16) So then early-mid 20s I develop POTS, Fibro, and more autoimmune disorders. The fuller picture starts coming through. Autoimmune hives. Ruled out MCAS. Pre-lupus, they tell me. Doctors start telling me hey your body is kind of malfunctioning. The issue is I would not get "sleep-tired" at all. - ThreadSky

kellyannnavarre.bsky.social • 19 days ago

16) So then early-mid 20s I develop POTS, Fibro, and more autoimmune disorders. The fuller picture starts coming through. Autoimmune hives. Ruled out MCAS. Pre-lupus, they tell me. Doctors start telling me hey your body is kind of malfunctioning. The issue is I would not get "sleep-tired" at all.

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kellyannnavarre.bsky.social•19 days ago

17) Docs tell me my body is filled with all these stress hormones keeping me awake and functioning. I am not tired, sure, but it is not bipolar, nowhere near meeting criteria, but my body has just had to adapt for so long. I get dxd with circadian rhythm disorder + insomnia reinforcing each other.

kellyannnavarre.bsky.social•19 days ago

18) Without going into other needless detail that certainly didn't help the situation, a sleep specialist I saw in CLE finally just said... you need meds. Period. I was reluctant to take any because of prior horrible experiences, it took me almost 6 mo. to even take a single pill.

kellyannnavarre.bsky.social•19 days ago

19) They Rx me Remeron/Mirtazapine. Apparently it is an anti-depressant (not an SSRI, SNRI, Tricyclic, nor an MAOI, basically its cool own thing). Sometimes used to treat hives & autoimmune issues, too. It works on
serotonin and norepinephrine, but also has sedative and antihistamine properties.

kellyannnavarre.bsky.social•19 days ago

20) I finally take my first dose in Aug, 6 mo ago. They were Rxd in March. That is how long it took me to take after losing consciousness from a medication in 2017 because of mishandling my care (happened to already be unrelated AT the hospital when it happened, didn't die but got admitted to ICU).

kellyannnavarre.bsky.social•19 days ago

21) So... It took about two weeks to tweak the dose for Remeron and find the right one, but all I needed was 4 mg. It works such that the lower the dose, the more sedative the impact. 7 mg is more sedative than 15. If taken for more depressive purposes, 15-30 mg is the typical dose.

kellyannnavarre.bsky.social•19 days ago

22) However, 7 mg was way too sedative and I was too weak to really move. Opposite of what we wanted. I had a choice: I could either increase to 15 and see if the weakness and sedateness goes away, but if they were side effects and not necessarily the sedative impact, it would likely get worse.

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