bshuell.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

Disability Network West Michigan: "Let's talk Long COVID: Part 1" w/Dr. Walter Koroshetz, NINDS "You look at the symptoms that people w/Long COVID have and then you look at the symptoms for..ME/CFS, there's a gigantic overlap" "We have a lot of work to do" disabilitynetworkwm.org/resource/let...

submitted 1 hour ago • 1 comment

submitted 3 days ago • 0 comments

An overview of #mecfs and some of the misinformation about exercise propagated by the PACE trial.

submitted 5 days ago • 0 comments

It was 10 years ago today at 5:20am that my life was uprooted. Only 11 minutes into my typical morning run, I collapsed. During the following days and weeks that I tried to keep going, I got sicker. Today, I am still sick. Today is my 10th #MECFS Ill-aversary. 10 years > 20% of my life. #neisvoid

submitted 8 days ago • 1 comment

Press release for Australian research (funded by ME Research UK): "Large hippocampus detected in Long COVID and ME/CFS patients" news.griffith.edu.au/2025/02/11/l... #MEcfs #LongCovid

submitted 16 days ago • 2 comments

RFK Jr is officially HHS secretary. What do we do now? Thoughts with @kkjetelina.bsky.social on what may be coming and how we should respond: yourlocalepidemiologist.substack.com/p/rfk-jr-is-...

submitted 13 days ago • 33 comments

You know Kate Winslet in Contagion? Where she runs into a hot zone, risking her life, so Americans could be safer? She was an EIS officer. That’s who was just fired at CDC today. EIS officers. And many, many more public servants fighting every day for your health.

submitted 12 days ago • 41 comments

Griffith University: 'Large hippocampus detected in Long COVID and ME/CFS patients' '..published today in PLOS ONE, used only 1 of 2 ultra-high field MRI machines available in Australia to uncover how Long COVID & ME/CFS similarly impact brain structure' news.griffith.edu.au/2025/02/11/l...

submitted 16 days ago • 2 comments

The Guardian: “Trump administration to cut billions in medical research funding” National Institutes of Health said the $4bn loss will affect ‘indirect’ funding of buildings, equipment and staff www.theguardian.com/us-news/2025...

submitted 18 days ago • 0 comments

Hilda Bastian writes: "I’m a founder of the organization, and in its three decades, I have never been in such public conflict with it. However, it became inevitable as Cochrane veered away from its principles of openness, responsiveness to criticism, and accountability." #MECFS #Cochrane

submitted 21 days ago • 0 comments

Contacting your congressional members is easy. Didn't vote for them? Even better reason to reach out to them. They truely want to know how to serve their constituents. Not using your voice is no better than not having one. www.senate.gov/senators/sen... www.house.gov/representati...

submitted 21 days ago • 0 comments

CIDRAP: “Pediatric long-COVID levels hold steady in US, result in activity limitations” www.cidrap.umn.edu/covid-19/ped...

submitted 22 days ago • 0 comments

www.livescience.com/health/coron...

submitted 23 days ago • 0 comments

NIH must address the twin crises of long Covid and ME/CFS — together www.statnews.com/2025/02/04/r... via @statnews.com

submitted 23 days ago • 0 comments

Rewarding people for being able to show up every day makes me cringe. There are many kids who can't show up every day because they are chronically Ill. Those kids are involuntarily missing out on their life.

submitted 34 days ago • 0 comments

'Canceled scientific meetings at NIH could impact hundreds of Rochester research projects' Mayo Clinic is the 2nd-largest recipient of NIH funding in MN. The Trump administration's freeze on meetings to review funding applications could have a downstream effect www.postbulletin.com/health/cance...

submitted 34 days ago • 1 comment

Research Professional News: 'Trump’s freeze on NIH causes alarm' 'An abrupt freeze on communications, travel and hiring for federal health agencies including the NIH by Trump’s administration is causing alarm and uncertainty among scientists' www.researchprofessionalnews.com/rr-news-usa-...

submitted 34 days ago • 0 comments

Trump freeze on NIH grant reviews alarms scientists, with long-term impact uncertain

submitted 34 days ago • 5 comments

New research from the US: Association between chronic fatigue syndrome/myalgic encephalomyelitis and cardiovascular disease www.nature.com/articles/s41... "Patients with CFS/ME need close evaluation for CVD [cardiovascular disease]" #MEcfs #CFS

submitted 37 days ago • 7 comments

🧵 Dismissed and Disbelieved, Some Long COVID Patients Are Pushed Into Psychiatric Wards There is some discussion of ME/CFS also time.com/7206080/long... #LongCovid #MEcfs 1/

submitted 42 days ago • 4 comments

Hope my Bluesky Debut post makes you giggle. 🙃💙

submitted 42 days ago • 2 comments

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Great piece. Thanks for your advocacy @rivkabluesky.bsky.social #longcovid #mecfs

submitted 42 days ago • 1 comment

submitted 44 days ago • 0 comments

Employee benefits attorney on the perils of #longcovid and LTD and health benefits denial.

submitted 49 days ago • 0 comments

Extended antiviral use may help #longcovid

submitted 49 days ago • 0 comments

Another article about a study that makes the assumption that all calories are equal (regardless of their macros) and fat is bad and must be avoided. These ideas, which have influenced nutrition for over 45 years, have driven obesity and T2 diabetes.

submitted 51 days ago • 1 comment

Two years is an eternity for young people, and that means 30% are sick beyond two years #longcovid

submitted 55 days ago • 1 comment

#MEAction is a nonprofit fueled in large part by small donors! If you value our #MECFS & #LongCOVID work, I hope you'll make a donation & share as we close out the year. I'm so proud of what we have accomplished together, and determined to fight even harder in the year to come meaction.net/donate

submitted 57 days ago • 3 comments

submitted 59 days ago • 0 comments

Who knew? - Compassion confers an evolutionary advantage. 🤷🏼😇🤷🏼

submitted 62 days ago • 5 comments

submitted 64 days ago • 0 comments

Just a big ol’ bag of empathy for everyone else stuck in bed for most or all of the holidays❤️❄️

submitted 65 days ago • 0 comments

#LongCovid segment starts at about 7 minutes in. "The National Institutes of Health recently announced it's investing $300 million dollars to research treatments for long COVID."

submitted 66 days ago • 0 comments

Here is our Rapid Response to that hugely problematic BMJ review of treatments for #LongCovid Delighted to have contributed with @ellecarnitine.bsky.social, @fvrhijn.bsky.social, @lauravictorine.bsky.social, and Xandra Westerhuis We need to learn from the history of #MECFS

submitted 83 days ago • 14 comments

Thank you for the chance to sit down and discuss the potential for PEM in rheumatological conditions for your feature in @medscape.bsky.social, @miriametucker.bsky.social. As you note, not all fatigue is PEM, even though it might initially screen positive on the DSQ. www.medscape.com/viewarticle/...

submitted 68 days ago • 4 comments

submitted 69 days ago • 0 comments

Have long COVID? Here's what to know about disability insurance wisconsinwatch.org/2024/12/long...

submitted 69 days ago • 0 comments

Prevalence of PCC: Approximately 8.4% of U.S. adults reported having experienced PCC at some point, with 3.6% currently affected. #longcovid

submitted 69 days ago • 0 comments

#mecfs

submitted 71 days ago • 0 comments

Here's the analysis comment I sent to the Cochrane group that was supposed to be looking at this review, which I sent in early 2020: lucibee.wordpress.com/2020/06/04/u... I still have no idea whether this was even considered by Cochrane, or just ended up in the bin. :(

submitted 73 days ago • 3 comments

1) Some background on the ongoing Cochrane saga... In 2019, several patients and researchers had pointed out flaws in the exercise review for CFS and asked these to be corrected or withdrawn.

submitted 73 days ago • 3 comments

Seems plausible that a stellate ganglion block could help those with #mecfs as well as #longgcovid youtube.com/shorts/ndhu7...

submitted 72 days ago • 1 comment