I'd probably only trust someone like Jamie Ducharme to write this one. The psychologization of severe-presenting #MECFS and #LongCOVID. Worth a read. 🧪
Props to Rivka Solomon, and other people with lived experience who spoke.
https://time.com/7206080/long-covid-psychiatric-wards/
Props to Rivka Solomon, and other people with lived experience who spoke.
https://time.com/7206080/long-covid-psychiatric-wards/
Comments
Gaslighter in charge of chronic tiredness
Expert on #LongCovid since March 2020
https://me-pedia.org/wiki/Trudie_Chalder
Tough read though, really triggering 😬
20 years ago I sought help with the grief of all the losses due to me/cfs. I narrowly missed ending up in a psych ward bc of a misdiagnosis of an eating disorder that I didn't have.
So wrong this is still happening.
We really need to be able to help people with serious digestive and allergic issues in this disease without referring them to ED clinics!
It was complaining about my food intolerances/digestive issues to this psych that almost got me in there.
The only reason I didn't was because I actually was seeing a specialist about serious digestive/allergic issues, and referred the psych to them.
Your comment is spot on!
The amount of medical trauma people with chronic illnesses have is in large part due to this very thing happening.
Re: treatments-- these diseases affect more women than men, and these diseases have been systematically underfunded for decades
https://www.nature.com/immersive/d41586-023-01475-2/index.html
Pacing Guides for activity management: https://www.meaction.net/resource/pacing-and-management-guide/
Concise Clinical Review for #MECFS: https://www.mayoclinicproceedings.org/article/S0025-6196(23)00402-0/fulltext
⬆️ This article has med ed for your dr if they're willing
Looking forward to that new paper!