Ayo chronically ill peeps rise up? Where is the rest of the crew. Where's my family at 🥺 Wait wait do I hashtag now? Idk how to work this thing. #chronicallyill #MCAS #MALS #gastroparesis #tummyache #dysautonomia #POTS #cEDS #EDS #zebra - ThreadSky

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dummygummygurl.bsky.social • 41 days ago

Ayo chronically ill peeps rise up? Where is the rest of the crew.

Where's my family at 🥺

Wait wait do I hashtag now? Idk how to work this thing.
#chronicallyill #MCAS #MALS #gastroparesis #tummyache #dysautonomia #POTS #cEDS #EDS #zebra

Comments

thischarmingamy.bsky.social•40 days ago

I’m a EDS zebra up with a gastroparesis flare. 🤮 Wish I were sleeping.

elysiumjohnson.bsky.social•41 days ago

I have the spectrum: MCAS, EDS, POTS, Dysautonomia, Benign Intracranial Hypertension (and a few others less severe

dummygummygurl.bsky.social•41 days ago

Hello fellow pagan and zebra, the algorithm is algorithming. ❤️ I haven't seen a whole lot of any kind of chronically ill post yet on this platform yet but to be fair I just migrated from the great tiktok shutdown lol so I have quite a bit of learning and navigating to do. Wbu?

elysiumjohnson.bsky.social•41 days ago

It takes a little while to navigate the algorithm here, but the hashtags definitely help as I follow pagan, disability etc groups here. Give me a minute and I will repost something that will helpfully help you find our peeps.

dummygummygurl.bsky.social•41 days ago

Thank you! 😁

elysiumjohnson.bsky.social•41 days ago

No problem.

chronicillness.bsky.social•40 days ago

I think you will find there is a huge chronic illness community here.

hotmessexpress.bsky.social•41 days ago

Liv? I have heds pots epilepsy the list goes on. Don’t have mcas though but I do have rosacea ughh

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