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radishdoodles.bsky.social
•
28 days ago
I'm so sorry, I'm a von willebrands patient, and I totally understand the anger and fear. Has the care team talked to you about it?
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muhreesuh.bsky.social
•
27 days ago
I have not heard anything from them yet. Giving it some time for the dust to settle. Sending you good energy, I am so sorry you are going through this too.
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radishdoodles.bsky.social
•
27 days ago
So sorry! I'm in Canada! But I have a lot of friends in the US dealing with similar issues.
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