I have been saying for YEARS that anytime I exercised or even did household chores I'd feel like I had the flu shortly after, and would sometimes be bedridden for a day or more. ..But my family and most able bodied folks would just tell me I was lazy, out of shape, and needed to do more Yoga 🙄 - ThreadSky

riverofstars.bsky.social • 3 days ago

I have been saying for YEARS that anytime I exercised or even did household chores I'd feel like I had the flu shortly after, and would sometimes be bedridden for a day or more.

..But my family and most able bodied folks would just tell me I was lazy, out of shape, and needed to do more Yoga 🙄

Reposted from María Richardson

Have you watched this excellent intro to #MyalgicEncephalomyelitis #MECFS #PEM by @scishow.bsky.social ?
It's only 8 minutes long & jam-packed with important info (including helping folks with #LongCovid that matches mild #ME identify #PEM & prevent harm 🙏🏻)

www.youtube.com/watch?v=wxSw...

Comments

ananuann.bsky.social•3 days ago

This sounds terrifying considering no one is taking covid seriously, and the department of health and cdc are being dismantled

riverofstars.bsky.social•2 days ago

We're seeing more cases of it now due to Covid, but folks with #MECFS #ChronicFatigueSyndrome have been dealing with this for YEARS.

riverofstars.bsky.social•2 days ago

Mine was very likely caused by the Eppstein-Barr Virus aka Mono. Which absolutely fucked my shit up when I had it *I legit thought I was dying*. I was already a pretty sickly kid growing up so I was likely more susceptible to having damage done to my system by viruses.

wolfofthenyght.bsky.social•3 days ago

YEEEEEP. God. It's so frustrating.

robinbobcat.bsky.social•3 days ago

Ever since I got the plague, I've had like, *zero* energy, despite trying to be more active to recover. Ugh.

wolfofthenyght.bsky.social•2 days ago

Yep. Honestly it took me a few years, but for sure it seemed like some years are better than others too regarding recovery

dilettante-oji.bsky.social•3 days ago

ms-motorcyclemama.bsky.social•2 days ago

Exactly this!

I always thought it was odd that I was the only one who had to rest after doing simple things like taking a shower.

My days are now structured around if I am having a good brain day, a good body (physical) day, or if I need a rest day.

#ThisIsChronicFatigue 💙
#ThisIsMS 🧡

snuggles-uwu.bsky.social•2 days ago

As someone who has chronic fatigue syndrome due to Multiple Sclerosis and Fibromyalgia, this is so so so exhausting.

Right now I’m actually laying in bed because my body feels like it ran a marathon from cleaning a little bit yesterday

alwaysdreamn.bsky.social•2 days ago

sameee

nerxualoh.bsky.social•3 days ago

I never knew WHY, and no doctor or professional cared to look into it. They told me to do light exercise and I tried.. Tried so many times but doing something like cleaning up one room, was enough to hit me badly.. I hated it, still do 🫠

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