coffeeandresearch.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

On this day in 2010, Canada ratified the UN CRPD. #disability #disabilityrights #canada #cdnpoli /1

submitted 16 hours ago • 1 comment

Much of my writing has been about how having real world responsibility matters I am not saying this message below is enough, but for the first time in his life, RFK can’t wish away measles as a hoax. Reality forced his hand. I am sure he didn’t want to do this.

submitted 9 days ago • 1 comment

Provinces must work together to eliminate barriers for persons with disabilities quoimedia.com/new-report-s... #canada

submitted 11 days ago • 0 comments

#patientengagement

submitted 14 days ago • 1 comment

For anyone navigating the world of patient engagement, a recording of a panel I was recently on has just been released. I recommend checking it out. www.child-bright.ca/event-listin...

submitted 14 days ago • 0 comments

Google has released a new AI tool that it says will give scientists 'superpowers' by assisting with literature searches and generating new hypotheses, but does it live up to the hype?

submitted 19 days ago • 3 comments

Ooof. That last statement resonates with me after finishing Apple Cider Vinegar on Netflix.

submitted 20 days ago • 0 comments

Wow how come no one tried this yet?

submitted 20 days ago • 17 comments

The CPHO put out an official report "Realizing the Future of Vaccination for Public Health". I'm pleased to see lack of access for disabled people mentioned as one of the barriers associated with vaccine uptake. /1

submitted 21 days ago • 1 comment

FEB. 19 | Are yo using social media to recruit research participants, engage partners w/lived & living experience, assess #PatientOrientedResearch priorities, or connect w/other health care professionals? You won’t want to miss this: www.child-bright.ca/event.../wha... @coffeeandresearch.bsky.social

submitted 21 days ago • 0 comments

The experience of partnering with researchers is one that many find to be both hard work and personally gratifying. Have questions about family engagement? Leave it in the comments.#patient #healthcare #research #science #patientengagement #familyengagement

submitted 29 days ago • 0 comments

💔 The disparity in #ChildhoodCancer cure rates is staggering: 📈 More than 80% cure rate in high-income countries 📉 Less than 30% in most low- & middle-income countries. Ensuring equal access to care is the key to saving lives 👉 bit.ly/4hPDeWN

submitted 29 days ago • 2 comments

"The best and the worst thing about vaccination is that it 'makes nothing happen.' A child successfully inoculated against measles doesn’t fall sick with that condition, doesn’t miss school, doesn’t go to the hospital. They don’t suffer life-changing complications. They don’t die prematurely."

submitted 29 days ago • 265 comments

Here is how we know that vaccines do not cause autism www.statnews.com/2025/02/03/v...

submitted 36 days ago • 0 comments

Alberta Released a #COVID19 Report Full of Pseudoscience. Who Wrote It, and Why? Donald Trump’s NIH pick was among the authors of a report that recommended discontinuing the widespread use of COVID-19 vaccines, by @nicktsergas.ca substack.com/home/post/p-... via @canadahealthwatch.bsky.social

submitted 39 days ago • 9 comments

Oh this makes my bereaved mom heart happy.

submitted 39 days ago • 0 comments

Ditto for those of us who don't have kids! #ableg

submitted 39 days ago • 0 comments

110%

submitted 39 days ago • 0 comments

Alberta government axes AHS board — again — in latest health reform move. Health ministry to directly hire CEO for diminished Alberta Health Services, by @markusoff.bsky.social www.cbc.ca/news/canada/... via @cbcnews.ca

submitted 39 days ago • 7 comments

Even if your children are abled, please continue to write the education minister and remind them that education is a human right for all kids. #abpoli

submitted 39 days ago • 0 comments

My many years of disability advocacy have highlighted the shocking disparities between provinces. Its been especially heartbreaking to watch the UCP dismantle FSCD, a system people used to move here for, as well as our health care and public education. We need federal oversight.

submitted 41 days ago • 1 comment

If you’re a #Canadian with an invested interest in #disability policy, this may be of interest. A report was released today with an interest in creating a baseline for tracking the development and state of disability policies in #Canada province by province. kidsbrainhealth.ca/disability-p...

submitted 41 days ago • 1 comment

I took my mother to the Aging Well clinic. I masked; she asked if she should. I explained that it wasn’t required, but it was definitely a good idea, since so many viruses are circulating. She put on a KN95 I found in her purse. 1/

submitted 43 days ago • 3 comments

I think some people hear “grants” and think that without them, scientists and government workers just have less stuff to play with at work. But grants fund salaries for students, academics, researchers, and people who work in all areas of public service. “Pausing” grants means people don’t eat.

submitted 43 days ago • 1659 comments

Five years ago today, Jan. 25, 2020, Canada's first case of SAR-CoV-2 was confirmed, a 50-year-old Toronto man who just returned from Wuhan, China. He was treated at Sunnybrook. Since then, more than 60,000 Canadians have died of #COVID19. www.thestar.com/news/gta/how...

submitted 46 days ago • 8 comments

Bluesky’s science takeover: 70% of Nature poll respondents use platform www.nature.com/articles/d41...

submitted 47 days ago • 0 comments

Canada is up for review with their obligations associated with the United Nations Convention on the Rights of Persons With Disabilities in the beginning of March. As a signatory country they’re privy to a four year cycle of assessment. #CRPD

submitted 47 days ago • 1 comment

Here is my interview with @bernicecb.bsky.social yesterday about our new study focusing on pediatric cancer and lived experiences Thanking Bernice for her wonderful interview skills and this opportunity, as always ❤️ #NewfoundlandAndLabrador #PediatricCancers www.cbc.ca/listen/live-...

submitted 48 days ago • 1 comment

Elizabeth Warren: "This disclosure shows that R.F.K. Jr. made millions off of peddling dangerous anti-vaccine conspiracies" "Even worse, if he is confirmed, his finances will still be tied to the outcomes of anti-vaccine lawsuits — even as he’d be tasked with regulating them as health secretary.”

submitted 48 days ago • 0 comments

Another disability advocacy organization says its funding has been cut by the Alberta government. calgaryherald.com/news/politic... #Alberta #abpoli

submitted 48 days ago • 3 comments

I was invited by @pxphub.bsky.social to write about how to make partnering in research work for me with a #chronicillness #PatientEngagement pxphub.org/attending-in...

submitted 49 days ago • 0 comments

Watching the livestream of “How healthy is Canada’s Information Environment? Action in the Face of Misinformation” Excellent talk! One thing that is top of mind for me is building our skills in how we interact with that environment. Health literacy is one thing. Comprehension is another.

submitted 50 days ago • 0 comments

They really do need to see this.

submitted 50 days ago • 0 comments

Risk of death more than doubles with long emergency waits, analysis shows www.bmj.com/content/388/...

submitted 50 days ago • 0 comments

That article was a truly bizarre read.

submitted 50 days ago • 0 comments

Oxfam recently put out a report on unjust poverty and how wealth has skyrocketed to unprecedented levels. www.oxfamamerica.org/explore/rese...

submitted 51 days ago • 0 comments

Why is health misinformation on social media dangerous? www.cma.ca/healthcare-f...

submitted 51 days ago • 0 comments

Five people are expected to amass at least $1 trillion in wealth within the next decade, if current trends continue, according to Oxfam’s annual inequality report, released Sunday. cnn.it/42k7iW4

submitted 51 days ago • 105 comments

100% agree. We need to do much better at infusing the science in our libraries in people’s daily lives & that translations starts with improved #scicomm

submitted 52 days ago • 0 comments

Just listening to @fionamattatall.bsky.social talking about vaccines and pregnancy for Science Up First. ❤️ www.instagram.com/reel/DEz92CL...

submitted 52 days ago • 0 comments

Social media is the new public health frontline. Let’s treat it that way. We must give influencers tools and training to deliver accurate health information. harvardpublichealth.org/tech-innovat...

submitted 53 days ago • 0 comments

This is so profoundly disappointing.

submitted 53 days ago • 0 comments

We have almost no domestic vaccine manufacturing capacity in Canada: one Sanofi plant in Toronto, that’s it It was supposed to change during the pandemic but it didn’t. Most of our vaccines come from the IS, which suddenly doesn’t feel like solid bedrock

submitted 53 days ago • 15 comments

If you're 18+ in Canada and have experienced cybercrime, a researcher at VIU is looking for participants to answer a 25- to 30-minute survey to learn more about cybercrime's psychological impacts. Details: www.surveymonkey.com/r/XDRVMDG

submitted 58 days ago • 0 comments