anyone who has POTS, is it worth it to go through the trouble of diagnosis? I’ve felt like I might have it for years but very hard to get diagnosed due to doctors saying it’s just the iron deficiency (I have symptoms while on iron) also, some tips for coping with symptoms? #disabled #pots - ThreadSky

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astraluune.bsky.social • 29 days ago

anyone who has POTS, is it worth it to go through the trouble of diagnosis? I’ve felt like I might have it for years but very hard to get diagnosed due to doctors saying it’s just the iron deficiency (I have symptoms while on iron)

also, some tips for coping with symptoms?

#disabled #pots

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gimpynurse.bsky.social•29 days ago

I think yes- because you'll know for sure what is going on, and if you end up needing to be on disability, you'll have the 'paperwork'. I've had that and neurocardiogenic syncope for about 28 years- and disabled for 21. Heat and pain are my big triggers. An ice/cooling vest helps a lot. GlacierTek.

gimpynurse.bsky.social•29 days ago

Also,with a diagnosis, you'll have an idea of what things (meds) can help. Without a dx, it's just hit and miss (some of that w/a dx as well, but better to have a 'target' diagnosis to work with). Dysautonomia impacts EVERYTHING.

astraluune.bsky.social•29 days ago

You’re right honestly, I didn’t consider this

rkfatheree.bsky.social•27 days ago

I agree it’s better to get a diagnosis. There are lots of treatments to try. While you’re waiting, if you don’t have high blood pressure you can try increasing your salt and water consumption.

astraluune.bsky.social•27 days ago

I’m predisposed to hypertension cuz of my mom but I definitely try to eat more salt, just not too much. And thank you!

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