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blueforpwme.bsky.social
🇬🇧DxwM.E.1995 ex dancer,lifeguard, performer now working on writing my 1st novel to rep #pwME! I’m a dreamer,nature lover & surfer 🏄‍♂️🛹a few times a year if I’m lucky Many undiagnosed comorbidities! Ie LC.POTS.MCAS.DYSAUTONOMIA.EDS. GASTRO.ADHD.CHIARI/SPINAL🦋
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#pwME #UK #DeliveryPlan #MyalgicEncephalomyelitis Have you seen this?

submitted 13 days ago • 0 comments

The M.E. Friendly Hospital Charter should be included in the Delivery plan UK It would be nonsensical to utilise this ready to go brilliant document … the work has been done! drive.google.com/file/d/1Kgfc...

submitted 13 days ago • 1 comment

Thank you to all the wonderful contributors from the M.E community! L🩵Ve & Light to you all Here’s hoping 2025 will bring us wonderful news, compassionate allies and more hope than we’ve ever had before from those working behind the scenes on the science. www.thriftvip.co.uk/articles/on-...

submitted 22 days ago • 0 comments

My latest article which is Part 2 On The Subject of Wintering This article was inspired by the book ‘Wintering’ by Katherine May (2020) and studies the term in relation to those with the disease, MyalgicEncephalomyelitis, or M.E. #MyalgicEncephalomyelitis www.thriftvip.co.uk/articles/on-...

submitted 23 days ago • 3 comments

Phew! I’ve finally finished my article P2 On The Subiect of Wintering To celebrate the Lunar New Year …with solidarity to all #pwME It’s very long and at least a 30-40 minute read with lots of links & who knows if any of it will be useful but it’s out there now. Thanks for your contributions 🩵

submitted 23 days ago • 1 comment

So grateful for Niko’s permission add a few beautiful images and text to my next article… hopefully sharing by the end of this week…. Thank you 🩵

submitted 26 days ago • 2 comments

HRT has definitely made some differences for me and many of us been saying this for decades but they prefer us to suffer. Pushing for HRT might help many more!

submitted 28 days ago • 0 comments

#BigGardenBirdwatch …. Managed just over an hour out on Saturday… quarantines in place here for North Yorkshire to keep birds indoors. Really hope we witness a H5N1 free year, especially after the Puffins we’re at risk only a year or 2 ago I’m Northumberland 🙏🏼 for the wild birds 🦢

submitted 28 days ago • 1 comment

In a crash / rolling relapse since mid November- no end in sight constant new symptoms and crashing since infection. Whatever the f is going on I’ve no idea… reactivated EBV / infection causing constant relapsing /symptoms, who knows! Immune system rocked Will reply when able again Thanks 🩵🦋🩵🫶🏽🌟

submitted 35 days ago • 0 comments