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susannad.bsky.social
Miljöinriktad agronom med samhällsintresse, gård, gitarr o pensel. Efter ME-skov 2015 lever jag så halvdant det går med 20%-igt energikonto, hjärndimma, POTS mm. En av de #MillionsMissing Mer biomedicinsk ME-forskning och vård!
5 posts 84 followers 153 following
Regular Contributor
Posts 18 Comments 5

The reason why protest is essential to political change is that only when people *see* the scale of discontent do they realise they are not alone, and that the tide can turn.

submitted 30 days ago • 40 comments

Russia Asks to Buy Boeing Jets With Frozen Assets in US Talks. It would be absolutely outrageous if the US agrees to this instead of handing over the Russian assets for compensation to Ukraine. I seriously hope this isn’t even being considered. www.bloomberg.com/news/article...

submitted 34 days ago • 30 comments

Please join me and @billbrowder.bsky.social and Jason Pack at the Frontline Club in London on March 21 for a panel on Ukraine-Russia now that Trump is cosying up to Putin - we'll be talking about sanctions and the future of Russia's $300 billion in frozen assets www.eventbrite.co.uk/e/panel-disc...

submitted 70 days ago • 2 comments

ME/CFS is a severely disabling neurological disease. It has been largely ignored by the medical community, despite the large scale of the problem. Pre-covid estimates suggest 50–60 million people affected worldwide—more than the entire population of Canada. #MEAwarenessHour

submitted 97 days ago • 1 comment

submitted 102 days ago • 0 comments

The criticism against the studies on CBT and exercise for patients with #MECFS has often been dismissed as an expression of anti-psychiatric sentiment. Did you know that many psychologists openly have rejected these trials and the psychologization of #pwME? #MEAwarenessHour

submitted 132 days ago • 1 comment

Cochrane about the 2019 exercise review for #MECFS: ”We acknowledge that the publication of this amended review will not resolve all the ongoing questions about this globally important health topic.” Please sign this petition to retract the review! www.change.org/p/cochrane-w...

submitted 153 days ago • 0 comments

Det är visst advent och grejer. 🕯️Men jag vill be dej om hjälp ändå. Särskilt om du eller någon i din närhet värvats till forskning om fatigue vid blandade diagnoser. (Tråd)

submitted 170 days ago • 1 comment

Professor Brian Hughes slams a flawed review on #longcovid therapies: “First thing to say is that with systematic reviews […] there is always one fundamental rule: namely, Garbage In = Garbage Out.” Always a pleasure to read his analyses! thesciencebit.net/2024/11/28/t...

submitted 171 days ago • 0 comments

Läs @abjeppsson.bsky.social Att peka på hot är inte skrämmande. Det är att vara rationell. Att installera ett brandlarm är inte att skrämmas. Det skrämmande är beslutsfattare som lovar fixa 1,5-gradersmålet men sen bryter mot löftet utan att hållas ansvariga www.aftonbladet.se/nyheter/kolu...

submitted 176 days ago • 0 comments

Video om den stora medicinska skandal i form av negligering av diagnosen, korrupt psykiatrisk forskning, vårdskador, okunskap, spridande av fördomar som ME-sjuka ännu tyvärr tvingas kämpa emot. Journalister, vårdpersonal politiker .. Väl bekomme! #svMEcfs #svmed #sfam #svpol

submitted 176 days ago • 0 comments

New Video: @georgemonbiot.bsky.social describes the treatment of #MECFS as "The Greatest Medical Scandal of the 21st century". The video explores the impact of ineffective & harmful treatments & how they were defended by the scientific & media establishment. youtu.be/RiwX9Y0NbiQ?...

submitted 180 days ago • 48 comments

Love this ❤️

submitted 178 days ago • 0 comments

Här kommer fortsättningen på den problematiska artikeln i Svensk Förening för AllmänMedicins (SFAM) tidskrift Allmänmedicin. Jag har varit i kontakt med en person som skrivit en replik men nekats publicering i flera instanser. mitteremitage.wordpress.com/2024/11/07/t...

submitted 194 days ago • 2 comments

They say climate *protesters* are disruptive. Valencia today.

submitted 202 days ago • 28 comments

A thread of rest assured. Historical and contemporary quotes on the importance of rest for people with ME. #MECFS #pwME #StopRestPace #MedEd #svmed #HistMed #HistoryOfMedicine #PostExertionalMalaise

submitted 594 days ago • 6 comments

Ping @ingrideckerman.bsky.social! Tidsskriften Allmänmedicin har publicerat pseudovetenskaplig desinformation.

submitted 205 days ago • 2 comments

1. Abuse and harassment are never acceptable. But this is not the first time I’ve seen an emphasis on abuse and harassment shielding bad science. This is a short thread on how it works. www.theguardian.com/commentisfre...

submitted 211 days ago • 7 comments