Getting or seeking a diagnosis isn't always about "cures" or treatments. Often it's just about getting answers. Especially when you've spent years... Decades... Being told there's nothing wrong, losing trust in yourself, losing trust in everything... It can be so important. - ThreadSky

adamfare1996.bsky.social • 23 days ago

Getting or seeking a diagnosis isn't always about "cures" or treatments.

Often it's just about getting answers.

Especially when you've spent years... Decades... Being told there's nothing wrong, losing trust in yourself, losing trust in everything...

It can be so important.

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elleomentaleontine.bsky.social•22 days ago

Sometimes knowing the diagnosis is liberating in itself, rather than a road to medications or treatments. With my brother, we finally went from "he is special" to "I'll need to read up on the way he looks at the world, to make his life easier" The diagnosis is important.

recappi.bsky.social•23 days ago

I don't need a doctor to put it in my records that i'm autistic to be satisfied with multiple doctors and autistic people that know me saying i have it. I need answers from the people that know me, not paper. ADHD ill get diagnosed and rediagnosed and rediagnosed again until I get help.

chestnutt71.bsky.social•23 days ago

Get cancer.

They finally take you seriously once they realize you have cancer.

adamfare1996.bsky.social•23 days ago

Sadly you're right (if they believe you and actually do the scans etc to diagnose in the first place!!)

Everyone deserves the best level of care, sadly the system only works if you have certain diagnoses

sloppymimic.bsky.social•23 days ago

A Dx - especially about neurodivergence can be at it's most basic form, a gift of context.
Context that can lead to self exploration, validation, self esteem, self improvement and moving forward in a way that isn't stumbling in the dark.

axolotlskitterways.bsky.social•23 days ago

I find it bizarre when doctors insist on withholding diagnoses for kids because they “don’t want them to have that label”, like somehow having a name for the problem will suddenly make their life harder. Being diagnosed/medicated for ADHD made my life easier, but that argument was still used.

karenpearny.bsky.social•23 days ago

It’s about not thinking I was going crazy. Having the diagnoses means maybe getting diff meds, treatments. My physio can tailor treatment more for me and maybe some people understanding I’m genuinely ill!

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