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richellesepulveda.bsky.social
Long Covid, MECFS, ADHD, etc. Patient-led research is my jam. A bit obsessed with GIP.
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Posts 10 Comments 40

fellow EDSers: my collagen got dramatically better when i eliminated an enormous trigger for my immune system/MCAS (gluten, in my case). i post about this a lot in support groups but just thought i’d boost this reply chain

submitted 4 hours ago • 1 comment

This is a really interesting quiz to test your ability to spot misinformation headlines (I scored 19/20: 100% on identifying the misinformation ones, marked one real one as fake.) yourmist.streamlit.app

submitted 4 hours ago • 23 comments

typical corrupt science

submitted 10 hours ago • 84 comments

I used to buy fresh raspberries and then put off eating them because "just eating them wasn't special enough" (what???) but then they would go moldy and I couldn't enjoy them at all!! So now I eat the raspberries! Light the fancy expensive candle! Stick the stickers you're hoarding! USE THE STUFF

submitted 16 hours ago • 16 comments

Thanks to all who sent out an S.O.S. on #MEAwarenessDay! Check the great pictures and stories in the post below and don’t forget the continuing actions listed that need your support. Also listed is ME Action GA’s Blue Sunday event featuring the TEDx talk by @maggieboxey.bsky.social. Join us on Zoom!

submitted 16 hours ago • 0 comments

With alt-text (and the follow up image by the same poster/artist), because it's just too good a meet-cute not to share.

submitted 1 day ago • 0 comments

THIS PART HERE CAN I QUOTE YOU

submitted 17 hours ago • 1 comment

If we did actually have this much control and understanding of our health, we would also have unlocked the key to aging and immortality. (Sure, this would be billionaires first, but 50 year old billionaires still look 50. Long way from passing as a 25 year old!)

submitted 18 hours ago • 0 comments

Real bombshell of an update from Michael Peluso in this symposium: UCSF's highly-anticipated monoclonal antibody trial did not find the treatment helped alleviate Long COVID symptoms. He speculated that viral persistence may be a less promising avenue for LC than many have long hypothesized.

submitted 1 day ago • 3 comments

Interesting #MEspine note in this: “We postulate that instability and obstructions at the craniocervical junction may contribute to impaired movement and production of CSF, in turn altering MMP or cytokine levels in either cluster.”

submitted 20 hours ago • 1 comment