I'm noticing a pattern. If its my day off and I struggle to wake and get up because my body wants to sleep till afternoon; its hot outside. Apparently my #Fibro gets hit hard by the heat. It's only my second summer like this and I'm still figuring out how to manage it. - ThreadSky

eliseswritings.bsky.social • 97 days ago

I'm noticing a pattern. If its my day off and I struggle to wake and get up because my body wants to sleep till afternoon; its hot outside.

Apparently my #Fibro gets hit hard by the heat. It's only my second summer like this and I'm still figuring out how to manage it.

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judeinlavender.bsky.social•97 days ago

Heat is awful for it. Movement is good. Try moving your whole body a little every day. Simple rotations etc. It helps lots. Sugar is poison flit, soda and rotate the worth. Try to stay away from those. Also stress is a killer. Hope it helps. 🫂

eliseswritings.bsky.social•97 days ago

On a normal day I'm getting better at distinguishing between 'you must rest' fatigue vs. 'going for a walk will fix this' fatigue. 'You feel like you must sleep but you actually need to move' Hot Weather Fatigue is an even more confusing kettle of fish 🙃.
But yes, that helps and I'm getting there.

juliemarchbooks.bsky.social•97 days ago

My pots definitely gets worse in the summer. A lot of people don't seem to understand that heat, not cold, can be a huge pain/fatigue trigger

eliseswritings.bsky.social•97 days ago

A muscle injury in summer years ago showed me that heat and pain are a bad combination, but with fatigue being less known about full stop, that wouldn't surprise me.

bedky.bsky.social•97 days ago

my energy levels take a massive hit during summer also, its really awful! hope you manage to stay cool❄️

eliseswritings.bsky.social•97 days ago

I suspected my normal levels of getting things done might need adjusting for hot days. Thanks!

makeithappenmatt.bsky.social•97 days ago

Does Vic have a health-related air conditioning rebate that you may qualify for like QLD does?

eliseswritings.bsky.social•97 days ago

I'm not sure, but as a renter it likely won't make a difference. We've got aircon in the living room, its just hard to get my day started without it in my bedroom.

makeithappenmatt.bsky.social•97 days ago

I mean we also get a rebate to go towards our power bill

aminaleeds.bsky.social•97 days ago

My fibro is worse in the heat too. Apparently that's supposed to be uncommon but I see more and more people who have the same experience.

reyanth.bsky.social•95 days ago

Yeah, extreme temperatures or changing weather definitely bring on the fatigue.

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