amenduk.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

#phaeochromocytoma #pheochromocytoma #phaeo #pheo

submitted 1 day ago • 0 comments

submitted 3 days ago • 0 comments

Get ready for #RareDiseaseDay on Friday 28 February, but be quick! Merch delivery 48-72 hours. We are celebrating our Rare Disease Warriors! Merch - 📲 amend.teemill.com/awareness/ Donate - 📲 www.amend.org.uk/fundraisers-... #rarediseasewarrior #showyourstripes #supportasmallcharity #AMENDTeeshop

submitted 7 days ago • 0 comments

PeopleWith simplifies the capture of qualitative and quantitative patient data to present a complete picture of a patient’s health whilst they are not in front of a doctor, nurse or other healthcare provider. #PatientInsights #PatientData #ClinicalTrials #LifeScience #DigitalHealth lnkd.in/est56J3g

submitted 23 days ago • 0 comments

This World Cancer Day we're urging people not to refer to 'thyroid cancer as a good cancer.' Any cancer diagnosis is life-changing and calling it 'a good cancer', despite its high survival rate, invalidates people's concerns and experiences #WorldCancerDay #WCD2025 #thyroid #ThyroidCancer

submitted 23 days ago • 2 comments

Bladder #paraganglioma

submitted 23 days ago • 0 comments

It's a FREEPOST weekend at our charity store, where our exclusive Valentine's Day gifts are available. There's even a money-saving bundle offer! Get over there fast and make your 'other half' smile this Valentine's Day! #valentinesdaygifts #teemill #valentine 📲 amend.teemill.com/collection/g...

submitted 28 days ago • 0 comments

Doesn't it though?

submitted 28 days ago • 0 comments

The DHSC has confirmed an upcoming shortage of hydrocortisone sodium phosphate for emergency injection kits from the end of February 2025 to May 2026. You will need to order the alternative form: hydrocortisone sodium succinate 100mg powder ⤵️ www.addisonsdisease.org.uk/News/drug-sh...

submitted 28 days ago • 1 comment

🌍💜 This #WorldCancerDay, we recognize the strength in every unique cancer journey. Together, we are United by Unique. Join the movement on February 4. www.news-medical.net/health/How-t... #CloseTheCareGap #CancerAwareness

submitted 28 days ago • 0 comments

Congratulations to one of our brilliant Medical Advisory Team members, Prof Grossman! 👏 #endosky

submitted 28 days ago • 0 comments

#Adrenocorticalcancer #ACC

submitted 32 days ago • 0 comments

🚨 Check out our last collaborative study @unibirmingham.bsky.social with University of Milan on relationship between inflammation-based scores and #steroid secretion & #malignancy in #adrenal #tumours #BirminghamAdrenalTeam #EndoSky #MedSky pmc.ncbi.nlm.nih.gov/articles/PMC...

submitted 34 days ago • 0 comments

29 million - a few hours ago Bluesky user growth has ticked up to 2-3 per second again since Jan 20th. bsky-users.theo.io

submitted 36 days ago • 2 comments

Coming this Friday 24th January, our latest Webcast - All About Guidelines! Tune in at 19:30. 📲 www.amend.org.uk/patients/sup... #guidelines #medicalguidelines #patientinformation

submitted 36 days ago • 0 comments

Membership of AMEND is free to anyone affected by MEN or PPGL syndromes, MTC and ACC, as well as to health professionals: www.amend.org.uk/patients/joi... #MEN1 #MEN2 #MEN3 #MEN2A #MEN2B #PPGL #paraganglioma #phaeochromocytoma #Adrenocorticalcancer #ACC #MTC #medullarythyroidancer

submitted 36 days ago • 0 comments

Our AMEND BlueSky account now includes all our communities: multiple endocrine neoplasia syndromes, phaeochromocytoma and paraganglioma syndromes, medullary thyroid cancer, and adrenocortical cancer. Our separate accounts for PPGL and ACC have been deactivated. #MEN1 #MEN2 #MEN3 #ACC #PPGL

submitted 37 days ago • 0 comments

Po Hien Ear et al. highlight key insights from @socendocrinology.bsky.social's NET Models 2024. Experts discussed the current state of #neuroendocrine #tumor models, their limitations, and improvements for the future. Read it here 👉 https://doi.org/10.1530/EO-24-0055

submitted 38 days ago • 0 comments

Theranostics in NEN webinar www.ukinets.org/2025/01/ther.... #neuroendocrine #NEN #NET #theranostics

submitted 37 days ago • 0 comments

#neuroendocrine #acc #adrenocorticalcancer ccr.cancer.gov/news/article...

submitted 37 days ago • 0 comments

Applications for our master's programmes at @qmul.ac.uk @qmulfmd.bsky.social are now open for September 2025! 🎓Clinical Endocrinology MSc: bit.ly/40tNkXw 🎓Endocrinology and Diabetes Online MSc: bit.ly/3DTbJwX #Endocrinology #Diabetes

submitted 45 days ago • 0 comments

Yoga and gym bags available on our charity TeeShop. Profits support our work. amend.teemill.com/collection/g... #charitymerchandise #charitystore

submitted 49 days ago • 0 comments

Living with a RET gene mutation: patient perspectives in Endocrine-Related Cancer, Authors: Caroline Brain, Joanna Grey, and Kirstie Purnell 🔗 doi.org/10.1530/ERC-... #endosky #RET #RETgene #MEN2 #MEN2A #MEN2B #endocrinecancer #MTC #medullarythyroidcancer #patientperspectives #RET@30

submitted 50 days ago • 0 comments

Mechanisms of RET-mediated signal transduction, in Endocrine-Related Cancer, Authors: Francesca Carlomagno, Marialuisa Moccia, Giorgia Federico, and Massimo Santoro 🔗 doi.org/10.1530/ERC-... #RET #MEN2 #research #endosky #endocrinecancer

submitted 50 days ago • 0 comments

Cellular mechanisms of RET receptor dysfunction in multiple endocrine neoplasia 2, in Endocrine-Related Cancer, Authors, Timothy J Walker and Lois M Mulligan 🔗 doi.org/10.1530/ERC-... #RET #endocrinecancer #MEN2 #endosky #research

submitted 50 days ago • 0 comments

🚨Just a reminder that our #SIMBA #Adrenal session 2025 is coming up! Thanks to everyone who registered. If you are still interested in attending, please email [email protected] to be places on the reserve list. #EndoSky #MedSky See details at: sites.google.com/view/simbasi...

submitted 53 days ago • 0 comments

submitted 70 days ago • 0 comments

Cellular mechanisms of RET receptor dysfunction in multiple endocrine neoplasia 2 in Endocrine-Related Cancer Authors: Timothy J Walker and Lois M Mulligan erc.bioscientifica.com/view/journal... #MEN2 #endosky #RET

submitted 71 days ago • 0 comments

Time to update this starter pack now that @endocrinesociety.bsky.social Has joined go.bsky.app/AKj8YEm

submitted 71 days ago • 0 comments

The AMEND Christmas staff ‘party’ (lunch). A very good lunch indeed at Tallow,Tunbridge Wells 🎅 🎄 Merry Christmas to all! #TallowRestaurant

submitted 71 days ago • 0 comments

Following on from yesterday... Did you know we have information resources suitable for children with MEN syndromes from age 5 upwards. Check out our charming, simple, yet informative cartoon about MEN2 youtu.be/_nynHFFQiWI #endosky #MEN2 #multipleendocrineneoplasia #MrMunroAnimations

submitted 72 days ago • 1 comment

❓Did you know.......? We have information resources suitable for patients and family members with MEN syndromes from age 5 upwards. Check out our charming, simple, yet informative cartoon about MEN1 youtu.be/R5Tzjzmgf74 #endosky #MEN1 #multipleendocrineneoplasia #MrMunroAnimations

submitted 73 days ago • 1 comment

Survey reveals strong public desire for notification about AI use in healthcare Read more: www.news-medical.net/news/2024121... #AI #AIinmedicine #medicine

submitted 77 days ago • 0 comments

Tried to decorate the office. Not going well. Lots of swearing and luckily laughing 😂

submitted 79 days ago • 0 comments

FREE multi-lingual ‘Think NENs’ Global Educational Program for Primary Care Physicians from INCA incalliance.org/think-nens/. #endosky

submitted 80 days ago • 0 comments

Taking thyroid medication can be a hassle, especially for teens. But what happens if we don't take it regularly? Watch why it's important to take it to stay healthy. #shorts #thyroid #hypothyroidism #hyperthyroidism #autoimmune With thanks to @TNLCommFund youtube.com/shorts/kZ0nM... via @YouTube

submitted 80 days ago • 0 comments

@accsupportuk.bsky.social

submitted 81 days ago • 0 comments

Registrations open for the #SIMBA #Adrenal educational event 2025! Endorsed by @esendocrinology.bsky.social @socendocrinology.bsky.social with global experts & patient associations @accsupportuk.bsky.social @amenduk.bsky.social #AddisonUK sites.google.com/view/simbasimu… #EndoSky #MedSky

submitted 82 days ago • 0 comments

@accsupportuk.bsky.social

submitted 85 days ago • 0 comments

Real shame that the trains (lack thereof) prevented me from getting to Cardiff for #UKINETS 2024 but managed to record and send my presentation nonetheless. Challenges for patients with MEN syndromes #MEN1 #MEN2a #MEN2b

submitted 87 days ago • 0 comments

Screening and surveillance practices for MEN1‐related Neuroendocrine Tumours in European Neuroendocrine Tumor Society Centers of Excellence (ENETS CoE) — Journal of Neuroendocrinology onlinelibrary.wiley.com/doi/10.1111/.... #MEN1 #Endocrinology #neuroendocrine #letstalkaboutnets

submitted 94 days ago • 0 comments

Skiwear, festive designs and bags gallore! Profits help fund our work so shop now at our Teemill store for worldwide delivery in time for xmas 🎄 amend.teemill.com/collection/g.... #charitystore #charitymerchandise #teemill

submitted 94 days ago • 0 comments

Honoured to have presented our work on #liquidbiopsy #ccfDNA for prognostication and monitoring of #adrenal #cancer at the amazing @a5-adrenal.bsky.social @mdanderson.bsky.social Int’l Adrenal Cancer Symposium @amenduk.bsky.social @accsupportuk.bsky.social #adrenalcancer #adrenocorticalcarcinoma

submitted 96 days ago • 0 comments