openmedf.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

🧬A biobank is a large collection of samples (e.g., blood, urine) that have been gathered over time—often through clinic visits or research studies—and are securely stored for future research. Learn more about biobanks and OMF's BioQuest study: www.omf.ngo/biobank/

submitted 14 hours ago • 0 comments

OMF’s Collaborative Center at Montreal recently launched a new study called Myalgic Encephalomyelitis Adaptive Therapeutic Solution Platform (MEDUSA). 🔗Learn more about MEDUSA: ow.ly/r4PA50VZpQQ

submitted 1 day ago • 1 comment

🇺🇸 This Memorial Day, we pause to honor and remember those who gave everything in service to this country. Let us never forget their legacy and strive to make the world a better place in their memory. Thank you for your service, bravery, dedication, and sacrifice. 🇺🇸

submitted 2 days ago • 0 comments

Lauren’s Story: From an Active Life to Isolation 💬 “Since becoming ill, my world has grown so much smaller. During crashes, I can spend weeks, even months, in the dark, too unwell to speak or move much at all." ~Lauren 📖 Read Lauren’s story: www.omf.ngo/lauren-mecfs...

submitted 5 days ago • 1 comment

💸 Every dollar counts in our mission to end #MECFS and #LongCOVID. Donate to OMF's #MayMomentum campaign & help fund groundbreaking research. 👉 ow.ly/fRNX50RPmJO Explore our research 🔎 ow.ly/XXEX50RPmJN

submitted 6 days ago • 0 comments

🧬Science Wednesdays: Cerebral Blood Flow Cerebral blood flow is a measure of how much blood reaches the brain in a specific period of time. For example, a typical value for cerebral blood flow is approximately 50 milliliters of blood per 100 grams of brain tissue per minute (mL/100g/min).

submitted 7 days ago • 1 comment

🌟 Refining a Diagnostic Model and Designing a New PEM Project 🌟 Dr. Chris Armstrong, the Director of the Melbourne ME/CFS Collaboration, recently interviewed his post-doc, Kathy Huang, PhD, about their work in ME/CFS. Learn more 👉 ow.ly/a91F50VVKWX.

submitted 8 days ago • 0 comments

🌐 OMF StudyME is a free, global recruitment tool to connect individuals interested in participating in research studies with the researchers conducting them. Accelerate research for #MECFS and #LongCOVID through research participation. Join StudyME 👉 www.omf.ngo/studyme/.

submitted 9 days ago • 0 comments

💙 Today (May 18) is Blue Sunday 2025! 💙 Join us for the Blue Sunday Tea Party For M.E. 2025, a day of connecting, sharing, and spreading awareness for those living with ME/CFS. OMF donation link: ow.ly/vefT50VUCer #BlueSunday2025 #TeapartyforME2025 #mecfs #pwME

submitted 10 days ago • 0 comments

On International ME/CFS Awareness Day, Jonas Bergquist, MD, PhD—CMO & Director of the ME/CFS Collaborative Research Center at Uppsala—appeared on national Swedish TV to raise awareness and highlight ongoing research. Thank you, Dr. Bergquist! #MECFSAwareness #MECFS #pwME

submitted 12 days ago • 0 comments

💙 Blue Sunday 2025 is almost here! 💙 Join us on Sunday, May 18th, for a Tea Party For M.E.—a beautiful tradition started by Anna Redshaw in 2013 to raise funds and awareness for ME/CFS. For more information, visit: ow.ly/6wAr50VThUw #TeaPartyForME #BlueSunday2025 #pwME

submitted 13 days ago • 0 comments

🧬Science Wednesdays Clinical trials are critical for identifying and implementing effective treatments for diseases like #MECFS and #LongCOVID. Learn about different types of clinical trial design and explore the LIFT protocol paper👉 www.omf.ngo/types-of-cli....

submitted 14 days ago • 0 comments

People with ME or Long Covid, please spread the word about this awesome double-match fundraiser offer for @meactnet.bsky.social & @openmedf.bsky.social ! #pwME #MECFS #LongCovid #MEAwareness #MillionsMissing #DisabilitySOS

submitted 14 days ago • 0 comments

ER visits can be tough with #MECFS and #LongCOVID. This popular MERC's guide helps providers manage OI, MCAS, sensory concerns & more. 💙 Download & share this resource: ow.ly/NPLa50VS14e @batemanhornecenter.bsky.social #MERC #MedEdMatters #pwME #pwLC #UrgentCare

submitted 15 days ago • 1 comment

What a stunning (and heart-breaking and galvanizing) gallery of #pwME #MECFSis by @openmedf.bsky.social and @lowenergylounge.bsky.social . Thank you for the worldwide invitation, and my love to everyone who shared their words and images, and to every person with #MyalgicEncephalomyelitis 💙

submitted 16 days ago • 1 comment

How do you fight for visibility when you’re too sick to leave your bed? This May, individuals around the world used their limited energy to share powerful messages, completing the sentence “ME/CFS is…” Explore community voices on our website: www.omf.ngo/community-vo...

submitted 16 days ago • 1 comment

Today, on International ME/CFS Awareness Day (May 12), we stand together to honor every person living with #MECFS —a disabling, life-altering disease that still lacks a diagnostic test, effective treatments, and a cure. Help us fund urgent research: www.omf.ngo?form=donatenow 💙

submitted 16 days ago • 0 comments

From the OMF-supported Medical Education Resource Center (MERC) at @batemanhornecenter.bsky.social : The Clinical Care Guide is Here: Managing ME/CFS, Long COVID & Infection-Associated Chronic Conditions (IACCs). Download it. Share it. Use it. 👉 loom.ly/VeoxR7Y #MECFS #LongCOVID

submitted 19 days ago • 2 comments

📣 Join us during #MayMomentum! Create a fundraiser for OMF to support research into #MECFS & #LongCOVID 👉 ow.ly/x7oe50VLX10. In honor of May #MECFSAwareness month, let's come together to accelerate research and bring hope to millions. #pwme

submitted 19 days ago • 0 comments

New abstract from David Systrom, MD, Wenzhong Xiao, PhD, and colleagues: “Exercise Pathophysiology in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Long COVID: Commonalities Detected by Invasive Cardiopulmonary Exercise Testing.” Read now 👉 ow.ly/IYS050VOJ9X

submitted 21 days ago • 0 comments

🧬Science Wednesdays: Anaerobic Threshold An anaerobic threshold is the point at which metabolism switches from aerobic (using oxygen) to anaerobic (without oxygen) during physical exertion. In other words, it’s when the body can no longer keep up with the energy demands of the muscles. (1/4)

submitted 21 days ago • 1 comment

ME/CFS is a strange thing. If you try to fight it, the chains get tighter. With every step, your reach shrinks. The more you move, the smaller your world becomes. Posted for @openmedf.bsky.social's #MECFSis campaign. #MECFS #MEAwarenessMonth #WorldMEDay

submitted 22 days ago • 0 comments

Thank you so much, @pricklywave.bsky.social, for your powerful submission! 🫂

submitted 22 days ago • 0 comments

"I’ve always painted and created things. I was social, enjoyed sharing meals with friends, and worked in a school library for 19 years." Bridie’s world is now confined to the walls of her home. 👉 Read Bridie’s story and support #MECFS research: ow.ly/kcj350VNQm9

submitted 22 days ago • 0 comments

Powerful submission from Nadine: “ME/CFS is if your body turns into your biggest enemy.” Every story deserves to be seen. Every voice deserves to be heard. #MECFSis #pwME #MECFSAwareness

submitted 23 days ago • 0 comments

Heart Preload Failure www.omf.ngo/heart-preloa... via @openmedf.bsky.social #ME/CFS

submitted 24 days ago • 1 comment

From @meactnet.bsky.social 👇

submitted 25 days ago • 1 comment

Powerful submission from Niko! ❤️

submitted 26 days ago • 0 comments

#MECFSis submission from Angela: "ME/CFS is the world missing out on millions of brilliant & beautiful people." #mecfsis #mecfs #millionsmissing #pwme @lowenergylounge.bsky.social

submitted 26 days ago • 2 comments

Samantha’s words speak to the devastating reality of #MECFS —a disease that isolates and steals. “ME/CFS is watching life happen to other people while you slowly fade away.” Support ME/CFS research: www.omf.ngo?form=donatenow

submitted 26 days ago • 0 comments

1st May kicks off ME awareness month aswell as being May Day 🌸

submitted 27 days ago • 1 comment

💙 May is ME/CFS Awareness Month! Support OMF's #MayMomentum campaign to drive urgent research for #MECFS and #LongCOVID👉 www.omf.ngo/maymomentum! This May, let’s stand together and keep the momentum strong—because progress depends on all of us. #PwME #MECFSawareness

submitted 27 days ago • 0 comments