You don't know my medical history so I don't know why you're questioning why I want to see a geneticist and allergist. Just because you might be a patient advocate does not mean you know what's best. So maybe be kind.
As soon as you said geneticist and allergist, I had a good idea what your potential diagnosis is. Good luck. The right allergist literally saved my life, but you have to find a properly educated one.
I saw Dr Anne Maitland. She’s running a private clinic now for MCAS support. There’s an EDS website with a list of knowledgeable doctors somewhere online…
Exactly. It doesn't occur to them that I may have multiple issues going on at the same time. I and many doctors suspect I have EDS and MCAS. But I can't verify it without seeing the right specialists.
Yup, I really hope they're lying about being a patient advocate. But sadly, most patient advocate I've talked to have no idea how the medical system works. They always tell me to switch doctors like it doesn't take years to get a new one.
idk who this is cause they're already blocked so I am guessing they're not a very good person. But I hope you soon connect with a validating expert that knows how to help you.
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