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postx.bsky.social
Co-Founder Unitetofight2024, Pharmacist, Long Hauler since 2020
100 posts 592 followers 369 following
Prolific Poster
Posts 43 Comments 7

Mitochondrial dysfunction in LC from maladaptive host responses rather than direct viral toxicity: bioenergetic failure, impaired stress adaptation & mitochondrial genomic instability. Persistent mito. dysfunction in monocytes critical driver of cardiovascular PASC. www.mdpi.com/1422-0067/26...

submitted 7 days ago • 0 comments

Long COVID is associated with substantial work productivity loss. Given the large number of individuals affected by COVID, this has significant implications for healthcare systems, the workforce, and economies. journals.lww.com/joem/abstrac...

submitted 10 days ago • 0 comments

50 studies totaling 14,661,595 people were included. In all populations combined, there was an increased risk of a wide range of 39 out of 40 symptoms in those infected with SARS‑CoV‑2 compared to uninfected controls. www.nature.com/articles/s41...

submitted 10 days ago • 1 comment

First time in current literature, NLT data from a relatively younger healthy population none meeting diagnostic criteria for symptomatic OH or PoTS (NLT) This normative data will help interpret NLT findings in younger patients with OI better www.medrxiv.org/content/10.1...

submitted 11 days ago • 1 comment

Acute COVID-19 and LongCOVID syndrome – molecular implications for therapeutic strategies - review www.frontiersin.orghttps//www.frontie...

submitted 14 days ago • 0 comments

#LongCovid, #MECFS and #PAIS are medical and ethical emergencies. Though many people fail to recognise this as such. On the ethical issues, our website with the video recordings of the talks held at the #postviralethics conference is now online!! 👇 www.ru.nl/en/about-us/...

submitted 30 days ago • 6 comments

Itaconate modulates immune responses via inhibition of peroxiredoxin 5 www.nature.com/articles/s42...

submitted 28 days ago • 2 comments

Long Covid: Hamburger Forscher gelingt Durchbruch. Konkret geht es um eine Verbindung zwischen Stammhirn, Kleinhirn & Hirnmark: relevant für Erholung, Schlaf-Wach-Rhythmus, Herzschlag, etc. Diese Verbindung ist bei den Betroffenen gewissermaßen gebrochen. www.abendblatt.de/hamburg/eims...

submitted 36 days ago • 5 comments

Metabolic connectivity is modified in patients with PCC within the hypometabolic post-COVID-19 network, with lasting reorganization evolving over time, suggesting functional adaptation. ejnmmires.springeropen.com/articles/10....

submitted 40 days ago • 0 comments

Im Supplement unseres Papers "Modellierung der COVID-Infektionszahlen in Deutschland (2020–2024)" haben wir unsere Modellzahlen mit verschiedenen, öffentlich zugänglichen Quellen verglichen. Ein Thread dazu:

submitted 43 days ago • 1 comment

USA trial with 100 participants found that a 15-day course of nirmatrelvir–ritonavir (Paxlovid) did not significantly improve physical health in people with long COVID compared to placebo. Antiviral therapy alone may not be enough. www.thelancet.com/journals/lan...

submitted 44 days ago • 0 comments

A novel mechanism behind episodic neuropathic pain—the interaction between dynamic blood vessel movements and Piezo2 mechanoreceptors in sensory neurons #piezo2 #neuropathicpain #nociceptors buff.ly/e5os312 @tbertalab.bsky.social

submitted 49 days ago • 0 comments

How long will people with Long COVID (& ME/CFS!!) have to wait until this public health emergency is taken seriously? youtu.be/DTC9YcxHzSM?... #LongCovidAwareness2025 #5YearsLongCOVID #HalfADecadeOfNeglect

submitted 49 days ago • 1 comment

These findings suggest targeting Piezo2, angiogenesis, or abnormal vascular dynamics as potential therapeutic strategies for neuropathic spontaneous pain. www.cell.com/neuron/abstr...

submitted 49 days ago • 0 comments

A study published in BMC Medicine finds that use of antidepressants, particularly selective serotonin reuptake inhibitors (citalopram, sertraline and escitalopram) and mirtazapine, is associated with faster cognitive decline in patients with dementia. #MedSky #alzsky #PsychSciSky

submitted 52 days ago • 0 comments

HHS's Office of Long COVID Research and Practice has been DOGEd. Closing this week.

submitted 54 days ago • 386 comments

📢Register now: 2nd Long COVID Symposium! Join leading experts to discuss the latest in Long COVID research. Open to DZG scientists and all researchers in the field. 📅 May 9, 2025 | 📍 Frankfurt am Main 🔗 Sign up here: tinyurl.com/mpdmemek

submitted 68 days ago • 0 comments

der spiegel hat mir paar fragen gestellt und ich hab geantwortet. thema 5 jahre nach pandemiebeginn etc www.spiegel.de/wissenschaft...

submitted 56 days ago • 15 comments

Anästhesie bei Patient:innen mit postviralen Erkrankungen link.springer.com/article/10.1...

submitted 57 days ago • 1 comment

5 Jahre Corona-Pandemie: Ein ausführliches Gespräch mit Špela Šalamon über Long Covid und Folgeschäden, die Ignoranz von Politik und Gesellschaft, wirtschaftliche Folgen und nötige Lösungen. Plus: Eine Prognose. @salamonsmd.bsky.social @whnde.bsky.social dasmediumonline.com/2025/03/20/5...

submitted 58 days ago • 3 comments

Patients’ social media mobilisation helps unmask Medical Gaslighting tactics, raising providers’ awareness of the need for perspective-taking to build collaborative doctor-patient relationships. www.sciencedirect.com/science/arti...

submitted 58 days ago • 0 comments

Aus den Gesprächen der letzten Wochen kommt mir vor, dass es mehrere große Missverständnisse gibt, die einer sinnvollen Etablierung von Behandlungsstellen für PAIS und ME/CFS entgegenstehen könnten: 1/n

submitted 59 days ago • 3 comments

Researchers in Turkey analyzed brain scans from 88 adults, finding that severe COVID-19 cases were linked to signs of small vessel disease, a condition tied to strokes and dementia. However, mild cases showed no such changes. www.sciencedirect.com/science/arti...

submitted 60 days ago • 0 comments

UK study of 69 adults with Long Covid found that expectations, mood, and anxiety had little effect on physical activity or fatigue. Findings suggest fatigue in Long Covid may stem more from biological factors than conscious thoughts. www.sciencedirect.com/science/arti...

submitted 60 days ago • 7 comments

In the day-to-day experience of Long Covid expectation and affect have little detectable effect on subsequent physical activity or fatigue. www.sciencedirect.com/science/arti...

submitted 61 days ago • 1 comment

ℹ Die DG ME/CFS hat ein neues Informationsblatt zum Thema „Begleitende Psychotherapie bei ME/CFS“ veröffentlicht. Das Informationsblatt beschreibt die spezifischen Bedürfnisse von #MECFS - Betroffenen im Zusammenhang mit begleitender Psychotherapie. (1/3)

submitted 61 days ago • 2 comments

Denying the Seriousness of Long COVID Is Dangerous for Me – and You zeteo.com/p/denying-th...

submitted 62 days ago • 0 comments

Ein großes Problem ist, dass Facharzt-Befunde von ME/CFS-Erkrankten oft in psychische Diagnosen umgewandelt werden. „Unsere gesammelten Problemfälle zeigen, dass ME/CFS bei der Begutachtung oft in eine psychische oder psychosomatische Erkrankung umgewandelt wird“…

submitted 62 days ago • 0 comments

Live blog: International demonstrations ignite for Long COVID Awareness Day #5YearsLongCovid #HalfADecadeOfNeglect #LongCovidAwarenessDay2025 #SaltingtheVibes thesicktimes.org/2025/03/15/i...

submitted 63 days ago • 1 comment

Ein besonderer Jahrestag- 5 Jahre Long Covid. Aber auch ein besonderer Moment, innezuhalten und dankbar zu sein, für all die Unterstützung, die wir Betroffene bereits von sehr engagierten Menschen bekommen, die gemeinsam mit uns tagtäglich für mehr Lebensqualität kämpfen. #5yearsofLongCovid #MECFS

submitted 63 days ago • 1 comment

Ready when you are 💪🏼 @postx.bsky.social @molbaas.bsky.social @berlin-buyers-club.bsky.social #5YearsLongCOVID #HalfADecadeOfNeglect #LongCovidAwarenessDay2025

submitted 64 days ago • 0 comments

People with ME/CFS and people with PCC are often precluded from accessing necessary disability and social support services. These unmet care needs exacerbate the existing illness burdens translational-medicine.biomedcentral.com/articles/10....

submitted 66 days ago • 2 comments

Fabian war kurz davor, Professor zu werden, als er Long Covid entwickelte. Mit ME/CFS kämpft er täglich gegen Erschöpfung. Eine Heilung gibt es noch nicht. @ffhambu.bsky.social www.zdf.de/nachrichten/...

submitted 67 days ago • 0 comments

A systematic review of 73,435 COVID-19 survivors found that 42% had persistent neuroinflammation, 22% had cerebrovascular injury, and 58% had cognitive impairment. Highlights the urgent need for early detection and targeted therapies. www.researchsquare.com/article/rs-6...

submitted 68 days ago • 2 comments

Small Fiber Neuropathie/Pathologie spielt bei #LongCovid eine Rolle, und wie diese Arbeit zeigt, gibt es Hinweise auf Autoimmunität und ein Ansprechen auf IvIg. IvIg helfen sicher nicht bei allen Betroffenen - Prädiktoren für einen Effekt zu finden, ist wichtig. www.medrxiv.org/content/10.1...

submitted 68 days ago • 4 comments

📣 Who’s joining in on the #5YearsOfLongCovid campaign for #LongCovidAwarenessDay2025? There are Berlin Buyers Club signs in English, Croatian, Spanish, Finnish, Dutch, Czech, Greek, French, Italian, Portuguese, German that you can use! Campaign info: www.berlinbuyersclub.com/5-years-long...

submitted 69 days ago • 2 comments

Here's my piece for @thesicktimes.bsky.social about Cochrane's broken promises to ME/CFS patients over its crappy 2019 exercise therapy review. thesicktimes.org/2025/02/04/r...

submitted 102 days ago • 5 comments

Download your Long COVID Awarness Day signs care of @berlin-buyers-club.bsky.social here: drive.google.com/drive/mobile...

submitted 78 days ago • 4 comments

Über die Multisystemerkrankung #MECFS ist immer noch zu wenig bekannt, viele Ärztinnen und Ärzte missverstehen sie. Unsere Doku zeigt, wie Betroffene um mehr Forschung und für mehr Aufklärung kämpfen:

submitted 81 days ago • 8 comments

This is an important oversight, as low knowledge and/or "meta-ignorance" (Dunning Kruger Effect; DKE) concerning Long COVID might undermine public willingness to take action to protect themselves and others from endemic COVID-19. www.sciencedirect.com/science/arti...

submitted 80 days ago • 0 comments

Comparative study MS vs ME: reinforcing the hypothesis of intrinsic cognitive dysfunction in ME/CFS www.mdpi.com/2075-4418/15...

submitted 80 days ago • 1 comment

Als „bettlägeriger Aufklärer“ kämpfte er gegen ME/CFS-Erkrankung: Jetzt ist Faraz Fallahi verstorben Obwohl die Krankheit ihm fast jede Kraft raubte, setzte er sich für Anerkennung für seine Krankheit ein und machte anderen Betroffenen Mut. Von Ärzten und dem Gesundheitssystem fühlte er sich …

submitted 80 days ago • 29 comments

Als „bettlägeriger Aufklärer“ kämpfte er gegen ME/CFS-Erkrankung: Jetzt ist Faraz Fallahi verstorben www.suedkurier.de/baden-wuertt...

submitted 81 days ago • 2 comments