buttahflyk.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

A really important email from my friend Senator @chrismurphyct.bsky.social . As he says "this is a 5 alarm fire." America is under attack right now.

submitted 4 hours ago • 215 comments

The writers in Kaleidoscope #RareDisease Stories show strength, courage, creativity, and, even through fear, hope. ~🦋 https://a.co/d/3HxjJ6P Proceeds donated to NORD #CCI #FND #glossodynia #hEDS #MCAS #OTCS #STC #SUNCT #CVID #NelsonSyndrome #FCAS #ChronicIllness #Rare #SpoonieSky #ZebraStrong

submitted 19 hours ago • 0 comments

For anyone struggling with #ImposterSyndrome: {Text reads "If you have to wonder whether you're faking or not, that means you aren't faking. Faking is something you do intentionally. You will know if you're faking because you will have consciously and purposefully chosen to do so."} ~🦋 #SpoonieSky

submitted 1 day ago • 0 comments

Tried to say f🤬ck in a text to a friend, but my phone autocorrected — but not to duck, as is so often the case. It changed it to ... "f🤬ckerberg" 😂😂😂 ~🦋

submitted 1 day ago • 0 comments

I know things are bleak and scary right now. But I promise you that you - yes YOU - can get through this. You don't have to fight all of this on your own. Find one person you can help, and help them. Make the life of one person better every day. Hold onto your joy. That's how we win.

submitted 1 day ago • 78 comments

"I'm a person who wants to do a lot of things trapped in a body that doesn't." I've seen that quote many times, and it resonates so deeply -- especially now. ~🦋 #ChronicIllness #RareDisease #RareDiseaseDay #sarcoidosis #SarcStrong #SpoonieSky #ZebraStrong

submitted 1 day ago • 0 comments

#RareDiseaseDay is just 1 week away – the perfect time to check out Kaleidoscope #RareDisease Stories! Celebrate the #rare warrior in your life by reading our stories & learning our experience! Available at https://a.co/d/8EU1ter *Proceeds donated to NORD ~🦋 #BookSky #ChronicIllness #SpoonieSky

submitted 1 day ago • 0 comments

The writers in Kaleidoscope #RareDisease Stories show strength, courage, creativity, &, even through fear, hope. ~🦋 https://a.co/d/3HxjJ6P Proceeds donated to NORD #CREST #sarcoidosis #FAP #ShortBowelSyndrome #TurnerSyndrome #PustularPsoriasis #ChronicIllness #Rare #SpoonieSky #ZebraStrong

submitted 2 days ago • 0 comments

We will not be silenced by Trump or Musk or anyone in the fascist Republican Party. 👏🏼👏🏼🩷👏🏼👏🏼

submitted 3 days ago • 9 comments

Wtf?!?! These are becoming like school shootings or PD killing innocent black men – they happen so often I can't keep up! ~🦋

submitted 3 days ago • 0 comments

The writers in Kaleidoscope #RareDisease Stories show strength, courage, creativity, &, even through fear, hope. ~🦋 https://a.co/d/3HxjJ6P Proceeds donated to NORD #PrimaryLateralSclerosis #PulmonaryHypertension #SpinalMuscularAtrophy #sarcoidosis #ChronicIllness #Rare #SpoonieSky #ZebraStrong

submitted 4 days ago • 0 comments

Funny 'cause it's true. ~🦋 #ChronicIllness #SpoonieSky

submitted 4 days ago • 0 comments

The writers in Kaleidoscope #RareDisease Stories show strength, courage, creativity, and, even through the fear, hope. ~🦋 https://a.co/d/3HxjJ6P Proceeds donated to NORD #CSF #hEDS #MCAS #CMT1A #PulmonaryFibrosis #Scleroderma #ChronicIllness #Rare #SpoonieSky #ZebraStrong

submitted 5 days ago • 0 comments

"I don't care if you need a #wheelchair for a day, a month, or the rest of your life, if you need it to improve your... daily life, use it. We don't question people who drive a kilometer to school or shops when they can walk. Don't question people who use a wheelchair because walking is difficult."

submitted 5 days ago • 0 comments

You're doing your best. Even if it's been hard or even terrible, the fact that you're getting through it one day at a time is incredible.

submitted 6 days ago • 19 comments

Coming Soon: #SmallFiberNeuropathy in #Sarcoidosis Webinar Wednesday, February 19th, 8PM EST Dr. Paula Barreras, Neurologist & Neuroimmunology Expert Register at us02web.zoom.us/webinar/register/WN_OpQ6llfLTUm6hZeU3t8BwA ~🦋 #LifeAndBreathFoundation #ChronicIllness #SpoonieSky #SarcLife #SarcStrong

submitted 5 days ago • 0 comments

Kaleidoscope #RareDisease Stories writers show strength, courage, creativity, &, even through the fear, hope. ~🦋 https://a.co/d/3HxjJ6P Proceeds donated to NORD #sarcoidosis #HypertrophicAngioEdema #Addisons #CorticotrophAdenoma #cEDS #MCAS #ChronicIllness #Rare #SpoonieSky #ZebraStrong

submitted 5 days ago • 0 comments

Seriously? "When was the last time a woman was told 'You can't do this?" Ummm ... November 5th? Every day since Jan 20? ~🦋

submitted 6 days ago • 1 comment

Listen I know shit sucks but PLEASE find the things that make you happy and keep doing them. It is not frivolous. It is how you survive.

submitted 6 days ago • 100 comments

I generally file these under "They mean well, BUT" ~🦋 #ChronicIllness #SpoonieSky

submitted 6 days ago • 0 comments

Hey @suzyszasz.bsky.social ... I was wondering - are you going to AF Pathways next month? ~🦋

submitted 6 days ago • 1 comment

"It’s disgusting and, frankly, counterproductive to point out that I voted for this. To imply that I had personal free will and agency when I walked into a voting booth and picked Mayor Bomberman is insulting." Bravo, @mikedrucker.bsky.social. Nicely done. ~🦋

submitted 6 days ago • 0 comments

The Kaleidoscope #RareDisease Stories writers show strength, courage, creativity, & even through fear, hope. ~🦋 Available at https://a.co/d/3HxjJ6P Proceeds donated to NORD #HypertrophicCardiomyopathy #RSD #CRPS #TrigeminalNeuralgia #neurosarcoidosis #ChronicIllness #Rare #SpoonieSky #ZebraStrong

submitted 7 days ago • 0 comments

Kaleidoscope #RareDisease Stories features true stories from people with a variety of #rare diseases. ~🦋 Available at https://a.co/d/3HxjJ6P Proceeds donated to NORD #uveitis #JIA #PediatricCrohns #JuvenileDermatomyositis #FAVA #VAMP2 #BookSky #ChronicIllness #SpoonieSky #ZebraStrong

submitted 7 days ago • 0 comments

Disability is not a moral failing. Health is never a guarantee. Instead of judging those who are sick, help them. Fight for better social supports. Wear a mask. Push back on ableism. Give to mutual aid. Give help freely & without strings and don’t make people beg.

submitted 8 days ago • 5 comments

submitted 8 days ago • 22 comments

What a wonderful Valentine's Day! Carnivore hubby took me to Planta Queen vegan restaurant (sooooo yum!) & then to see #Romeo+Juliet on Broadway - unique twist on a classic tale, with some POWERFUL performances - loved it! What can I say? I'm a lucky girl! I love you, @obiwongkenobi.bsky.social! ~🦋

submitted 8 days ago • 1 comment

It is perfectly legal to know your rights and to educate others about them, too. EVERYONE in the United States, citizen or not, has rights. I will not allow this administration to intimidate us from helping you know about them. Here’s our shareable guide ⬇️: (pt. 1/2)

submitted 8 days ago • 1909 comments

This one's not subtle. 🦋

submitted 8 days ago • 0 comments

Seriously, creative folks: Don't be afraid to let people know your stuff is out there for them, or worry that "now is not the time for that." People are stressed and freaked out and looking for the things that will give them a moment of rest and joy. It is EXACTLY the time for what we do. Tell them.

submitted 9 days ago • 885 comments

Oops! Posted yesterday w/I the pic! Wearing my new #HellsKitchenBroadway NY hoodie & fave patchwork jeans, and all the accessories to match! Feelin' the 💙🩵💙 head to toe with blue/butterfly glasses, mask, bracelets, & shoes ~🦋 #ALEXandANI #KedsStyle #WearPair #ImStillMasking😷 #AlwaysCoordinated😘

submitted 8 days ago • 1 comment

Great idea! @petebuttigieg.bsky.social is such a great communicator, and we all need to hear the voice of reason right now. ~🦋

submitted 9 days ago • 0 comments

Happy #ValentinesDay! Whether you're celebrating with a partner, with family, or with friends you adore, don't forget to save a little love for yourself, too! ~🦋

submitted 9 days ago • 0 comments

#Neuro appt today. Doc is concerned about my frequent falls. Watched me walk (normally + on toes + on heels) & thinks likely #LargeFiberNeuropathy (I've already got #SFN). #EMG in a few weeks. Happy to do tests to get answers, but I remember this one was painful. 😣 ~🦋 #ChronicIllness #SpoonieSky

submitted 9 days ago • 0 comments

Have you noticed you’re flaring more often? It might be the state of the world & the fact that whenever we’re on social media we’re invariably flooded with bad news It’s unrelenting & even when we unplug, our bodies still know there’s a threat My latest is a guide to saving spoons on social media:

submitted 11 days ago • 6 comments

I still call it the Tappan Zee Bridge. Of course I'm still gonna say Gulf of Mexico. ~🦋

submitted 10 days ago • 0 comments