Thrilled to share our perspective on recruitment and retention strategies to engage a diverse pediatric populations in genomics research in #AJHG today. This work highlights the importance of inclusive practices in genomic studies. 🧵 www.sciencedirect.com/science/arti... - ThreadSky

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eimearekenny.bsky.social • 110 days ago

Thrilled to share our perspective on recruitment and retention strategies to engage a diverse pediatric populations in genomics research in #AJHG today.

This work highlights the importance of inclusive practices in genomic studies. 🧵

https://www.sciencedirect.com/science/article/pii/S0002929724003847?dgcid=coauthor

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eimearekenny.bsky.social•110 days ago

1/ Our study successfully enrolled a pediatric cohort with 77% from underrepresented populations, surpassing our 60% goal. This diversity is crucial for ensuring genomic research benefits all communities.

eimearekenny.bsky.social•110 days ago

2/ We implemented patient-centered strategies, including culturally and linguistically congruent staff, flexible study procedures, and stakeholder engagement. These methods led to a low decline rate of 6.5% and a high retention rate of 87.3%.

eimearekenny.bsky.social•110 days ago

3/ Collaborating with a diverse stakeholder board was instrumental. Their insights helped refine our recruitment materials and processes, ensuring they resonated with the communities we aimed to serve.

eimearekenny.bsky.social•110 days ago

4/ Our findings underscore the necessity of inclusive recruitment and retention strategies in genomics research. By prioritizing diversity, we can enhance the applicability and equity of genomic discoveries.

eimearekenny.bsky.social•110 days ago

5/ Kudos to #MichelleRamos, #KateBonini the entire #NYCKidSeq team! This study was part of the #CSER consortium funded by #NHGRI

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