@shematologist.medsky.social Presumptuous question: (If you don’t have time to answer, I understand.) So I got my annual iron infusion today. Other than the pre-infusion cocktail of Benadryl and steroids…why is it so exhausting to sit in a chair while iron drips into my veins? - ThreadSky

seemomster.bsky.social • 10 days ago

@shematologist.medsky.social
Presumptuous question: (If you don’t have time to answer, I understand.) So I got my annual iron infusion today. Other than the pre-infusion cocktail of Benadryl and steroids…why is it so exhausting to sit in a chair while iron drips into my veins?

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shematologist.medsky.social•10 days ago

We typically don’t use Benadryl bc of this. But infusion reactions (not allergic) aren’t that rare and can be associated with flu like feelings including fatigue

seemomster.bsky.social•10 days ago

Thank you for replying! I’m the poster-child for weird blood. Pretty sure it’s my immune system messing with me! Yay UCTD/serum-negative RA! I’m better since I started Humira *and* MTX. Before this new regime I was hitting 12 about every four months.

seemomster.bsky.social•10 days ago

Well there we go. I don’t think it’s the benedryl. Hey, I shouldn’t complain. My ferritin was only down to 38 this time…not the 12 it was a year

seemomster.bsky.social•10 days ago

Ago. A year ago. I like my new heme PA. She’s young and has the energy to battle with the insurance company and get that ish approved.

shematologist.medsky.social•10 days ago

So glad you have someone in your corner 😊

aheise.bsky.social•10 days ago

Benadryl alone would clobber me

seemomster.bsky.social•10 days ago

Maybe just the stress response to the 10 mg of IV decadron. Or being stuck in a sharing for *hours*.

aheise.bsky.social•10 days ago

Also for myself I think I m a bit of a Pavlov’s dog, so if by accident I reacted poorly once to a procedure (e.g. did it on an empty stomach, fainted) I will probably faint again next time I have that procedure.

seemomster.bsky.social•10 days ago

Oh, I’m not like that…but my mother was. And if I’m allowed to eat before a procedure I do. I bring snacks with me, too. The snack cart at Duke infusion doesn’t to have much for we celiac folk. Pudding, applesauce, peanut butter. I bring meat sticks, fruit, and GF crackers.

seemomster.bsky.social•10 days ago

And all hail the warm blankies!

aheise.bsky.social•10 days ago

That is the one killer app about health care, those warm blankies.

seemomster.bsky.social•10 days ago

Yeah, but it doesn’t usually take this much out of me…and it was only 25 mg.

aheise.bsky.social•10 days ago

I hope you get an answer.

seemomster.bsky.social•10 days ago

I did!

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