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ocrejulia.bsky.social
Teenagers, dog, chickens MS and Coeliacs
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So, I think it's time I begin, in detailed specifics, talking about the mess that is Unbound / Boundless as a book publisher, in essence stealing most of a years royalties from me and many other authors, as a result of poor financial decisions, and legal BS. Please read and share this thread.

Good new for Vets / Veterans!

Has anybody else spotted David in a bit part in Andor? #TheArchers

#MS_Selfie Vidofludimus - a Slam Dunk, or not? Many will say there is no place for teriflunomide me-too in the MS therapeutic landscape. Do you agree? Would you participate in the iVido study? => buff.ly/yABfmU6

Friends living with #MS. Does anybody else find that if they start shivering at all, it becomes a rib-shattering endeavor that lasts several minutes? Its like a Charley-horse from my shoulders to my hips, and its just indesctibable. Anybody experience similar? Anything help? Struggling here.

#MSers in or able to travel to London this trial might be for you bepartofresearch.nihr.ac.uk/trial-detail... #MS

Amazing what turns up when you start clearing out the garage 🤣🤣🤣

A very merry Beltane to you all

Back out in my happy place, paddle boarding by Brownsea Island This is what you can do when MS is playing nicely - grabbing every opportunity, use it or lose it! #MSAwarenessWeek

ALL WELCOME - THE CHALLENGE STARTS TOMORROW!! youtube.com/shorts/4VKEw...

Fellow MSers! Does anyone have any experience with a Dictus band, or similar, to help with foot drop? Any advice and reviews greatly appreciated, thank you 🧡

Over 150,000 of us in the UK live with MS but most people don't know anything about the disease or what life with MS is like. It's MS Awareness week, time to find out more & talk about MS.

@feargalsharkey.bsky.social

anyone want a gift sub? enquire below

Q&A 85: RIS or RRMS? What about PPMS? Please tell her that both tolebrutinib and fenebrutinib, two new-generation BTK inhibitors, are in trials to treat primary progressive MS. buff.ly/NsuRLbx

Beautiful

The BBC are coming! RC4MS share share share youtube.com/shorts/ihI8y...

#MS_Selfie News: good and bad The tolebrutinib results have now been published. High-dose ocrelizumab in relapsing MS is a no. =>

Hey, these guys need money to continue their fight for patient safety. Link below.

Do it motherfucker. Do it now

ICYMI: King’s College London is hiring 20 open-ended posts at L/SL level (Asst/Assoc Prof level) in AI + any subject. (Yes, that includes critical studies.) It’s 3 years of 80% “protected” research time, then 2 years to the standard requirements for an open-ended post. www.kcl.ac.uk/jobs/role/ki...

I know coverage of disability benefits can be very distressing. So, I’ve worked with colleagues to make a range of support visible on The Guardian’s site. If you click on a relevant news story, you’ll see a “drop box” of signposted mental health help as well as benefits advice.

Can someone with knowledge of the water industry please help. This reservoir is owned by the council and liable for the costs for flood mitigation in case of a breach, but Anglian Water uses it to supply the area and doesn't have any responsibility to pay. www.northamptonchron.co.uk/news/environ...

Also, what about #Disabled people who are in work who rely on #PIP or #DLA ? I pay tax and NI contributions FFS!

The anti-Trump vote in Britain is being wildly underestimated

#MS #multiplesclerosis

www.theguardian.com/society/2025... #MultipleSclerosis

Pro G needs us to share our stories on conflicting advice (healthcare providers vs AI) #MS #MultipleSclerosis #MSDinosaurs

Yesterday we hosted the very bravest and hardiest of local teens... Through one of the wettest, muddiest days yet this year, they managed to plant over 100 native trees, build a wattle fence, landscape our new Saxon garden, and start work on a woven Mesolithic shelter!