Sharing 2 new actions by the Independent Advisory Group on the Cochrane review on exercise & #ME/CFS: Comment submitted on the Cochrane review: hbprojecttalk.wordpress.com/2025/03/13/i... Submission to the Cochrane Library Editorial Board: hbprojecttalk.wordpress.com/2025/03/13/i... ... - ThreadSky

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hildabast.bsky.social • 7 days ago

Sharing 2 new actions by the Independent Advisory Group on the Cochrane review on exercise & #ME/CFS:

Comment submitted on the Cochrane review: https://hbprojecttalk.wordpress.com/2025/03/13/independent-advisory-group-comment-on-the-cochrane-exercise-review/

Submission to the Cochrane Library Editorial Board: https://hbprojecttalk.wordpress.com/2025/03/13/iag-submission/

...

Comments

shevekuk.bsky.social•7 days ago

Thank you so very much for doing this. It's hard, difficult work you're doing but I appreciate it

uab9876.bsky.social•6 days ago

The question to Cochrane should be will they put their money behind the review and pay damages to people who are harmed due to doctors relying on a review that they know is flawed. Same question to the company who publish their reviews.

hildabast.bsky.social•7 days ago

...I've added both to my #CochraneStuff page:

https://hildabastian.wordpress.com/cochrane-stuff/

It's coming up to a month since I asked why, after decades of transparency, they stopped posting governing board minutes - still no reason given, missing minutes still not posted.

sandverge.bsky.social•7 days ago

Thank you for making these efforts.

jessikafe.bsky.social•6 days ago

Thank you Hilda! So importent!

roberthmcmullen.bsky.social•6 days ago

Thank you, Hilda. It makes such a difference when well people who are in positions to affect positive change speak out. I never wanted to get involved with ME/CFS politics but for a long time I felt I had no choice.

roberthmcmullen.bsky.social•6 days ago

@georgemonbiot.bsky.social This may be of interest. Cochrane appears to be ignoring concerns about the accuracy and safety of its review of exercise therapy for [ME/CFS] for unscientific reasons.

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