beccaw1986.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

🚨 #EduSky, failing to upskill on #PansPandasHour means failing to meet a statutory duty to support students with disabilities. Training via NASEN is essential to provide accommodations + care. Don't risk non-compliance! #SEND #inclusion #Neurodiversity panspandasuk.org/post/pans-pa...

submitted 16 days ago • 0 comments

👏 A huge thank you to LA's for their countrywide response! Their commitment to fulfilling statutory duties for children with #PansPandasHour vital ensuring every child gets support they deserve. 🙌 panspandasuk.org/post/local-aut… #MedSky #EdSky #NeuroSky #SEND

submitted 16 days ago • 0 comments

'Lucy was a completely different child.’ The shocking reality #PansPandasHour. I've seen this lighting fast onset with my 5 yr old post #covid. It is beyond a nightmare. panspandasuk.org/wp-content/upl… @1goodtern.bsky.social @michaelrosenyes.bsky.social

submitted 16 days ago • 0 comments

panspandasuk.org/post/local-a... 🤗 to see LAs responding positively to @panspandasuk.bsky.social following recent judicial review. This ruling reinforces the importance of #EduSky #EdPsych #MedTwitter recognising #PANS is a med diagnosis—one that professionals have a duty to acknowledge + act on

submitted 19 days ago • 0 comments

www.sec-ed.co.uk/content/best... Thank you @seced.bsky.social for highlighting @panspandasuk.bsky.social to the #EduSky community.

submitted 19 days ago • 0 comments

Great to see @panspandasuk.bsky.social feature in @headteacherupdate.bsky.social and @seced.bsky.social this month. #EduSky #EdPsych #EP #MedSky #ChangeIsComing panspandasuk.org/post/childre...

submitted 19 days ago • 0 comments

She went to bed healthy and woke up a different child." 💔 #PansPandasHour can steal a childhood overnight. Their stories need to be heard. #Edusky #Edpsych #PansPandasHour #EP #neurosky #MedSky panspandasuk.org/wp-content/u...

submitted 19 days ago • 0 comments

A terrifying news day. Musk openly doing Nazi salutes. Trump withdrawing from WHO and Paris climate agreement. Scary stuff. www.theguardian.com/technology/2...

submitted 47 days ago • 8 comments

Exciting to see @panspandasuk.bsky.social we’re at the inaugural UK #Neuro alliance Forum at #Parliament. Fast past collaboration and change for our community at the moment! #MedSky #Neuro #GP #NHS #PrimaryCare panspandasuk.org/post/pans-pa...

submitted 48 days ago • 0 comments

"Clear, detailed and informative information. Explains the condition well and developed my understanding." - Teacher Training attendee For more details and to sign up for free CPD-accredited training, please go to - panspandasuk.org/events/ #PANS #PANDAS #CPDAccredited #TeacherTraining #Education

submitted 51 days ago • 0 comments

Thank you @wendychambld.bsky.social and all the MPs dedicated to the @panspandasuk.bsky.social APPG. Their call for #EduSky #EdPsych #teacher training + better #SEND guidance offers a beacon of hope for thousands of children who deserve the highest standard support. #MedSky

submitted 51 days ago • 1 comment

#tics #eatingdisorders extreme #anxiety violent or introverted behaviour. I found it harrowing to watch as a parent. #PansPandasHour #GuidelinesNow ⁦‪

submitted 53 days ago • 1 comment

@panspandasuk.bsky.social offer free CPD accredited training. Get your tickets booked! #Edusky #EdPsych #inclusion #SEND #inclusion #mentalhealth #neurodiversity #MedSky www.eventbrite.co.uk/e/supporting...

submitted 54 days ago • 1 comment

Children with #PansPandasHour become ghosts in their own lives—disappearing from school, friendships, + even their own personalities. It’s time to shine a light on their struggles + demand #guidelinesnow @rthonwesstreeting.bsky.social @pscommissioner.bsky.social @childrenscomm.bsky.social

submitted 55 days ago • 1 comment

Looks to be an exciting collab between @tamingolivia.bsky.social + @panspandasuk.bsky.social Youth Board – supporting 👧🏼 battling excruciating #OCD. While this is worth 🥳 let’s not forget: it shouldn’t fall solely on children + charities to support these kids. Systemic change needed. #guidelinesnow

submitted 56 days ago • 1 comment

I ❤️ this from Alex Manfull. Fear of inflammatory reductionism 👀from those relying on lazy stereotypes of hysterical mothers musn’t stop 🩺 from recognising the reality—thousands of 👧🏼 🌎wide report #PANS. Inaction risks misdiagnosis—for some, it is fatal #GuidelinesNow

submitted 57 days ago • 2 comments

The UK Government has launched the #UK #Neuro Forum, aiming to enhance support for neurological conditions, including @panspandasuk.bsky.social @rcgp.bsky.social #PansPandasHour #medsky #immunology

submitted 59 days ago • 0 comments

Advancing research on #immune conditions & mental health is crucial for understanding @panspandasuk.bsky.social Read about the latest efforts in this field: panspandasuk.org/post/furtherin… #PansPandasHour #Research #Neuro #MentalHealthMatters @NIHRBioResource #immunehealth

submitted 59 days ago • 0 comments

Calling all #NHS👨‍⚕️#GP #paedatrics The first UK #CPD-accredited module for @panspandasuk.bsky.social 👇. Please share with colleagues panspandasuk.org/post/first-uk-… #MedicalEducation #PansPandasHour

submitted 59 days ago • 0 comments

Supporting a child with @panspandasuk.bsky.social ? Discover how occupational therapy can make a difference. #PansPandasHour steppingstonesforchildren.com.au/supporting-you… #PansPandasHour #OccupationalTherapy #OTLife #OTSky #WeAreOT #NeuroOT

submitted 59 days ago • 0 comments

Exciting news! The @panspandasuk.bsky.social APPG is reconvening, with an impressive 26 members! Marking a crucial step in raising awareness +improving care for affected families💙 #PansPandasHour @wendychambld.bsky.social #changeiscoming #politics

submitted 59 days ago • 0 comments

#PansPandasHour A wonderful reminder from Mike Dater. #Immunology #RheumSky #Peds #Pediatric #Psychiatry #MentalHealth #NeuroSky #Neurology #Neuro #MedEd #MedSky

submitted 59 days ago • 0 comments

@louiseselby.bsky.social emphasises a critical distinction: #dyslexia does not develop suddenly. For children experiencing writing changes due to @panspandasuk.bsky.social , this misinterpretation can delay appropriate support and intervention.” 🧠💡 #Edusky #SEND panspandasuk.org/post/when-it...

submitted 60 days ago • 0 comments

#EdPsych #PsychResearch #TraumaInformed #Inclusion #ChildMentalHealth #Neurodiversity #SEND 🚨 Not #PANS aware? Feeling out of the loop re rapid health advances? Fear not! 🌟 📚 @panspandasuk.bsky.social has launched 2025 CPD sessions 📅 Don’t miss out panspandasuk.org/events/

submitted 61 days ago • 0 comments

#edusky #SEND the @panspandasuk.bsky.social FREE #teacher training is approaching and sure to fill quickly. Stay ahead in the fast-paced world of #neurodiversity and #SEND support! Don’t miss out—sign up for the next #cpd session now! #PANS #SLT #headteacherchat #SENCO

submitted 62 days ago • 0 comments

gofund.me/5cd2ba2a www.roehampton.ac.uk/news/2024/de... This is what #hope looks like for @panspandasuk.bsky.social community. If you are able please consider donating/sharing/keeping up to date with Fulvio DAcquisto’s ongoing research efforts. #medsky #paediatrichealth #NHS #DoctorsOfBlueSky

submitted 63 days ago • 2 comments

shorturl.at/D2z0r 🌟 Fantastic progress in #Scotland! The Scottish Government is stepping up to support families affected by @panspandasuk.bsky.social with initiatives set to raise awareness, improve diagnosis, and share best practices across #NHS 💪 #medsky #Scotland #paedatrichealth

submitted 64 days ago • 0 comments

👋🏻 2025 and 👋🏻 #PANs community 2024 was amazing 🇬🇧 • @panspandasuk.bsky.social launched its manifesto for change. •Reformed APPG driving policy improvements. •New collaboration with the #DYCPHER to help deepen understanding + improve treatments.

submitted 65 days ago • 1 comment

Almost at the 15k. These funds and conferences will raise so much awareness for these devastating conditions in children so that #medics and #parents can recognise them early, leading to the best outcome for the child. #Misdiagnosis and dismissal is far too common. #ChildHealth pls keep sharing.

submitted 90 days ago • 0 comments

#OCD #Tics #hallucinations #psychosis #frequenturination just some of the symptoms experienced by children with #pans #christmas If you can donate, share or send the community good vibes it will be much appreciated. One more day to raise funds. donate.biggive.org/campaign/a05...

submitted 90 days ago • 0 comments

shorturl.at/SkQTK @panspandasuk.bsky.social #BigChristmasGive No 🧒should suffer infection triggered OCD, tics, hallucinations, anxiety +psychosis. This conference will help end the cycle of misdiagnosis. 🙏share @mscaitlinmoran.bsky.social @stephenfry.bsky.social @martinlewis.moneysavingexpert.com

submitted 91 days ago • 0 comments

Hanging out with Walter #dogs trying to keep the amazing momentum going for the @panspandasuk.bsky.social #BigChristmasGive going. Help spread awareness of immune mediated neuropsych conditions ✌🏻 donate.biggive.org/campaign/a05... @mrrickygervais.bsky.social @davidwalliams.bsky.social

submitted 92 days ago • 0 comments

Could you share and help break the cycle of late diagnosis? Two days left to donate @panspandasuk.bsky.social #BigChristmasGive. donate.biggive.org/campaign/a05... @daltmann.bsky.social @binitakane.bsky.social @1goodtern.bsky.social @buonsenso.bsky.social @shaunlintern.bsky.social

submitted 92 days ago • 0 comments

@panspandasuk.bsky.social are so close to 100 donors! 🙏🏻 share + help us stop the cycle of 🧒🏼 misdiagnosis @martinlewis.moneysavingexpert.com @chrisgpackham.bsky.social @susiedent.com @michaelrosenyes.bsky.social @neilhimself.neilgaiman.com @jodipicoult.bsky.social donate.biggive.org/campaign/a05...

submitted 92 days ago • 0 comments

Less than 48 hrs @panspandasuk.bsky.social to make 30,000 + break the cycle of misdiagnosis + late treatment damaging the lives of children with #PANS Please share #BigChristmasGive donate.biggive.org/campaign/a05... @mscaitlinmoran.bsky.social @drnighatarif.bsky.social @stephenfry.bsky.social

submitted 92 days ago • 0 comments

Thank You for Joining Our Teacher Training Session! A big thank you to everyone who attended our teacher training session yesterday! Your engagement and dedication are truly inspiring. Here are the details for our next teacher training sessions: panspandasuk.org/events/

submitted 93 days ago • 0 comments

Children with @panspandasuk.bsky.social can have their childhood consumed by crippling OCD. All donations given over the next few days are doubled by the Big Give. Please share. donate.biggive.org/campaign/a05... @stephenfry.bsky.social @staceysolomon.bsky.social @lizzobeeating.bsky.social

submitted 93 days ago • 0 comments

We're over halfway through our Big Give Christmas Challenge and we've been blown away by the response so far! Thank you ❤️ But we still have a way to go to reach our goal of creating lasting positive change for PANS and PANDAS. donate.biggive.org/campaign/a05...

submitted 93 days ago • 0 comments

#EP #Edusky Need a new podcast? #PansPandasHour Stay curious! 🫶🏻 podcasts.apple.com/gb/podcast/p...

submitted 94 days ago • 1 comment

@panspandasuk.bsky.social remain the only UK charity dedicated to improving life chances of kids with immune mediated neuropsych conditions These kids face the often over night impact of brain inflammation. It is scary. Every penny donated this week gets doubled. donate.biggive.org/campaign/a05...

submitted 96 days ago • 0 comments

A HUGE thank you to The Quilter Foundation We are thrilled to announce that PANS PANDAS UK has been chosen to receive a grant from The Quilter Foundation’s Local Community Fund. To find out more about The Quilter Foundation, please visit plc.quilter.com/about-us/the...

submitted 96 days ago • 0 comments

Our next CPD-accredited teacher training session is on Thursday the 5th. This is your chance to enhance your knowledge and make a real difference for children and families dealing with PANS PANDAS. Register now: panspandasuk.org/events/ #TeacherTraining #CPDAccredited #PANS #PANDAS

submitted 96 days ago • 0 comments

#EduSky #EP @georginadurrant.bsky.social and @panspandasuk.bsky.social have produced the most wonderful podcast for anyone just starting on their upskilling PP journey! www.twinkl.co.uk/resource/sen...

submitted 97 days ago • 0 comments

PANS PANDAS UK welcomes yesterday's announcement from the UK Government of the UK Neuro Forum, a UK wide initiative to address gaps in treatment and care for people affected by neurological conditions. panspandasuk.org/post/uk-gove...

submitted 100 days ago • 0 comments

#PansPandasHour welcome @panspandasuk.bsky.social to 🦋plz show them 🫶🏻+ add this amazing charity who support 👧🏼 with 😱neuropsych conditions. @stephenfry.bsky.social @daltmann.bsky.social @binitakane.bsky.social @1goodtern.bsky.social @frankcottrellboyce.bsky.social @michaelrosenyes.bsky.social

submitted 101 days ago • 0 comments