ThreadSky
About ThreadSky
Log In
moosehat.bsky.social
4 posts
76 followers
154 following
Posts
1
Comments
4
During Rare Disease Week, patients and advocates were in D.C. for an event with the NIH, FDA, and HHS to highlight work being done on treatments and cures. It was abruptly canceled. Why? The administration fired the people organizing this important event and advancing this work.
submitted 82 days ago •
55 comments