We're learning more about NIH's plans for Secy Kennedy's new autism studies
NIH Director Bhattacharya says they're amassing a swath of confidential medical data to link together for first time, ranging from broader access to CMS records to smartwatch data
https://www.cbsnews.com/news/rfk-jr-autism-study-medical-records/
NIH Director Bhattacharya says they're amassing a swath of confidential medical data to link together for first time, ranging from broader access to CMS records to smartwatch data
https://www.cbsnews.com/news/rfk-jr-autism-study-medical-records/
Comments
THIS MUST BE STOPPED!
The NIH Director should read the room. Our govt is sending folks it doesn't want to gulags.
THIS MUST BE STOPPED!
https://dpcpsi.nih.gov/sites/default/files/2025-04/Council-of-Councils-04.21.25-Director-Update.pdf
He promised "state of the art protections" for patient privacy and said Secy Kennedy's autism researchers won't download data
https://tinalexander.github.io/notes/2025/04#jay-bhattacharya-on-autism-research-plans
the high quality structured data in our collectively owned database is the most valuable asset on earth by orders of magnitude.
Think bigger potential than the Saudi Oil fields.
In 1901.
Biggest asset theft in history.
Biggest cyber crime in history.
He's talking about a national health surveillance database. I expect R senators are having heart attacks
No, only established well trained researchers at institutions with an FWA.
It’s a neurological difference, not a genetically inherited trait.
https://medschool.ucla.edu/news-article/is-autism-genetic#:~:text=Autism%20is%20hereditary%20and%20therefore,stem%20from%20non%2Dinherited%20mutations.
I didn't send in my DNA anywhere either
Possibly go wrong 🤬
2- the fuck will smartwatch data tell them about autism? Going to be some bullshit like 'doesn't get enough exercise to overcome vaccine injury'? Have they published study details/outcomes?
3- CMS data contains PII. You can't just fish around in it without...refer back to number 1.
#RemoveTrump
ppl should be given the option of informed consent for their medical records to be disclosed.
once you've gotten the link card you can delete the link so you don't need to shorten secretary for character limits