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ninahatfield.bsky.social
she/her, Writer, Learner, Mythologist, chronically ill with #MECFS I host community peer groups www.co-resting.org #PWME #Mythology #MyalgicEncephalomyelitis #ChronicFatigue #CFS #Resting #CoResting #Pacing #PEM #MCAS #NEISvoid
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When did we decide that the only way a person can “contribute” to society is economically? Why have we allowed the billionaires and capitalism to train us to see worth in such binary terms? Many people contribute in other ways. Your worth should never be tied to your job.

These Community Discussions are such fabulous resources — highly recommend checking them out 📌

It’s really hard to take seriously any effort to normalize the parts of AI that might be useful when it’s being used as a cudgel by corrupt fascists to destroy art, science, healthcare, the indigent, and the macroeconomy. How can we accept the “good” parts of a system when we see what it’s used for?

This is my 9th year advocating for #MyalgicEncephalomyelitis #MillionsMissing #MEAwarenessMonth. My health has only worsened since then (9 years ago I was able to work FT! Now I can't even work PT and am mainly housebound), but I'm hopeful because: (1/6)

pure joy

A Quiet Storm: An online art gallery showcasing the artwork of people living with severe ME/CFS www.aquietstorm.me #SevereME #MEcfs @nikosuvisto.bsky.social

Song of the Day: Little Simz - Free (2025) #musicsky

Seattle! I'll be at the Seattle Art Book Fair at the Temporary Services / Half Letter Press table this weekend, May 10-11 at Washington Hall. Get all the latest from TS/HLP and Public Collectors and come say hello. Free! More details here: www.seattleartbookfair.org

“I asked ChatGPT” well I asked the three Fates and the one with the scissors got very agitated when I told her you were using your one precious life thread talking to that cursed thing

The possibility that RFK Jr. is going to undermine herd immunity in the United States grows increasingly likely. This would mean that US will be responsible for starting numerous pandemics and potentially destroying the effectiveness of the entire globe’s vaccine arsenal. This is bioterrorism.

Its the ease with which universities have suddenly the money to pay for AI subscriptions, AI professorships, AI workshops, AI everything while they reassure us that "there is no money" to pay grad students and precarious faculty living wages.

If you had a get-out-of-PEM-free card for a day - no symptoms all day and no symptom exacerbation consequences to follow - what would you do with it? #LongCOVID #MECFS

I’m on this National Academies call and every single question I ask about migrant workers is getting flagged and deleted and I’m getting so fucking mad.

Highly recommend! Arts Based Research is a lovely, gathered centering group model and these are two skilled and deep hearted facilitators:

I’m going to share with you what my therapist said to me yesterday, because if I have to sit with the sucker punch of it, I’m taking you with me: “Your whole life you were taught that anything less than brutal self-obliteration was laziness.”

Gathered Meeting is a space to sit still and in silence together, to draw on our shared strengths and resources, grieve and celebrate together when necessary, and stay grounded in the work in front of us. You are welcome to come sit with us as we build out a network of resting spaces

🌟 The ME/CFS Crash Survival Guide has helped thousands navigate PEM crashes with prep tips, pacing tools & more. 🔋 Download: loom.ly/wwxe9SU 💙 Support more resources: loom.ly/KiU4n_4 @openmedf.bsky.social #MERC #MECFS #PEM

Latest podcast is out: Get in everyone, we are going to Resistance Summer School! Thank you to everyone who indicated they would like to take my course on Race, Media and International Affairs 101. Please fill out this quick interest form to begin to sign up! docs.google.com/forms/d/e/1F...

If the U.S. government is going to take the position that, once removed from the United States, folks can’t be brought back, then it sure seems to me that federal courts should be reflexively and categorically barring *all* removals until they’re 100 percent certain that the removals are lawful.

This is why I think people in academia who use gAI to "write" are not people I would take seriously, in general. Why should I bother to read anything you produce, if you can't be bothered to value this process?

room for one more!

"a chat about ill and healthy people talking together" by @vladvexler.bsky.social youtu.be/pgNnmM5hcrE?...

When you’re chronically ill, few things are more stressful than committing to something in advance that you can’t cancel. Our systems in flux. We have frequent crashes, emergencies & setbacks. One of the greatest things you can do for us is be flexible. Let us cancel, say “No” or change plans.

I have three appointments over the next two weeks where I’ll have to take my mask off & I HATE that I can’t trust medical professionals to not completely fuck me over with a preventable infection. Hate that I even have to think about it & either spend precious energy fighting them or roll the dice

April (The Anemones), Maurice Denis, 1891.

A new co-resting offering hosted in the UK! Michelle is lovely and her offering opens up new accessibility to other time zones. #Resting #Pacing #Rest #ME/CFS #MECFS #LongCovid #NEIS #NEISvoid #ChronicIllness

NEW: ALA is going to court to stop the President’s attempts to illegally dismantle the Institute of Museum & Library Services. The President does not have the authority to destroy a federal agency. That's why we're taking action with our co-plaintiff @afscme.bsky.social. #ForOurLibraries (1/3)