addisonsdisease.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

President John F. Kennedy has been back in the news following the release of thousands of declassified files. 🩺 But did you know he had Addison's disease? This is why #AddisonsDiseaseDay is celebrated on 29 May. Read more about JFK & Addison's ⤵️ www.addisonsdisease.org.uk/famous-lives...

submitted 2 days ago • 1 comment

Host an Addison's Afternoon Tea this May! ☕🍰 With #AddisonsDiseaseDay on 29 May, raise awareness and support those affected by Addison’s & adrenal insufficiency by hosting an Addison’s Afternoon Tea. 💜 Sign up now 🔗 www.addisonsdisease.org.uk/addisons-aft... Thank you for your support!

submitted 7 days ago • 0 comments

Last chance to sign up for our online Paramedic Training ⏰ Join us on Wednesday to learn more about Addison's disease, adrenal insufficiency & the emergency management of adrenal crisis 📅 Wednesday 2 April, 9.30-10.45am Book now ⤵️ www.addisonsdisease.org.uk/adshg-parame... #ParaCPD

submitted 7 days ago • 0 comments

Meet Hilary who has adrenal insufficiency & will be hosting: 'The Art of Parenting While Sick' webinar next Thursday! Ahead of her webinar she shares what support groups mean to her. From feeling lost & unwell, to an expert patient advocating for others. www.addisonsdisease.org.uk/blog/hilary-...

submitted 12 days ago • 1 comment

On Channel 5's 'GPs: Behind Closed Doors', Sarah attends feeling very unwell describing her symptoms as dizzy, very cold, a racing heart & breathlessness. Sarah begins to go into an adrenal crisis. (1/2) 🚨 Emergency: www.addisonsdisease.org.uk/emergency 📺S8 EP19: www.channel5.com/show/gps-beh...

submitted 15 days ago • 1 comment

Addison's disease & adrenal insufficiency are lifelong conditions that require daily medication & management. Being well-informed will not only help you to look after your health but will also make you feel more confident and in control. Read more ➡️ www.addisonsdisease.org.uk/newly-diagno...

submitted 16 days ago • 1 comment

We're delighted to welcome Dr Agata Juszczak as our main speaker at our Birmingham Member Get Together. 🎤 "When to consider an alternative steroid replacement to hydrocortisone" 📆 Saturday 26 April. 1-6pm 📍 Birmingham ➡️ RSVP 🔗 www.addisonsdisease.org.uk/Event/member... #AddisonsQA

submitted 19 days ago • 1 comment

Catching up with brilliant @socendocrinology.bsky.social Nurses at #SfEBES2025 and Emma from @pituitaryorg.bsky.social! We're asking nurses to set up adrenal insufficiency awareness stands in hospitals for #AddisonsDiseaseDay (29 May). Could you help? 👉 www.addisonsdisease.org.uk/run-an-aware...

submitted 22 days ago • 0 comments

Congratulations nurse Leigh Carroll-Moriarty, winner of our Annette Louise Seal Memorial Research Award at @socendocrinology.bsky.social #SfEBES2025. 📌"A retrospective analysis of the 9am cortisol predictive value of adrenal insufficiency." Read more 🔗 www.endocrine-abstracts.org/ea/0109/ea01...

submitted 22 days ago • 1 comment

Congratulations to the amazing Lisa Shepherd, awarded the @socendocrinology.bsky.social Nikki Kiefer award at #SfEBES2025. 🏆 "Adrenal Insufficiency: a nurse perspective from novice to expert" Marvellous lecture demonstrating vision & tenacity in adrenal insufficiency education. Well deserved👏

submitted 22 days ago • 0 comments

Great start to day 2 @socendocrinology.bsky.social #SfEBES2025 with Dr Helen Simpson's talk on the new adrenal insufficiency NICE guidelines. Dr Simpson broke down the guidelines, highlighting key changes & gave practical advice on implementation in clinical settings inc our leaflets for kits (1/2)

submitted 22 days ago • 1 comment

It's #NationalNappingDay - well there's a day those with Addison's & adrenal insufficiency can relate to! 💤 Before diagnosis, 94% of people report overwhelming exhaustion & we describe it as tired in a way no amount of sleep (or power nap!) will fix. www.addisonsdisease.org.uk/diagnosis-in...

submitted 23 days ago • 1 comment

It's been a busy morning at @socendocrinology.bsky.social #SfEBES2025. Great to see Prof @simonhspearce.bsky.social, Prof Aled Rees, Dr Sofia Llahana & Aldons Chua, all supporting steroid dependency education. 🆕 Sign up to our new HCP mailing list 👉 www.addisonsdisease.org.uk/adshg-the-co...

submitted 23 days ago • 0 comments

Hello Harrogate & all attending socendocrinology.bsky.social #SfEBES2025 👋 Visit our stand to learn more about Addison's disease, adrenal insufficiency & steroid dependency. Our stand is outside Studio 1. 📚 Sign-up to our new mailing list & learn how we can support you & your patients.

submitted 23 days ago • 2 comments

Delighted to be collaborating with @addisonsdisease.bsky.social to share my upcoming book ‘Be Patient’ for World Book Day 2025! Part 2 of ‘Be Patient’ covers my experience or living with adrenal insufficiency. This book is part of my wider mission to impact patient care 🌼📖💪

submitted 27 days ago • 0 comments

This #WorldBookDay, we speak to @thattillyrose.bsky.social about her first memoir, Be Patient, her story of life, loss & laughter from behind the hospital curtain. On our blog Tilly shares her journey with adrenal insufficiency & insight into patient life⤵️ www.addisonsdisease.org.uk/Blog/be-pati...

submitted 27 days ago • 1 comment

Have you registered for our Birmingham Event? 🗓️ Saturday 26 April, 1-6pm As part of the event, you'll have the chance to join one of four small discussions facilitated by Endocrine experts, where you can learn & share with others. 👉 Learn more 🔗 www.addisonsdisease.org.uk/Event/member...

submitted 27 days ago • 0 comments

💬 "The image means a lot to me because the year I moved to Oxford was when I first started experiencing symptoms and was later diagnosed with Addison's disease, so the painting brings up a lot of those memories of adjusting to my new normal." Read more 🔗 www.addisonsdisease.org.uk/magazine-win...

submitted 29 days ago • 0 comments

It's Rare Disease Day 2025 I'm one who lives with a rare, incurable illness Addison's Disease affects fewer than 9000 in 68,000,000 It's life threatening, there's no cure & we are kept alive artificially Showing another side of my life here to help raise awareness 💜 @addisonsdisease.bsky.social

submitted 34 days ago • 19 comments

🎉It’s #RareDiseaseDay, a day for everyone around the 🌍 who is affected by rare diseases to join together, raise awareness & celebrate this incredible community. So join us & raise awareness of our rare endocrine conditions, Addison's disease & adrenal insufficiency. (1/9)

submitted 33 days ago • 1 comment

Jenn was diagnosed with Sheehan’s Syndrome when her son was 13 days old. Suddenly living with secondary adrenal insufficiency, she repeatedly went into adrenal crisis. 🐶 Then Jenn discovered Medical Detection Dogs & now Joy is her cortisol alert dog ⤵️ www.addisonsdisease.org.uk/blog/jenns-s...

submitted 35 days ago • 1 comment

Off to the dentist or providing dental treatment for a person with Addison's or adrenal insufficiency? We explain what level of extra glucocorticoid (steroid) medication & monitoring will be necessary, & the action to take ahead of the appointment ⤵️ www.addisonsdisease.org.uk/addisons-dis...

submitted 36 days ago • 0 comments

Save the date - 29 May is #AddisonsDiseaseDay ✨ From hosting an awareness stand in your hospital to fundraising - read more on our website & get in touch to share your idea & find out how we can support you. www.addisonsdisease.org.uk/Event/addiso...

submitted 36 days ago • 0 comments

You're invited to join our first Member Get Together in 2025 🎉 All affected by Addison's or adrenal insufficiency and those that support them are welcome! 📆 Saturday 26 April. 1-6pm 📍 Birmingham 🎟️ Early Bird tickets now available! RSVP ⤵️ www.addisonsdisease.org.uk/Event/member...

submitted 39 days ago • 0 comments

#HalfTerm is nearly here! So whether you're planning a staycation or going abroad, keep a copy of the adrenal crisis guidelines with you in the language of your destination. Visit 👇for more info, inc guidance for airport security & your injection kit. www.addisonsdisease.org.uk/travelling

submitted 42 days ago • 0 comments

#SteroidSaturday is back! Join the Newcastle team & @simonhspearce.bsky.social on 22 March for another fantastic steroid education event. Learn more about the sick day rules, emergency hydrocortisone injection & more! All welcome. More info & RSVP ⤵️ www.addisonsdisease.org.uk/Event/steroi...

submitted 42 days ago • 0 comments

🧵 We need to put admin on the agenda 📢 Our new research, published today alongside @thekingsfund.bsky.social & @healthwatchengland.bsky.social shows how commonplace issues with #NHSAdmin are. www.kingsfund.org.uk/insight-and-...

submitted 44 days ago • 1 comment

Taking your replacement steroid medication at the right time every day is essential. But life is busy! So we've added some tips on making it part of your routine on our website 👉 www.addisonsdisease.org.uk/newly-diagno... Some ways we remember inc: ⌚️ Watch & phone alarms 📲 Apps 💊 Dossette box

submitted 51 days ago • 0 comments