraineChat! I live in Vermont and have chronic #migraine (among other conditions). Things are pretty challenging for me right now but I'm glad to be here today. Please feel free to introduce yourself in any way you are comfortable.

submitted 2 days ago • 6 comments

Hello everyone! Welcome to #MigraineChat. Today we're going to chat about fatigue. If you are new to “tweet” (skeet?) chats, you can learn more at the link below. bit.ly/MigraineChat

submitted 2 days ago • 0 comments

Join me at 2p. Fittingly, I'm a little fatigued after PT, so my engagement will be low. But let's try this. #MigraineChat

submitted 2 days ago • 2 comments

Assuming I feel well enough after PT tomorrow, join me for #MigraineChat at 2pm ET (note time change). We will talk about how we manage the frustrating symptom of migraine fatigue.

submitted 3 days ago • 1 comment

I’m tentatively planning for #MigraineChat on Monday but at a special time (2p ET) bc I have an appt in the morning that would cut close to our regular time. Thinking of talking about fatigue and pacing. I need one more question. Any burning questions you’d like to discuss on the topic?

submitted 4 days ago • 1 comment

yo dc: help my crazy boss - where can he get his monstrous presentation printed right now so he has it for the morning?

submitted 6 days ago • 1 comment

The guides — which cover topics from vaccines and long COVID, to breast and pelvic exams, to advanced directives — are intended to create better communication between people with disabilities and their health care providers.

submitted 7 days ago • 1 comment

How do I tell if I have a rebound #headache or just another chronic #migraine??? I probably take too much medicine, cuz I take something for a headache or migraine almost every day. I switch between Tylenol, Naproxen, and Excedrin. And I usually take a Benadryl with it. I can't live like this!

submitted 13 days ago • 7 comments