It heartens me enormously that fibromyalgia is being researched and collaborated on, worldwide #fibromyalgia #autoimmuneconditions #chronicpain www.kcl.ac.uk/news/new-stu... - ThreadSky

nasheridan.bsky.social • 74 days ago

It heartens me enormously that fibromyalgia is being researched and collaborated on, worldwide #fibromyalgia #autoimmuneconditions #chronicpain
https://www.kcl.ac.uk/news/new-study-shows-fibromyalgia-likely-the-result-of-autoimmune-problems

Comments

elisabethcampbell.bsky.social•73 days ago

Mind you, the study was done and dusted 3 years ago - what has happened. Over 3 years is a long time in research in both Liverpool and London

elisabethcampbell.bsky.social•73 days ago

And so say all of us. I thought that was a 'known' (maybe just suspected) along with ME, Long Covid, Rheumatoid Arthritis etc etc

yeshes.online•73 days ago

Have strongly suspected auto-immune origins for about a decade given all the findings on auto-immune and that this disorder (which I live with) has worsened the more formal auto-immune outcomes doctors have confirmed in me.

Starting to think #microplastics also in this Venn, somewhere.

karenpearny.bsky.social•74 days ago

That is amazing ! 😻 if they can find antibodies to give us to try and reverse illnesses ! Also
A blood test to detect illness ! Yay! 🙌

nasheridan.bsky.social•74 days ago

Like you, Karen, I have ME & Fibro with a bit of Long Covid mixed in. All 3 illnesses desperately need major research & investment. I've had migraine for over 30yrs, and only now is there an influx of new treatments to try 🤔

karenpearny.bsky.social•74 days ago

I’m have had Covid twice maybe 3 times ( as didn’t test last time) and I’m sure that’s also not helped me plus we don’t know enough about the vaccines … I’m not anti vax I had quite a few but I just don’t know whether all of them plus Covid made me worse as I’m def worse now than pre 2020.

nasheridan.bsky.social•74 days ago

I was in remission with ME for many years, but after developing Covid in Dec 2021, it's definitely returned. I was limited in what I could do with fibro/fatigue, and now it's greatly reduced. I'd say 45% less energy since Covid

karenpearny.bsky.social•74 days ago

😢

Posting Rules

Be respectful to others
No spam or self-promotion
Stay on topic
Follow Bluesky's terms of service

Comments

Posting Rules

Reply