We need action now. Kelly needs help, support and access to the medication we know could help in her situation. The fact a Mum of 4 is contemplating assisted suicide because this is not available (in Britain, in 2025) is tragic beyond belief. - ThreadSky

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binitakane.bsky.social • 22 days ago

We need action now.

Kelly needs help, support and access to the medication we know could help in her situation.

The fact a Mum of 4 is contemplating assisted suicide because this is not available (in Britain, in 2025) is tragic beyond belief.

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binitakane.bsky.social•22 days ago

Link to letter with signatories here. Every healthcare professional who signed this is an ally. But we need the political will to make this happen.

https://www.thereforme.uk/p/world-patient-safety-day-letter

madknittrsteaparty.bsky.social•22 days ago

This is terrifying and my heart goes out to all involved. I am a mum of 2 with medium M.E that is becoming severe and it is very frightening for everyone, no one understands why there is so little help available.

Can you elaborate on your reference to 'medication we know could help'? V interested

binitakane.bsky.social•22 days ago

From the US consensus guidelines - link to full document here;

https://www.mayoclinicproceedings.org/article/S0025-6196(21)00513-9/fulltext

madknittrsteaparty.bsky.social•22 days ago

Thanks very much ❤

madknittrsteaparty.bsky.social•22 days ago

A big thank you for all you do ❤

annelawtey.bsky.social•22 days ago

She isn’t the only one considering it. In many ways not knowing how this illness ends (stay like this, get better, or get worse and die - and if the latter, how) is so hard to deal with. .

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