We are proud to share our involvement in a new paper from the National Organization for Rare Disorders (NORD®) outlining policy principles and recommendations to fortify public trust in the U.S. newborn screening system. Learn more: https://rarediseases.org/newborn-screening-report/
Reposted from
National Organization for Rare Disorders (NORD)
Newborn screening residual dried blood spots are critical to the functioning of #NewbornScreening programs & #RareDisease research, but controversy & unclear legal/ethical guidelines may affect their continued use. NORD outlines the issue in a new paper: rarediseases.org/newborn-scre...
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