(I am not a medical doctor, this is not medical advice) Meds for POTS: florinef, beta blockers, clonidine, mestinon, midodrine. IV hydration. But all this requires doctors who listen and know what to try. - ThreadSky

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sagetoko.bsky.social • 230 days ago

(I am not a medical doctor, this is not medical advice) Meds for POTS: florinef, beta blockers, clonidine, mestinon, midodrine. IV hydration.

But all this requires doctors who listen and know what to try.

Comments

megclems.bsky.social•230 days ago

I would throw in corlanor (ivabradine) as well

sagetoko.bsky.social•230 days ago

Oh yes! I forgot that it’s not a beta blocker.

brucelevine.bsky.social•230 days ago

Every option can help - thank you

megclems.bsky.social•230 days ago

I hope you find a combo that works for you! Even if something helps reduce symptoms by, say, 5% - that can make a big difference

brucelevine.bsky.social•230 days ago

Or sometimes even 1% can feel like a difference. Thank you!

brucelevine.bsky.social•230 days ago

“But all this requires doctors who listen and know what to try.”

A unicorn.

Thanks for suggestions. And I understand, NMA

sagetoko.bsky.social•230 days ago

I’m incredibly lucky in that I have a very good Long Covid doctor AND a very good cardiologist working with me on my POTS and other post-covid health issues. They shouldn’t be unicorns, but they are.

brucelevine.bsky.social•230 days ago

So true. Wishing the best for you and thanks again!

bookhaven.bsky.social•229 days ago

IV hydration on a regular schedule has been vital for my functioning

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