If you’re doing patient involvement for a mental health service and you are only listening to people who have been able to use the service, you risk an incomplete picture. You also need to listen to those who needed the service but were excluded from it, unable to access it, or ‘gatekept’ away. - ThreadSky

drem79.bsky.social • 99 days ago

If you’re doing patient involvement for a mental health service and you are only listening to people who have been able to use the service, you risk an incomplete picture. You also need to listen to those who needed the service but were excluded from it, unable to access it, or ‘gatekept’ away.

Comments

richarduri.bsky.social•99 days ago

Part of my role is listening to these stories and sharing them with policy makers. All we have is anecdotal evidence but I’ve seen a story lead to more funding than a spreadsheet more than once!

benprior.bsky.social•99 days ago

I had an absolutely brilliant spoke out to a Community Engagement Team at a local Trust whose primary role was literal boots on the ground in Trust catchment to reach demographics barriered to care access. Sad that this doesn't seem to be standard practice across the board

drem79.bsky.social•99 days ago

Increasingly I see criteria for patient involvement stipulating a person must have used a service in the last two years (or less) to have a say. Only listening to those for whom the system is working (to some extent, even if only in access), means potential for learning and improvement is limited.

nippermaddog.bsky.social•99 days ago

Much involvement is meaningless these days

dtha15.bsky.social•99 days ago

it is like “community participation” in local land use regulation, where the people most hurt by exclusionary practices have no voice

drem79.bsky.social•99 days ago

This is particularly a risk as mental health services are increasingly fragmented. Super-specialisation means teams may see patients meeting narrow criteria. Often it seems few in the system have a sense of what happens to unwell patients who don’t meet those. It isn’t just unmet need, it is unseen.

drdiss.bsky.social•98 days ago

Very true

And equally, those who aren’t seen by mental health services because they “don’t engage” shouldn’t be forgotten either

Those doing patient involvement often don’t consider their needs

The standard ways of involvement often lack creativity

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