Reposting some #MyalgicEncephalomyelitis content here on bsky: #DecodeME: Being female, being older and being over 10 years from #MEcfs onset are significantly associated with greater severity of disease. In DecodeME, 83.5% #pwME are female. openresearch.nihr.ac.uk/articles/3-20 - ThreadSky

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cgatist.bsky.social • 113 days ago

Reposting some #MyalgicEncephalomyelitis content here on bsky:
#DecodeME: Being female, being older and being over 10 years from #MEcfs onset are significantly associated with greater severity of disease.
In DecodeME, 83.5% #pwME are female.
https://openresearch.nihr.ac.uk/articles/3-20

Comments

cgatist.bsky.social•113 days ago

116 blood traits are significantly different – on average – between people with #MEcfs and healthy controls, *both* in females, and in males. This keeps alive the future ambition of a blood-based biomarker panel for accurate #MEcfs diagnosis
https://www.medrxiv.org/content/10.1101/2024.08.26.24312606v2

suprion.bsky.social•103 days ago

📌

cgatist.bsky.social•113 days ago

Also, a personal viewpoint on #MECFS. This is focused not on #pwME rather on why we - society - forsake them https://theconversation.com/ignored-blamed-and-sometimes-left-to-die-a-leading-expert-in-me-explains-the-origins-of-a-modern-medical-scandal-241149

eleanorsews.bsky.social•113 days ago

Thank you for this. Today’s #FanningTheFlames cartoon uses one modality to highlight comparisons with another …

psychichealerc.bsky.social•112 days ago

Thank you for that information.

psychichealerc.bsky.social•112 days ago

📌

simarilon.bsky.social•112 days ago

🤞🏼

cgatist.bsky.social•113 days ago

Lifetime prevalence of #MEcfs in England may be as high as 0.92% (females) and 0.25% (males), or approximately 390,000 UK individuals overall.
https://www.medrxiv.org/content/10.1101/2024.01.31.24302070v1

murtoz.bsky.social•113 days ago

Thank you Chris for all your hard work, your morals and your honesty. And most of all for just believing us. I'm excited to see results starting to come out of DecodeME and so grateful I was able to take part. 💜

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