Since I've been ill with #LongCovid I've had so many people wanting to give me advice on what I can do to get better.
Most of the time this is coming from a good place. People want to help me and I understand that.
But I can find this difficult at times.
Short thread on why.
Most of the time this is coming from a good place. People want to help me and I understand that.
But I can find this difficult at times.
Short thread on why.
Comments
The most common advice I lend to fellow LC sufferers who ask, is to remember to be kind to yourself. Amidst the relentless cycles of grief, I know that’s been an ever present struggle for myself in my 5yr journey with this disease.
To want to help people find ways to get better.
Especially when help is lacking in the form of medical treatments.
I'm sure I've done it myself in the past.
If only I took the right supplement.
Or paced a bit better.
Or meditated more.
Or sat in the sun everyday.
Or put seeds in my ears.
The list goes on..
And as there are no medical treatments for #LongCovid of course we have to do what we can ourselves to try and get better.
But we need to stop expecting people to find cures themselves.
The onus needs to be squarely on government to properly fund research to find the treatments we need.
People with ME/CFS have been battling this for decades.
Things need to change.
Our ability to be part of everyday society is often very limited.
It's hard for us to be advocates for change.
And power concedes nothing without a demand.
So we need allies.
Write to your MP.
Sign a petition.
Write to your local paper.
Share online advocacy.
Support one of the long covid charities and advocacy groups by volunteering or by making a donation.