migraines with aura BUT w/o headaches apparently happen in only 4% of migraine patients, I feel so special but I’m tired of seeing stained glass, zigzag lines, kaleidoscope vision stuff for 20-30 min—very annoying. if anyone has any management tips in relation, please pass along 🙏 example image: - ThreadSky

brookebennett.bsky.social • 16 days ago

migraines with aura BUT w/o headaches apparently happen in only 4% of migraine patients, I feel so special but I’m tired of seeing stained glass, zigzag lines, kaleidoscope vision stuff for 20-30 min—very annoying. if anyone has any management tips in relation, please pass along 🙏

example image:

Comments

justinrawlins.bsky.social•16 days ago

I'm so sorry, Brooke! Fellow sufferer here. I wish I had suggestions. The only thing that's helped my migraines is Ubrelvy, but that's just mitigated the pain. Haven't found anything yet that's helped the aura when they occur (I usually give up then, lay down, close my eyes, and do
deep breathing).

brookebennett.bsky.social•16 days ago

I’m low key worried it may happen when I’m driving… but it’s usually only one eye & I can pull over I’d assume! seeing my neurologist again soon but went to a diff city to make sure it wasn’t brain or eye issues (thankfully it wasn’t)! just the *weirdest* medical thing I’ve ever experienced lol

justinrawlins.bsky.social•15 days ago

Oh my goodness that would be scary. Migraine auras are such strange experiences (for me colors get so oversaturated that it also messes up my depth perception-fore, middle, and background all start to blur), and it's really smart that you're being proactive about seeing a specialist!

brookebennett.bsky.social•15 days ago

my mom is a retired neuro icu clinical nurse manager from a great hospital in dallas aka I have no choice but to see all the specialists for the technically neuro related problem 😂

lindseydecker.bsky.social•16 days ago

Ugh, that sucks! None of the fast acting/acute stuff has worked on my visual symptoms or aura, but I'm on Ajovy now as a preventive, which has significantly reduced the number of days I have any migraine symptoms at all. I was skeptical, but if insurance covers it, it could be worth trying.

brookebennett.bsky.social•16 days ago

oooh interesting! many of the older meds that it says online are the “first line of action” or for pain I cannot take due to drug interactions, so these newer ones seem much more promising as that is not the case for them!

brookebennett.bsky.social•4 days ago

update for those interested: migraine preventative medicine has been prescribed! starting Ajovy to help me reduce these weird aura hallucination things!

brookebennett.bsky.social•16 days ago

very thankful I have no headaches tbh, I know some people get those very badly with this stuff!

profkc.bsky.social•16 days ago

I wish. I just have to close my eyes until it goes away.

brookebennett.bsky.social•16 days ago

I feel this big time. everything gets so bright that sometimes I can’t even read my phone or continue a book I was reading, etc.

profkc.bsky.social•16 days ago

From the moment I first notice it happening until the time where it completely obscures my vision (and then goes away) is around 40 minutes. Even after that, the excessive brightness you note is horrible.

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