Caretaking a terminally ill, cranky, stubborn dad, both of us with ADHD, is the loneliest, isolating and heartbreaking season. He requires 24 hour care. Parents made too much money to qualify for help/don’t have enough to pay for professional help. I moved in in April. I love my parents so much - ThreadSky

lizzhuerta.bsky.social • 59 days ago

Caretaking a terminally ill, cranky, stubborn dad, both of us with ADHD, is the loneliest, isolating and heartbreaking season. He requires 24 hour care. Parents made too much money to qualify for help/don’t have enough to pay for professional help. I moved in in April. I love my parents so much

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chizpa.bsky.social•59 days ago

Much love to you, Lizz

lizzhuerta.bsky.social•59 days ago

And they’re killing me. My mom is also disabled and deeply depressed. My sisters have young kids and are busy running the family business. The care work is hard and people have stopped coming around to help. I get it. It’s devastating seeing the way the disease has altered him. And he’s still him

lizzhuerta.bsky.social•59 days ago

My dad worked 6 days a week for years, he loved his business and interacting with people every day. He was a charmer, funny, he played his guitar daily, he gardened daily. His life is now bed or his chair. He cannot move. He watches r-wng news 24/7. The soundtrack to caring for him is constant hate

lizzhuerta.bsky.social•59 days ago

We have hired a couple señoras to come a few hours a day but it adds up and only one is consistent. We’re at the point where one person isn’t enough so either my mom or I have to be around. My mom struggles and her frustration/rage needs somewhere to land. I am a landing place.

lizzhuerta.bsky.social•59 days ago

I lived alone my whole adult life. I shaped my life, solitary, childless, so I could create. He was diagnosed with ALS 3 weeks before my book came out in 2022. I have been unable to create and feel like I’ve lost everything that makes me me. And my suffering is nothing compared to his.

lizzhuerta.bsky.social•59 days ago

I feel very much like Tita in Like Water for Chocolate, a magical bitch stuck in some bullshit not of her choosing but culturally required. When I do get out I jump every time my phone rings. I’ve reached out to friends for support and…I get it. It’s a lot, I’m a lot these days.

lizzhuerta.bsky.social•59 days ago

I don’t think I’ve had a day without breaking down in tears in six months. I don’t recognize myself in the mirror. I love my dad so deeply, we’ve had a complicated relationship my whole life, we enrage each other and also have a deep connection through our love for creating.

crimewatch.bsky.social•34 days ago

💔❤️

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