The kind folks at Rare Disease Day have shared Amelia’s #BattenDisease story, and you can read it at the link below!
Rare Disease Day is Feb. 28th and the more awareness we can spread, the better!
https://www.rarediseaseday.org/heroes/amelia-the-cln1-warrior/
Rare Disease Day is Feb. 28th and the more awareness we can spread, the better!
https://www.rarediseaseday.org/heroes/amelia-the-cln1-warrior/
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