creakyjoints.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

Thinking About a Clinical Trial? Here’s What You Need to Know! Clinical trials are the bridge between lab research & real-world impact, studying the safety & effectiveness of new investigational treatments! 🔗 Dive in! creakyjoints.org/about-arthri... #Lupus #ClinicalTrials #LupusAwareness

submitted 3 days ago • 0 comments

#TheHealthAdvocates, we’re joined by Kevin Stephens, a weight loss surgery patient, and an active advocate with the Obesity Action Coalition. We discuss the importance of health insurance coverage and reducing barriers to accessing treatment. Tune in now: omny.fm/shows/the-he... #BlackHistoryMonth

submitted 4 days ago • 0 comments

Breast surgical oncologist and president of the Black Physicians' Association of Ontario, Dr. Mojola Omole, joins us to talk about her advocacy work. She shares how she aims to reduce systemic barriers and racism in medicine and support Black mental health. omny.fm/shows/the-he... #BlackHistoryMonth

submitted 6 days ago • 0 comments

Pain isn’t always visible, struggles aren’t always understood. But your journey matters, and your resilience is seen. You made it one more day! Sending love to everyone fighting an unseen battle. 💙

submitted 7 days ago • 0 comments

New #TheHealthAdvocates, we welcome Brindley Brooks, founder and executive director of HS Connect. She shares her powerful journey living with #HidradenitisSuppurativa Tune in here: ghlf.org/the-health-a...

submitted 10 days ago • 0 comments

Adults with #osteoarthritis are at an increased risk for falls and fall-related injuries. Learn how you can take action to protect yourself in our latest edition of the #StandUp2OA Biweekly Digest! mailchi.mp/unc/standup2... @ncoaging.bsky.social @creakyjoints.bsky.social

submitted 11 days ago • 0 comments

This articles provide tips to process emotions when living with #ChronicPain and much more. My favs are : 1. Honor your limitations and kindly meet the needs of your body in the moment. 2. Give yourself time to move through the frustration of living with chronic illness. Read to learn more ❣️

submitted 13 days ago • 0 comments

“The whirlwind of #chronicillness will always exist & I can only #control so much. I must find #peace with some of it and ask for help and #support when I need it: from friends, family, or #healthcare professionals": https://buff.ly/4aPxg4Q from @creakyjoints.bsky.social @chroniceileen.bsky.social

submitted 12 days ago • 0 comments

The Chronic Version of Me... ghlf.org/endometriosi... #BlackHistoryMonth #Endometriosis

submitted 13 days ago • 0 comments

“I wasn’t oblivious to #arthritis, but I was not aware of the severity..I never imagined needing to worry abt the #diseases often mentioned in pharmaceutical commercials, w their daunting list of #sideeffects": https://buff.ly/43tEkA3 @creakyjoints.bsky.social @chroniceileen.bsky.social #RA #spoonie

submitted 14 days ago • 0 comments

After qualifying for the Olympic trials twice, Raquel’s diagnosis presented challenges that got in the way of her athletic lifestyle. Wanting no one else to feel alone in their journey, she founded Lupus In Color to support people living with lupus. omny.fm/shows/remiss... #BlackHistoryMonth

submitted 13 days ago • 0 comments

“The impt distinction, the researchers found, was that “being” a #parent is distinct fr “doing” #parenthood tasks..jz bcos u can’t always do the latter..doesn’t mean u can’t provide the essentials #children need from their #parents": https://buff.ly/2X0NzeQ via @creakyjoints.bsky.social #RA

submitted 17 days ago • 0 comments

New episode of #TheHealthAdvocates podcast! For #BlackHistoryMonth, we’re joined by Dr. Georges Benjamin, Executive Director of the APHA to discuss health equity, community advocacy & the future of public health. Listen now: ghlf.org/the-health-a... #PublicHealth #HealthEquity #BlackVoicesInHealth

submitted 15 days ago • 0 comments

“We work on strategies that assist in accomplishing daily tasks in a more #efficient manner, by combining or eliminating steps, doing activities at a slower pace, &/or spreading the activity over several days": https://buff.ly/4fuwUTy via @creakyjoints.bsky.social #spoonie #ChronicIllness #pacing

submitted 18 days ago • 0 comments

The Color of My Skin Shouldn’t Determine the Quality of Treatment I Get… creakyjoints.org/support/rheu...

submitted 19 days ago • 0 comments

Tips for exercising with Rheumatoid Arthritis: creakyjoints.org/about-arthri... @chroniceileen.bsky.social

submitted 20 days ago • 0 comments

“Sometimes looking dressed is #misinterpreted as feeling well & symptoms are ignored or are seen as less than they are..One male #doctor actually said ‘well, you could do your hair; can’t be that bad.””: https://buff.ly/3U7HSGp via @creakyjoints.bsky.social #NEisvoid #ChronicIllness #spoonie

submitted 22 days ago • 1 comment

If you’re considering a discount weight-loss injection like the one from Hims you just saw on a #SuperBowl ad, check out the safety profile first and get comfortable using a syringe rather than an auto-injector. Learn more: www.businesswire.com/news/home/20...

submitted 22 days ago • 0 comments

“Sharing my story has brought me a sense of #community & #understanding. But I also want to acknowledge the darker side of #socialmedia. It’s a space where #misinformation and harmful advice can thrive": https://buff.ly/4ezd6yu via @creakyjoints.bsky.social @chroniceileen.bsky.social #ChronicIllness

submitted 24 days ago • 0 comments

This Black History Month, we honor the powerful and lifechanging contributions of Black communities in healthcare, advocacy, and beyond. Your voices, stories, and legacies inspire change, courage, and strength. ✊🏾🖤 Visit: ghlf.org/black-histor...

submitted 28 days ago • 0 comments

Special Episode: A Heated Debate on Science and Policy with HHS Nominee Robert Kennedy Jr. #TheHealthAdvocates break down the recent Senate hearings for HHS nominee Robert Kennedy Jr. ghlf.org/the-health-a...

submitted 29 days ago • 0 comments

What exactly is IgG4-RD, who gets it, and what are the challenges with diagnosis? creakyjoints.org/igg4-rd-guid... If you've been diagnosed, we'd love to hear your story. DM us or email [email protected] to get in touch. #IgG4 #Misdiagnosis

submitted 32 days ago • 0 comments

#vaccineswork

submitted 33 days ago • 0 comments

Things you should never say to someone living with Arthritis: creakyjoints.org/about-arthri... @chroniceileen.bsky.social

submitted 35 days ago • 0 comments

🎙️ New Healthcare Matters Join Seth Ginsberg, GHLF President, for a critical conversation on vaccines, trust, and public health. Tune in: ghlf.org/healthcarema... #HealthcareMatters #VaccinesWork #PublicHealth

submitted 35 days ago • 0 comments

Everyone deserves compassionate and affordable care. That’s why we are supporting the Centers for Medicare and Medicaid Services (CMS) Proposed Rule to expand coverage for obesity medications under Medicare Part D and state Medicaid programs. #CMS #ObesityCare #ObesityPolicy

submitted 36 days ago • 0 comments

If you’re trying to eat better to help better manage your #osteoarthritis, our friends at @creakyjoints.bsky.social have compiled these practical and proven habits for better nutrition and easier meal prep: bit.ly/3G6UgMS #healthyweightweek

submitted 38 days ago • 0 comments

Navigating obesity care can be frustrating, especially when insurance hurdles stand in the way of treatment. Have you faced challenges like this? Share your story to raise awareness and support the CMS Proposed Rule to expand coverage for obesity medications. #CMS #ObesityCare #ObesityPolicy

submitted 40 days ago • 0 comments

We support this rule! Make your voice heard by emailing us at [email protected]. #CMS #ObesityCare #ObesityPolicy

submitted 42 days ago • 0 comments

How I Make Mornings Just a Little Easier with My Rheumatoid Arthritis: creakyjoints.org/about-arthri... @chroniceileen.bsky.social #MorningStiffness #RheumatoidArthritis

submitted 42 days ago • 0 comments

PMR is difficult to diagnose—that’s why we developed an online tool, PainSpot, to help patients and doctors recognize symptoms earlier." – Shilpa Learn how patient advocacy is transforming diagnosis & care for PMR. 📺 Watch: youtu.be/7H_x6dkiwy0 #PMR #PatientAdvocacy #DigitalHealth

submitted 44 days ago • 0 comments

“It wasn’t until I personally became #disabled that I truly grasped the concept of #ableism..I found myself belonging to one of the largest groups frequently subjected to #prejudice": https://buff.ly/3Q1KiEB from @creakyjoints.bsky.social @chroniceileen.bsky.social #inclusionMatters #ChronicIllness

submitted 44 days ago • 0 comments

Finding a care team that truly understands obesity as a chronic disease can be life-changing 💙 That’s why we’re supporting the CMS Proposed Rule to expand coverage for obesity medications under Medicare Part D and state Medicaid programs. #CMS #ObesityCare #ObesityPolicy

submitted 44 days ago • 0 comments

🎧 Dive into President Biden’s health care legacy with our latest episode: 💉 COVID vaccine rollouts 📉 Opioid crisis progress 💊 Lower drug prices As 2025 approaches, we discuss the next chapter in health care advocacy. Listen here: ghlf.org/the-health-a... #HealthCarePolicy #PatientAdvocacy

submitted 45 days ago • 0 comments

The Centers for Medicare and Medicaid Services recently introduced a Proposed Rule to expand coverage for obesity medications under Medicare Part D and state Medicaid programs. This is a critical step in acknowledging obesity as a chronic disease and improving access to care. #CMS #ObesityCare

submitted 46 days ago • 0 comments

As 2025 kicks off, GHLF works to lower costs and ensure access to treatment. This week, Steven Newmark testified to the NH Senate HHS Committee in support of SB17, advocating for insurers to count all payments toward deductibles, helping patients afford therapies faster. #HealthAdvocacy #SB17

submitted 46 days ago • 0 comments

What It Means When I’m in a Rheumatoid Arthritis Flare: creakyjoints.org/about-arthri... @chroniceileen.bsky.social

submitted 48 days ago • 0 comments

Let's work together to ensure that obesity care becomes a priority for all. Your voice matters! #CMS #ObesityCare #ObesityPolicy

submitted 48 days ago • 0 comments

Publication day! I love publication day. My latest @creakyjoints.bsky.social .Thank you Dr. Debaditya Roy for helping me with this essay. creakyjoints.org/about-arthri...

submitted 49 days ago • 0 comments

Join our PMR panel to drive change and shape the future of PMR education. DM us or email [email protected] to learn more. #PMR #PolymyalgiaRheumatica #Health

submitted 50 days ago • 0 comments

We’re proud to share our CJ YouTube channel has been awarded YouTube’s Health Badge Certification! This means our content is now eligible to appear in YouTube’s health content shelf, helping connect patients and caregivers to trusted, evidence-based health information. @seth-d-ginsberg.bsky.social

submitted 51 days ago • 0 comments

“Im a naturally vivacious person who happens to inhabit a #body w physical #limitations ..But I’ve learned that when yr used to living at an 8 on the #painscale, remaining constantly upbeat will not always get u far w some #doctors": https://buff.ly/3U7HSGp via @creakyjoints.bsky.social #ChronicPain

submitted 55 days ago • 1 comment

🎧 Season 8, Episode 1 of The Health Advocates is live! Join us for an empowering conversation with Nitika Chopra Founder of Chronicon, about navigating chronic illness and building community. 💬 Listen now: ghlf.org/the-health-a... #ChronicIllnessCommunity #HealthAdvocate

submitted 52 days ago • 0 comments

It Can’t Be that Bad? “Just because you can’t see it, doesn’t mean it can’t be serious. I also don’t need to be old for it to be debilitating. We need to step away from thinking arthritis isn’t a serious disease — it is.” - @chroniceileen.bsky.social #RheumatoidArthritis

submitted 55 days ago • 0 comments

“I spent all my time, money & energy into trying every suggestion or remedy I stumbled across online, hoping to feel better. In retrospect, I now realize I was moving through the stages of #grief”: https://buff.ly/4ezd6yu via @creakyjoints.bsky.social @chroniceileen.bsky.social #ChronicPain #RA

submitted 59 days ago • 0 comments

“I feed myself..I keep a giant water bottle on my desk and another next to my bed. I #stretch, even though I don’t really enjoy it": https://buff.ly/3AbD2B2 from @creakyjoints.bsky.social #SelfCare #spoonie #ChronicPain #ChronicIllness #SelfCareMatters

submitted 58 days ago • 0 comments

It Can’t Be That Bad? "Just because you can’t see it, doesn’t mean it can’t be serious. I also don’t need to be old for it to be debilitating. We need to step away from thinking arthritis isn’t a serious disease — it is." - @chroniceileen.bsky.social #RheumatoidArthritis

submitted 55 days ago • 0 comments

“Before my #diagnosis I had no idea what #mentalhealthcare could offer me & how much I needed that #compassion. Not all #healthcare providers who save you are patching up wounds or prescribing medication": https://buff.ly/4aPxg4Q via @creakyjoints.bsky.social @chroniceileen.bsky.social #psychologist

submitted 61 days ago • 1 comment

Here’s Why I Stopped Making New Year’s Resolutions After Having Rheumatoid Arthritis creakyjoints.org/living-with-... @chroniceileen.bsky.social

submitted 62 days ago • 0 comments

“So when others told me “it #CouldBeWorse,” it made me feel like a drama queen..I was embarrassed about how #arthritis was making me weak and dependent on others. I felt #guilty for needing help": https://buff.ly/4eckbnV via @creakyjoints.bsky.social @chroniceileen.bsky.social #BeKind #ChronicPain

submitted 65 days ago • 1 comment