curesarcoma.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

Join SFA for a discussion on public policy on Wednesday, March 19th, at 3 pm EST. This webinar will address the current public policy landscape and issues that impact the #sarcoma community. Learn how you can become involved in #advocacy! #CureSarcoma #CureSarcoma #cancer Register: buff.ly/RKVVv79

submitted 17 hours ago • 0 comments

Today is a day to honor and appreciate caregivers! We acknowledge the unwavering commitment of those providing support to individuals with #sarcoma. Take a moment today to express gratitude to the caregivers in your life. Your encouragement truly makes a difference. #CureSarcoma #cancer

submitted 21 hours ago • 0 comments

Connect with others who understand. The Sarcoma Stories podcast shares real experiences and offers a sense of community for those impacted by #sarcoma. Listen now and join our Sarcoma Stories Facebook: buff.ly/mxijD36 #CureSarcoma #cancer

submitted 1 day ago • 0 comments

Hobbies can be a great way to cope with challenges. Share a photo or video of your hobby that brings you peace or helps you manage stress. (Tag us or share in the comments!) #sarcoma #CureSarcoma #cancer

submitted 2 days ago • 1 comment

Even though #sarcoma is rare, hope is not. SFA has invested over $24M in sarcoma research, leading to breakthroughs and new treatment options. On Rare Disease Day, we reaffirm our dedication to improve outcomes for people diagnosed with sarcoma to increase the number of survivors. #RareDiseaseDay

submitted 3 days ago • 0 comments

Rare Disease Day urges us to take action. Explore more about #sarcoma, support research, and advocate for change. Visit curesarcoma.org to see how you can make a difference, and don't forget to share to amplify awareness. #RareDiseaseDay #CureSarcoma #cancer

submitted 3 days ago • 0 comments

Navigating a #sarcoma diagnosis can be challenging. SFA offers resources and support for patients and care partners. Visit https://buff.ly/4h6m9HQ to learn more. #SarcomaAwarenessWednesday #CureSarcoma #cancer

submitted 5 days ago • 0 comments

We join AACR in emphasizing the important of NIH funding for medical research. Lack of funding hinders #sarcoma research progress, including the development of new therapies. 1/2

submitted 7 days ago • 1 comment

Access to quality #sarcoma care shouldn't be a privilege, it should be a right. SFA works to ensure equitable access to treatments and resources. Join us in advocating for public policies by joining us at our Sarcoma Advocacy Weekend this July. buff.ly/3A81p2O #SarcomaAdvocacy #cancer #CureSarcoma

submitted 7 days ago • 0 comments

Shop Lilly Pulitzer North Hills on Feb 23rd (12-6pm) & support SFA! 10% of your purchase helps #sarcoma research. Mention SFA at checkout or call (919) 784-9174 to shop up to 2 days early. Location: 4321 Lassiter at North Hills Ave # 105, Raleigh, NC #ShopForACause #CureSarcoma #LillyPulitzer

submitted 14 days ago • 0 comments

Don’t forget to show your appreciation to the amazing people in your life, whether they’re a survivor, a care partner, or even a member of your care team. #sarcoma #CureSarcoma #Cancer

submitted 15 days ago • 0 comments

Today is International Childhood Cancer Day, and we are more dedicated than ever to improving the outcomes of children and adolescents living with #sarcoma through research, resources, and advocacy. #ICCD2025 #ChildhoodCancerAwareness #CureSarcoma #cancer

submitted 16 days ago • 0 comments

Share your experience in the Patient Pathway and Impact of Sarcoma from the Perspective of Patients in the USA Questionnaire. Your input is vital for #sarcoma research and better treatments. Learn more and contribute: https://buff.ly/3QfVVHy #CureSarcoma #cancer (IRB Protocol ID 0686)

submitted 18 days ago • 0 comments

Shop for a cause Sunday, February 23rd, from 12:00 pm – 6:00 pm Lilly Pulitzer North Hills – 4321 Lassiter at North Hills Ave #105, Raleigh, NC 27609

submitted 20 days ago • 1 comment

Remember and celebrate those touched by #sarcoma. Create a personalized dedication page to share their story and make a difference in the lives of others. Create a dedication https://buff.ly/4gzjmXd #CureSarcoma #cancer

submitted 23 days ago • 0 comments

#WorldCancerDay is a reminder to come together to take action against #sarcoma and all cancers. Share your story, support those affected, and advocate for progress. Your voice can inspire change! #UnitedByUnique #CureSarcoma #Cancer @worldcancerday https://buff.ly/3Vq52sm

submitted 27 days ago • 0 comments

We have our first 4 Race to Cure Sarcoma (RTCS) coming up in Austin, Atlanta, Boston, and New York City. Come together to meet others in the #sarcoma community, honor loved ones, and support research. Every step makes a difference. https://buff.ly/3CE1sEB #CureSarcoma #cancer

submitted 28 days ago • 0 comments

Know an outstanding sarcoma patient navigator? Nominate them for the 2025 SFA Compassionate Care Award! Nurses, community health workers, and social workers who excel for sarcoma patients are eligible. Deadline: February 20th. Nominate a navigator who’s made a difference: #CureSarcoma #cancer

submitted 34 days ago • 1 comment

Kelly's 11 years of #sarcoma survival show that there is hope! After a misdiagnosis and multiple surgeries, she was finally declared NED (no evidence of disease) and remains so today. Read Kelly's story: https://buff.ly/3PQLYQM

submitted 36 days ago • 0 comments

The deadline for Sarcoma Foundation of America's 2025 Research Grants and Last Mile Research Grant is almost here! Submit by February 3rd: https://buff.ly/4hZ2GKm #sarcoma #CureSarcoma #cancer

submitted 39 days ago • 0 comments

Join us for a moving episode of Sarcoma Stories. The Brenneman family shares their experience. Hear how they navigated David's diagnosis, found connection after his passing, and honored his legacy by walking the Camino de Santiago. https://buff.ly/3WvGPRT

submitted 40 days ago • 0 comments

Tune in to our "Sarcoma Stories" podcast 🎧 Hear from patients, survivors & care partners about their experiences with #sarcoma. Connect with others, find community, and learn more. Search "Sarcoma Stories" on your favorite podcast app today! #CureSarcoma #cancer

submitted 45 days ago • 0 comments

📢 Your voice matters! 📢 With a new session of congress beginning, let us know what advocacy priorities are most important to you. Take our Public Policy Survey: https://buff.ly/40efgxv Together, we can improve outcomes for those diagnosed with #sarcoma. #CureSarcoma #cancer

submitted 47 days ago • 0 comments

The January Sarcoma Spotlight is out now! Check out our latest newsletter, packed with updates on #sarcoma research, advocacy, and patient support. Read about research breakthroughs, the latest advocacy efforts, upcoming events, and inspiring patient stories. And much more! https://buff.ly/4gdMX8t

submitted 48 days ago • 0 comments

Join us for our Adolescent and Young Adult (AYA) Webinar on January 22 at 4pm ET! This is your chance to engage directly, so bring your questions and get them answered live. Make sure to register today and don't miss out on this opportunity to learn and connect! https://bit.ly/ayawebinar #sarcoma

submitted 49 days ago • 0 comments

Looking for a specialized #sarcoma treatment center? Our website lists centers with multidisciplinary teams experienced in sarcoma care, offering access to the latest research and personalized treatment plans. https://buff.ly/4hdX1iB Email [email protected] with any questions. #CureSarcoma

submitted 51 days ago • 0 comments

Tune in to the latest episode of Sarcoma Stories! Uterine leiomyosarcoma survivor Susie Donohue shares her inspiring journey. Learn about the importance of patient advocacy and finding strength in community. #sarcoma #CureSarcoma #cancer buff.ly/4gobgRS

submitted 52 days ago • 1 comment

Thank you for being a part of the #sarcoma community in 2024! Together, we funded critical research, raised awareness, and advocated for change. We're excited to continue our work in 2025 as we celebrate 25 years of impact! #CureSarcoma #cancer

submitted 55 days ago • 0 comments

Our 2025 Race to Cure Sarcoma events are now open for registration! Create or join a team, register, and share with friends and family. Help make a difference for the #sarcoma community. #CureSarcoma https://buff.ly/424GHfO #cancer

submitted 56 days ago • 0 comments

Register for the AYA Sarcoma Experience webinar! This online event on Jan 22 at 4pm ET addresses the unique challenges faced by young adults with #sarcoma, including resources & support. #CureSarcoma Register at https://buff.ly/3BYmAoM

submitted 56 days ago • 0 comments

What possibilities will you discover this year? #FeelGoodFriday #sarcoma #CureSarcoma

submitted 59 days ago • 0 comments

All of us at SFA want to wish everyone a happy and healthy new year! #2025 is a big year for SFA, marking our 25th anniversary. As we go into the new year, we remain dedicated to improving outcomes for people diagnosed with #sarcoma and increasing the number of survivors. #CureSarcoma #cancer

submitted 61 days ago • 0 comments

The countdown to a new year has begun! Your support brings hope to #sarcoma patients and families while fueling critical research and advocacy. The path to a cure is research, and your tax-deductible gift makes it possible. https://buff.ly/4gAp0ZL #CureSarcoma #cancer

submitted 63 days ago • 0 comments

Your end-of-year gift can fuel breakthroughs for the #sarcoma community. See the impact of your support and help us do even more in 2025: https://buff.ly/4gAp0ZL #CureSarcoma #cancer

submitted 64 days ago • 0 comments

As 2024 draws to a close, we invite you to reflect on your achievements throughout the year. Whether you've reached personal milestones, accomplished professional goals, or shown resilience, we want to hear your stories in the comments. #sarcoma #CureSarcoma #cancer

submitted 65 days ago • 0 comments

Hitting the road? Our new "Sarcoma Stories" podcast connects you with the #sarcoma community through shared experiences of patients, survivors, and care partners. Perfect for your commute or road trip. Listen and Follow now: https://buff.ly/4gobgRS #CureSarcoma #cancer

submitted 66 days ago • 0 comments

Researchers, don't miss out! Submit your proposals for the 2025 SFA Research Grants or the 2025 Last Mile Research Grant and help us improve outcomes for people with #sarcoma. Deadline: Feb 3rd. Learn more & apply: https://buff.ly/4hZ2GKm #CureSarcoma #cancer

submitted 67 days ago • 0 comments

The holidays can be a challenging time. Remember to take care of yourself and check in on those you love. Prioritize self-care and find moments of joy.

submitted 68 days ago • 0 comments

Sarcoma Foundation of America (SFA) has united with 22 organizations to urge Congress to prioritize childhood cancer legislation. Together, we are calling on lawmakers to ensure children facing cancer are the first order of business in 2025. curesarcoma.org/sfa-news/sfa...

submitted 70 days ago • 1 comment

Register for the AYA #Sarcoma Experience webinar! This online event on Jan 22 at 4pm ET addresses the unique challenges faced by young adults with #sarcoma, including resources & support. #CureSarcoma https://buff.ly/4grZ6rb

submitted 71 days ago • 0 comments

Episode 2 of Sarcoma Stories is now live. This episode, DFSP survivor, Jenna Pothier talks about her #sarcoma journey and the importance of communication and community. Listen Here: https://buff.ly/4gobgRS #cancer #CureSarcoma

submitted 73 days ago • 0 comments

The AACR-QuadW Foundation Sarcoma Research Fellowship, honoring Willie Tichenor, offers a $60,000 one-year grant for sarcoma research, covering salary, benefits, and research costs, but not clinical or indirect expenses. Apply by January 9, 2025, at 1:00 p.m. EST. https://buff.ly/4fpJ27V

submitted 74 days ago • 0 comments

Did you know SFA launched a Sarcoma Diagnosis Question Guide? This tool helps patients and care partners navigate critical conversations about their diagnosis. #sarcoma #CureSarcoma Learn more and download the guide:

submitted 75 days ago • 0 comments

Discover stories from individuals affected by #sarcoma and contribute your own experiences: https://buff.ly/4gEK3u1 #CureSarcoma #cancer #MySarcomaStory

submitted 78 days ago • 0 comments

What keeps you moving forward even when things get tough? Share your thoughts to help inspire others. #sarcoma #CureSarcoma #cancer

submitted 79 days ago • 0 comments